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October 12th, 2008
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Well, as you may have read in one of my earlier posts, I had my appointment yesterday with my endocronologist. I had also told you I was hoping for a good A1c and I knew if my test wasn't good, I could expect to have the "you're a great candidate for the pump" talk. Well, I got my test results back and I can honestly say that I had one of the highest A1c's that I have had in years. I was very dissapointed. I am actually so ashamed, embarrassed, and frustrated that I don't even want to share my number with you. Maybe, if you're reading this and you are diabetic like me, then you can relate to this feeling of not wanting anyone else to see your score. I even go out of my way to hide my blood glucose reading every time I test. I'll be the first one to admit that this fear comes from being insecure about what other people might think of me. Or fear that someone might make a judgement of either my health or my diabetes management based on the number. In many cases, non-diabetics think they know what the number means, but, from my experience they usually don't.

I am also the first one to admit, another reason why I don't let anyone else see what my sugar reads is because I am selfish. This is MY DISEASE! You have no business peaking over and trying to catch a glimpse of what my meter says. It would be like me trying to read your bank statement over your shoulder, and then forming some opinion based on how much money you have in your account. For all I know, I might be looking over the shoulder of Donald Trump. My point is don't judge a book by its glucose levels.

Something positive did come out of yesterday's appointment. After hearing about my A1c, something inside of me clicked. I got home and I immediately said to myself, "hell no." I am not going to let this high number be representative of me ever again. So today, I CAREFULLY watched what I ate and made darn sure that I knew my carbohydrate intake. I also really took my time calcuating how much Novolog I would need. I am happy to say that I had an extremely successful blood sugar day and I feel a lot better! :)



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Hi, Andy. I'm sorry you were disappointed with your A1C number, BUT I'm thrilled that you take it as an opportunity to do better and not a reason to give in - to quit.

And although I agree about wanting privacy around the d sometimes, I often find I do better if I'm sharing my numbers with folks who understand and who can give good, positive support... :)

I look forward to reading about your PROGRESS... Nicole


Thank you very much Nicole :)--andy


Andy

Best of luck on sticking with this. Trust me, I know bad A1C's. And when you've worked to improve it and it doesn't respond that's just a bummer. Are you using a logging application (like SugarStats.com) something that would help you identify where the worst times of the day are for you?

Have you considered trying Symlin? It works well on the post-meal highs and I think it's helped me a lot.

I hope you get a MUCH better A1C on the next go round.


You have said a mouthful here stating how it makes you feel and others can relate. The honesty in your writing is much appreciated.


This is a component of diabetes so few especially doctors ever regonize or speak about. At least for me the amount of shame and guilt over those darn numbers! Its as if your constantly being told if your "good", or "bad". Did you do what you "should" have or did you "cheat". It really is unfair to feel so guilty about something that is so constant and unrelenting. Thank you again for your honesty and sharing how you feel. No matter the number, it's what you do in the next moment that matters and it will never change the person you are. Good luck on a journey your not alone in.


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Andy Bell
Andy Bell has lived with diabetes since the age of 14. He controls his type 1 diabetes by taking multiple daily injections. Andy is 27 years old now and despite his diabetes, still maintains a very active lifestyle. Andy works for the Juvenile Diabetes Research Foundation (JDRF) in the National Outreach Department.(Read More)

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Scott Marvel
Scott lives an active life with type 1 diabetes. Aiming to stay on top of his unexpected diagnosis, he puts a strong foot forward to stay in control.
Living life in the sun and fulfilling his dreams, Scott tries to educate himself, and others, on the unquestionable possibilities of a life with type 1 diabetes.(Read More)


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