I have a Bachelor of Arts degree in English. At Rutgers, I studied Shakespeare, James Joyce and Vonnegut.
Susanne has a degree in sociology. She studied gender roles, poverty and the inequalities within ethnicity and race.
Together, we have unparalleled medical qualifications for keeping a child with type 1 diabetes alive.
Charlie may go to Children’s Hospital every three months and see doctors and nurses with years of experience in the field of medicine, but let’s face it, we are his medical team.
So how do you manage your healthcare team when it’s you?
Susanne is chief of endocrinology and clinical dietitian. I am the director of research. Charlie is certified insulin pump instructor and Maeve is pediatric nurse practitioner. Ben, the 4-year-old, is head of head rubs. The living room is the exam room and the big brown chair is the examination table.
Maeve: Hi hon, is your address still 27 Dogwood Drive?
Charlie: Yes
Maeve: OK, your copay today is $20. Doctor Potash will see you on the big brown chair in just a moment.
Susanne: Did you order more infusion sets from Medtronic?
Carey: No, I thought you were.
Susanne: I’m the chief of freakin’ endocrinology!
Carey: Let me check with Maeve. Maybe she has some.
Susanne: Ugh! Forget it. I’ll figure something out. I can’t talk. My 11:00 is waiting on the big brown chair.
Susanne: Hi there, Charlie. Getting ready for Thanksgiving?
Charlie: mmm-hmm.
Susanne: How was your Halloween? What did you dress up as?
Charlie: A hockey zombie with a puck through my skull.
Susanne: That’s, um, nice.
Susanne: OK buddy, I’m just going to replace this old infusion set. You may feel a little ….
Charlie: AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAHHHHHHHHHHHH!!!! Stop!!! Stop!!!!
Susanne: Code red!!! We’ve got a kicker and a screamer!!! Carey, hold down his elbows. Maeve, get his legs!!!
Maeve: I can’t hold it!!!!
Susanne: Just one more second!!!
Maeve: I can’t!!! He’s too strong.
Susanne: Uh oh, it’s a gusher!!! Maeve, tissue stat! Ben! We need you!
Carey: [smack!] Ow! I think he broke my nose with his elbow!
Charlie: AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAHHHHHHHHHHHHHHH!!!!
Susanne: Almost there …
Ben: [rubbing Charlie’s head] It’s OK, Chawey. It’s OK.
Susanne: Phew! Done!!!
Susanne: OK, so see ya again on Friday, Charlie?
Charlie: mmm-hmm.





