The Diabetes Dad takes on Hollywood, pharmaceutical companies, and Bret Michaels.
By Tom Karlya
July 2010 — There is much on my mind tonight, so this month I thought I would rattle off a few random thoughts in no particular order. your job, if you know the right person, is to forward the section that pertains to them. Thanks!
TO JOHN LASSETER: You know the brains behind Pixar and all of those great films. I saw The Pixar Story recently and I have the challenge of challenges for you, sir, and the entire studio: create a film about a kid who has been diagnosed with diabetes, but instead of making it a glum, sad, monster of a film about a child who just gets sick, make it an incredibly uplifting film about kids overcoming obstacles to achieve their dreams after diagnosis. You are a dreamer and it will take that kind of ‘dream making' to make this film work; undertake this challenge and donate the proceeds of the entire film (after costs are recouped) to the DRI, JDRF, and anywhere else you see fit. Your son is incredible, John, so are both of mine, and millions more. Show the world just how incredible they all are. Call me; I have ideas.
PHARMA COMPANIES: Until recently I was getting so upset at the cost of test strips for my children. I thought the mark-up was incredibly high and wondered how much profit they were actually making. I mean my kids HAVE to use test strips, right? Then, looking through websites, doing some research, I found that Exxon had a profit of 45.2 billion; Nestle Waters was 2.2 billion, and all Roche diabetes division profits were about 1 billion (various sources). My point: when it comes right down to it; I think that before I complain about the cost of my kids' test strips, I should begin to argue over the mark-up on the gas it takes to drive me to the store to buy them because it seems like that cost may be a heavier hit to my pocket. Do people who need chemotherapy complain about the mark up of their costs also? The same with heart conditions, asthma, mental illness, etc. Perhaps I would be better off picking a different fight. Food for thought.
ADA SCIENTIFIC SESSIONS: Can someone explain to me why bloggers are not allowed press credentials to the ADA Scientific Sessions? It makes no sense to me. Lighten it up, ADA--the idea is for as many people as possible to read what is happening in the diabetes world. Why not allow the opportunity in real time? It's 2010. Join the party. If a blogger does something improper, treat him or her the same as you would a newspaper writer who breaks protocol. Make sense?
ARTIFICIAL PANCREAS: Spent a lot of time talking to many docs recently. Listen, kids, it's just not adding up that this going to happen as fast as everyone thinks or worse yet, than the time frame that is being told to us. Here is the question to ask everyone and anyone you come across that are ‘part of this project' in any way: "What is the time frame before the artificial pancreas has FDA approval for use in kids under the age of 18 for everyday use?" The answer to this is the ONLY acceptable one; accept nothing less. If anyone is worth their salt in honesty, the answer will be that they just don't know, because guess what? They don't. Period. Ask and let me know what you are told.
CHILDREN WITH DIABETES FRIENDS FOR LIFE CONFERENCE 2010: WOW! Beg, borrow, or steal, but make sure you never miss another one. You will love it and so will your kids. You have not been touched to the depths of your soul until you see 800 kids check their blood sugar before breakfast. Inspiring, educational, and kids with diabetes see they are not so different after all; the truth is, they're not.
Grilled Halibut (Gluten Free) Fennel and Mushroom Salad Spiced Popcorn Egg Drop Soup Pound Cake Topped With Fruits n' Nuts Steak and Mushroom Sandwich Cajun Catfish Foil-Grilled Italian Potatoes Tuna-Vegetable Salad Tangy Shrimp Appetizer Skewers
Let me count the ways. Actually I can’t count the ways; there are too many. But let me begin with nasty carbohydrates and how they torture me. I’m considering making “How Do I Hate Thee?” a series of blog posts, exploring the many different things I despise about diabetes. There is so much to hate about diabetes, but this one I place high on my list. Last Wednesday, a friend offered me and...