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July 5th, 2008
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A.Guandalini

My blood sugar is currently at 384. I just stare at the number. My mind trying not to fathom what those digits represent. I checked my blood sugar because I wanted to enjoy the cookie that I saved from dinner. Now I stare at this cookie, taunting me, telling me how my life is going to be. It looks so yummy with its million chocolate chips and golden brown hue. But those numbers tell me that my cookie will have to wait.

This whole week has been up and down. Yesterday my blood sugar hung in the 300s for the afternoon then crashed into the 50s for three hours after dinner. I consumed more calories in those three hours than in my entire dinner. Today I woke up with a high reading (all those carbs finally went to use) then crashed again after lunch. So at dinner I decided not to do as much insulin (and I suspended my pump for over an hour when I crashed) which has me at 384 right now.

I so desperately do not want to think about those numbers. I do not want to think of the effect they have on my body. I do not want to think about the way my eyes, my nerves, my kidneys, my heart are being torn apart by this reading. But my brain won't let me off easy. My brain reminds me of the reality that 384 is not good. It reminds me that the ketones that race through my body are destroying my life. It reminds me that I am not alone in this. I see the faces of the other diabetics I know and I think of 384. I see their eyes, their nerves, their kidneys, their heart all being destroyed because of these numbers. These ever present numbers.

And I cry for them. I cry for myself. I cry because I see how far away a cure is for each and every diabetic. I cry because we have years, decades, perhaps centuries of 384 taking a toll on our bodies. I cry because I know that people before me have had the effect of 384. They have lost their vision, their limbs, their kidneys, their life to this disease. And the reality of life is that 384 isn't leaving me out of those destroyed. Even if I keep my eyes, limbs and kidneys, 384 will still have an effect on my body. I can feel the effect now. I feel the way I can't concentrate all that well. I feel the way my mood shifts because of those numbers. I feel how 384 takes away a little piece of me.

It makes me want to go up to my rooftop and yell to the world. I want to tell them how these numbers rule my life. I want to let them know that I am not just an average girl. Because 384 is messing up my average and its messing with my life. I want them to see the inside of my body and how these numbers hurt me. I don't want to hide how horrible 384 is. I want everyone to see.

I will show them my kidneys and how they slowly cease to work properly. I will show them my nerves and how eventually they might slow and never feel again. I will show them my eyes and how the vessels enlarge and eventually break leaving me in a world of darkness. I will show them my heart and how each beat is another blessed event because 384 slowly destroys it. I will show them my entire body and each portion being turned to dust because of 384.

384 makes me aware of how important a cure is for me and for the other diabetics in our world. These numbers show me how my life is not just a normal college girl's life. These numbers remind me that my life is slowly being taken away from me and I can't even control it. These numbers remind me that life is just simply not long enough.



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Lindsey - I know what you mean about 384 taking away a piece of you. I had a terrible night last night, with a ripped site and a 409 mg/dl, and I felt that pang of "What does this look like inside me right now?" It can be so frightening to thing about.

You aren't alone. Not for a second.


I completely understand & it sucks how a number can wreck the day mentally (plus the physicial effect of it). It's hard to explain how a number can rule your life like it does with T1, but I appreciate your post.

take care!


Diabetes will not steal my life caught my eye. I'm a 36 year old mother of 3 & diagnosed with diabetes 1 a month ago. My numbers have been as high as 584 & normal fastings in the 300's. Their were days when I ate baked fish & steamed veggies & my numbers were still in the 300's this was so depressing. I spoke to an RN & she told me that my numbers would be high because I still had to have carbs daily. I'll finally see a dietian tomorrow. Like you I hve proclaimed that diabetes will not steal my life. I plan to educate myself on it as much as possible & change my lifestyle on diet & excercise. Your not alone. Prayer helps.


I've definitely been there (this afternoon). I hope things are on an even keel for you today!

I think you describe perfectly what so many of us with type-1 go through on a regular basis. Thank you.


Dear Linsey,

I am Luis Fernandez, a Spanish researcher in the field of eHealth from the Tromsø Telemedicine Laboratory on Tromsø (Norway) (www.telemed.no/ttl). Our project, MyHealthService (http://myhealthservice.itek.norut.no), is focused on developing new eHealth services for chronic patients. Currently we are studying patients, like you, who are creating web content (e.g. blogs, webs, videos). For this purpose, we have designed an anonymous web survey (which doesn’t have any commercial purposes). We will really appreciate your collaboration with our research by filling out this survey. If you want to help, please send me and email and I will send you an invitation to do the survey.

Sincerely,
Luis (luis.luque@norut.no)
PS: If you want to get the results of the survey you have just to send me an email and I will keep you posted.
---------
Luis Fernandez Luque - PhD Fellowship
NORUT, PO box 6434, 9294 Tromsø, Norway
Alternativ e-post: luis_fernandez_luque@hotmail.com
URL: http://myhealthservice.itek.norut.no/


You are not alone at all Lindsey! I have been struggling for years! Should I have that cookie, drink that regular soda? For the longest time I picked my taste buds over what I should be eating and if I don't get it together soon I will not see my children grow up! This disease is so life changing, hang in there!


thanks for the comments everyone!
monica- definitely self educate and learn everything you can from other diabetics/doctors/nurses. that's the only way i survive this disease, by making sure i know everything i can! best of luck!


I completely understand how you feel Lindsey. It's been extreme ups and downs for me for the past 7 years it seems like... and there are days when you just do not want to care anymore. Thank you for reminding me what I am doing to myself when I don't want to care what these numbers represent...


I don't think anyone can truly realize just how brave Diabetics are, unless you are one. I know where you are coming from. Just the other day I had a Blood Sugar of 440 from missing a bolus from a rather large meal, then I crashed down to 40 once I corrected. It sucks, but you have a good point no one is alone in this.


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Lindsey Guerin
Lindsey is a typical, yet unique, Texas girl who loves shopping, movies and reading. She loves to travel and take risks. She dreams of diabetes cures, never-ending cheesecake and her own airplane. The rest you can discover in her blog!(Read More)

Latest Posts: Working Diabetes | Can I Quit Now? | Walking Low

Carey Potash
Carey is a full-time hater of diabetes. The benefits stink. His 5-year-old son, Charlie, was diagnosed with type 1 diabetes when he was 22 months old. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children.(Read More)

Latest Posts: Active Insulin | Adjusting Your Happiness Levels | Planet Diabetes

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