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I have a 4yr old who
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10/10/09 09:04 PM

"I have a 4yr old who is type 1, how do I get help with homeschooling him because he can not go to a public school?"
Asked By: jamaaltyrik  
Category: Children's Issues

Background Info Hide
My son has a rare illiness that is called Positive Insulin Antibodies, where his body holds insulin and disburst it at any given time. He has aThis causes him to also have sleep problems where he can stay up for several days straight. He has to get his blood sugar checked every 30 to 45 minutes, and he get stuck 24 to 27 times a day. He has a pump. His blood sugar can be at 200 and drop to 30 less than 30mins. I get little sleep because of the continuos checking blood. I am currently writting letters to my congressman/congresswomen for help with paying for a continuos glucos sensor that will help me detect his low's and high's. He is so sensative, that I have to home school him now, and I am not financially fit. I had a career, but I had to quit because of my son illiness. I do not trust anyone with him, because he can fool you. I would like to know how can I get help financially while I stay at home. I have to teenagers I also have to support. I love taking care of my son, he is joy.

Expert Answers (1)

10/14/09 04:37 PM

Hello jamaaltyrik
Your dedication to your son is commendable. I agree with a complicated case like this, it is in his best interest that he is cared for by you as you know his reactions and have experience with his labile glucose levels. You need to apply for medical assistance for your son through your state. You probably will have to go through your county public assistance office. I do not know your financial situation for your self and your other children, but I think that your son would be covered under catastrophic illness. If you do not know how to apply, you can ask for assistance through legal aide in your state or county. When you get medical coverage for your child, see if your state has a waiver for in home medical aide. You may qualify as his caregiver and may be able to get a small fee. Every state is different. The legal aid lawyer may know about this or your county assistance worker may be able to help you.

I celebrate your proactive stance in contacting your congressman/woman. You are a great advocate for your child. Contact companies that manufacture pumps on-line or call or e-mail them with your son's history. They may be able to help or may be interested in placing your son in clinical trials.

I also recommend that you get connected with American Diabetes Association, and with the Center for Disease Control. Both have web sites that can direct you to clinical trials that may be of interest to you.

We are on the forefront of great advances in care and are researching towards a cure. It is my greatest hope that your son will see these advances and will benefit from them. That is why I encourage you to let everyone know about him. Make sure the researchers out there know him by name. He could help them as much as they will try to help him.

Your case is so special and so inspiring that it could benefit parents out there. Think about sharing your experiences on dLife blogs. This will help someone out there that thinks they are alone.

Answered By: Rita Juray
Accreditations: RN, MLT-ASCP, CCM, CDE
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