I’m home this week watching the kids while Susanne is enduring four straight days of alien-like probing at Temple University Hospital to study her newly diagnosed gastroparesis. They are sticking tubes everywhere they possibly can - snaking her like a backed-up toilet.
Tomorrow they’ll go from mouth to nose and perhaps nose to ear as if her head is a wooden Tinkertoy spool.
Today’s tests were pretty horrible for her. The kids made cards to cheer her up. Charlie’s sentiments appear to come from his own personal experience.
Front cover: "Sorry the Docter STINKS! I Love U!"
Inside: "Dear Mom, I’m sorry the Docter is a nag! Who likes the Docter! I Love U Mom! Love, Charles"
The illustration is of a heart with stick-figure arms and legs and a stethoscope getting pummeled by a stone launched from a makeshift catapult attached to what appears to be a Chrysler LeBaron.
Being home all day with the kids, I see first-hand how often Charlie goes low. At the playground this morning, Charlie asks if he should drink the whole juice box following a borderline low.
I look over at Charlie while zipping up the diabetes bag. His cheeks are pink from the heat. I’m weary from this juice box question. It’s one I feel like I’ve had to answer thousands of times. I’m weary from the bag itself. Weary of its contents; the pop of the test strip canister lid; the piercing of the juice box straw through its plastic casing.
"Ya know, Charlie, sometimes it’s hard to know the right thing to do."
"Mmmhmm," he nodds.
"Drink it all."
OK - adjust your basal rates - email your CDE or "docter" the log book every other day if you have too - go to another pump class - just get those lows to STOP - they are the worst (this is after I just tested Trev and he is 512 - so maybe now I would appreciate a low so I know the insulin is working) This is madness! Hope Susanne is OK - hope Charlie is OK - I hope Trev is OK - I hope to know the right thing to do. Hang in there - you are DOING the right thing!!
OK - adjust your basal rates - email your CDE or "docter" the log book every other day if you have too - go to another pump class - just get those lows to STOP - they are the worst (this is after I just tested Trev and he is 512 - so maybe now I would appreciate a low so I know the insulin is working) This is madness! Hope Susanne is OK - hope Charlie is OK - I hope Trev is OK - I hope to know the right thing to do. Hang in there - you are DOING the right thing!!
I just spent two days at college orientation with my son ( heat index 106 + lotta running around campus + high carb food I couldn't eat= LOTTA LOWS)I was shocked at how hard this was on my body! I frankly don't know how the kids do it....tearing about all day in the heat playing. Not sure the 'docter' can help. Love to you and Charlie and Susanne....Mousie
very well written,Thank you share.
baidu
Thanks TM. I hear ya. CGM is back on after a bit of a break, so we'll try some basal testing to limit those lows. Hope Trevor's highs were short-lived.
Thanks Mousie. It's brutal out there. Please be careful.
Kaiwen: Thank you and thanks for visiting the blog.