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The Question
Fri Jun 01 02:08:46 EDT 2012

Can you have type one diabetes and negative antibodies? Do blood sugars fluctuate between high and low with no rhyme or reason prior pancreas failure?
Asked By: cathymcc  
Category: Prediabetes

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My 8 year old has been having unexplained high blood sugars off and on that resolve on their own. Her highest number has been 262 after a 20 carb popsicle. It came down to normal within 2 hours. A hotdog on a bun put her up to 212 an hour later and 2 hours later was 189. One morning before breakfast she will be 97 to 110, and another morning she may be 130-150. Random blood sugars throughout the day may be 120's to 130's but sometimes as low as 104. Tested for insulin level and A1C and antibodies and everything was normal. I don't want there to be a problem where there isn't one, but I'm concerned about what is going on. Obviously we could not start her on insulin now. How long before you develop diabetes does your blood sugar start to fluctuate? She is not overweight and is very active. My son is type one, diagnosed at the age of 9. My mother is type 2, now insulin dependent. Am I just crazy?
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Expert Answers (1)
2012-08-11 17:06:02.0

Abnormal blood glucose readings such as those you describe are a signal that something is not working well in the endocrine system. I have two sons with type 1 D and the second son had high post meal blood sugars at first with normal fastings. Gradually, the pancreas lost more and more capability to keep blood sugars at bay and insulin was required. I would say watch blood sugars carefully and refer back to your endocrinologist for more guidance. Good luck!
Answered By: susan sloane
Accreditations: B.S.,Rph.,C.D.E.,Nutritionist
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Community Answers (1)
2012-10-29 11:08:20.0

Dear Cathy, how confusing and terrifying this experience is for you and your little girl! She sounds like me, before a strept infection finally pushed me into complete pancreas poop-out . I have NEVER shown any insulin antibodies: autoimmunity is NOT the only cause of "Type 1" diabetes. Has she been seen by a pediatric endocrinologist to determine if there are other hormonal abnormalities, such as abnormal IGF or glucagon (also produced in the islet cells), or thyroid or adrenal hormone fluctuations? Has a CGM been used and the data analyzed? It IS worth making a trip to a major medical center for a comprehensive endocrine work-up. My kidneys were nearly destroyed before I started using insulin, and more than a decade later before my thyroid disease was diagnosed, though the signs were there when I was only 3 years old. There is so much more knowledge now than there was when I was 8 years old, and you cannot get a solution to this mystery without the clues revealed by a comprehensive exam.Yes, there will be a lot of blood letting, and a lot of strange imaging methods, and she may need to be actually admitted to an appropriate hospital to get it all done efficiently. But, discovering the cause is so important to your daughter's future health and survival.Don't wait until she is deathly ill and in acute kidney failure to find out.If you don't have insurance coverage for this, check into Medicaid! Contact the medical social work department of the medical school's hospital in your state.This precious child's life depends upon getting the right answers--and soon.
Answered By: sallyashus

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*** All information contained on dLife.com is intended for informational and educational purposes only. Our Expert Q&A is not intended to be a replacement or substitute for consultation with a qualified medical professional or for professional medical advice related to diabetes or another medical condition. Please contact your physician or medical professional with any questions and concerns about your medical condition.

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