The Diabetes Dad takes on Hollywood, pharmaceutical companies, and Bret Michaels.
By Tom Karlya
There is much on my mind tonight, so this month I thought I would rattle off a few random thoughts in no particular order. your job, if you know the right person, is to forward the section that pertains to them. Thanks!
TO JOHN LASSETER: You know the brains behind Pixar and all of those great films. I saw The Pixar Story recently and I have the challenge of challenges for you, sir, and the entire studio: create a film about a kid who has been diagnosed with diabetes, but instead of making it a glum, sad, monster of a film about a child who just gets sick, make it an incredibly uplifting film about kids overcoming obstacles to achieve their dreams after diagnosis. You are a dreamer and it will take that kind of ‘dream making' to make this film work; undertake this challenge and donate the proceeds of the entire film (after costs are recouped) to the DRI, JDRF, and anywhere else you see fit. Your son is incredible, John, so are both of mine, and millions more. Show the world just how incredible they all are. Call me; I have ideas.
PHARMA COMPANIES: Until recently I was getting so upset at the cost of test strips for my children. I thought the mark-up was incredibly high and wondered how much profit they were actually making. I mean my kids HAVE to use test strips, right? Then, looking through websites, doing some research, I found that Exxon had a profit of 45.2 billion; Nestle Waters was 2.2 billion, and all Roche diabetes division profits were about 1 billion (various sources). My point: when it comes right down to it; I think that before I complain about the cost of my kids' test strips, I should begin to argue over the mark-up on the gas it takes to drive me to the store to buy them because it seems like that cost may be a heavier hit to my pocket. Do people who need chemotherapy complain about the mark up of their costs also? The same with heart conditions, asthma, mental illness, etc. Perhaps I would be better off picking a different fight. Food for thought.
ADA SCIENTIFIC SESSIONS: Can someone explain to me why bloggers are not allowed press credentials to the ADA Scientific Sessions? It makes no sense to me. Lighten it up, ADA--the idea is for as many people as possible to read what is happening in the diabetes world. Why not allow the opportunity in real time? It's 2010. Join the party. If a blogger does something improper, treat him or her the same as you would a newspaper writer who breaks protocol. Make sense?
ARTIFICIAL PANCREAS: Spent a lot of time talking to many docs recently. Listen, kids, it's just not adding up that this going to happen as fast as everyone thinks or worse yet, than the time frame that is being told to us. Here is the question to ask everyone and anyone you come across that are ‘part of this project' in any way: "What is the time frame before the artificial pancreas has FDA approval for use in kids under the age of 18 for everyday use?" The answer to this is the ONLY acceptable one; accept nothing less. If anyone is worth their salt in honesty, the answer will be that they just don't know, because guess what? They don't. Period. Ask and let me know what you are told.
CHILDREN WITH DIABETES FRIENDS FOR LIFE CONFERENCE 2010: WOW! Beg, borrow, or steal, but make sure you never miss another one. You will love it and so will your kids. You have not been touched to the depths of your soul until you see 800 kids check their blood sugar before breakfast. Inspiring, educational, and kids with diabetes see they are not so different after all; the truth is, they're not.
Porcini Mushroom Risotto Rice Wine-Oyster Sauce Slow-Cooked Italian Wedding Soup Dark Chocolate Sauce Orange Barley Pilaf and Ham Sauté Dilled Cucumber Tomato Salad Almond-Crusted Chicken Fingers Spicy Poached Eggs Cucumber and Red Pepper Salad Tenderloin Mexicana steak
This morning it wasn’t the sun, the wind, or the birds that woke me up. It was the soft, insistent vibrating of a medical device urging me to check my blood sugar. Opening my eyes, still safely under the covers, I checked my blood sugar with a meter smaller than a deck of cards, calibrated my continuous glucose monitor, and then glanced at my insulin pump — which reminded me that today was the day I needed to change my infusion set. My dLife is pretty high tech. And I’m...