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July 4th, 2008
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Not long after I wrote this post about a news story that called bariatric surgery a "cure" for type 2 diabetes, a friend of mine emailed to ask about one of the comments. A reader suggested that there will never be a cure for diabetes because the disease is a money maker.

I explained to my friend that the multi-billion-dollar industry makes a profit in so many areas: test strips, meters, oral drugs, insulin, pumps, syringes, even accessories. What motivation is there, I asked her, for the world to come up with a cure and put all those good people out of work.

I may be naive and woefully open minded, but I am not a pessimist; I believe there are good doctors and researchers out there who are not motivated by money.

And when I first read this article in Diabetes Health magazine, I thought about how wrong Joey's mom was.

The article says: When she speaks about the documentary, a hint of anger swells in her voice. She thinks the media spends too much effort attempting to make people with diabetes appear "normal." According to Silvestri, the only way the public will take the disease seriously is by showing its debilitating complications.

"Anyone who says you can have diabetes and lead a normal life is letting everybody off the hook and robbing Joey of a future. The technology we have now is not good enough. I don't want Joey to live a life with diabetes; I want to find a cure. Diabetes only takes from people's lives and I hate it," Silvestri says.


I was angry! I am leading a normal life, I thought. I take vacations, I work, I'm a mom, I'm not limited in any way by this disease. I look normal. And I guess that's just it. When I tell people I have diabetes they think, "But you don't look sick." And that's the problem. There is no motivation for a cure. As a representative of this disease who is not walking around missing a leg or half blind the people in my world think I'm living just fine by managing my disease. Because that's what I'm really doing--management.

We don't often talk about a cure here except to yell at diabetes and say we can't wait for diabetes to be gone; or to whisper that clinical trials on humans are being done--we don't want to jinx it by talking about it.

I know I said I'm not a pessimist, but I really believe that I'll live with diabetes for the rest of my long life. So let's start talking about it. In concrete terms. What's it going to take to get the medical community more motivated--just for the sake of motivation, not for the sake of financial gain--to put thousands of people out of work and give us nothing to write about?



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I must frankly agree Joey's mother. If you consider it "normal" to have to guesstimate what the impact on your blood glucose will be after eating anything, even after starting at the same number and eating the same number of carbs only to have a different end result, then great for you -- but that is not normal by any stretch of the imagination.

You might consider reading the 2003 Diabetes Health article entitled Would You Cure A Profitable Disease? and see if your perspective changes.

I would also refer you to the article Perceptions vs. Reality written by Deb Butterfield, author of "Showdown with Diabetes", in which she writes:

Diabetes is big business with powerful economic, social and political forces opening and closing doors to our treatments and cures. Billions of dollars are made from selling products to the diabetic community.

The public perception of diabetes is influenced by our personal testimonies, and we have portrayed a disease that is no more than a minor inconvenience. Diabetes has long been a disease of blame and shame with accusations of non-compliance, mismanagement, and "cheating" on diets. Diabetic complications have served as a line of demarcation between those who are proud to speak out and those who hide. People who are doing well with diabetes, who are congratulated and respected for their ability to control their disease, become the faces that peer out of the pages of articles, advertisements and diabetes education brochures.

By showing the world only the happy face, and not the tragic disease beneath, we are endorsing the prevailing philosophy of tolerating, rather than curing, diabetes. For policy makers, philanthropists, employers, and the public to feel compelled to cure diabetes they need to understand that diabetes is:

* costly for society and that those costs are rising
* pervasive and the incidence is accelerating
* soul-destroying and there is still no cure
* and, above all, that diabetes is curable

In order for this disease to be cured, there needs to be a fundamental shift in the way diabetes is viewed. We need to close the gap between the perception of diabetes as a controllable condition and the reality that it is one of the world’s oldest, deadliest, and most pervasive diseases.


Clearly you didn't get the part where my perspective already changed. Right there in the post! Re-read this clip: I look normal. And I guess that's just it. When I tell people I have diabetes they think, "But you don't look sick." And that's the problem. There is no motivation for a cure. As a representative of this disease who is not walking around missing a leg or half blind the people in my world think I'm living just fine by managing my disease. Because that's what I'm really doing--management.


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Michelle Kowalski
Michelle Kowalski, a writer, editor and photography hobbiest in Missouri, has had type 2 diabetes since February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes.(Read More)

Latest Posts: Can I Say 'No'? | My Bad | Three Airports, Two Searches

Carey Potash
Carey is a full-time hater of diabetes. The benefits stink. His 5-year-old son, Charlie, was diagnosed with type 1 diabetes when he was 22 months old. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children.(Read More)

Latest Posts: Active Insulin | Adjusting Your Happiness Levels | Planet Diabetes

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