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November 21st, 2009
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As parents of children with diabetes, we are constantly being challenged with difficult decisions to make.

 

Charlie has wanted to play ice hockey for over a year now. He lives for hockey. He mimics the moves he sees on television from professional hockey players, pretending to stop on a dime and spray ice on the hard-wood floors. He sets up little hockey figurine players and simulates game situations. When he's not doing that, he plays hockey on his Playstation. And when he's not doing that, he and I play indoor knee hockey in his bedroom where he repeatedly takes ferocious slap shots into my groin. It's great fun. The kid loves hockey, is what I'm tryin' to say.

 

The waiting was finally over. I knew how excited he was for this moment, so I didn't want to screw it up on my end. I came with a simple plan:

 

1. Feed him lunch before he plays

2. Disconnect pump

3. Hope for the best

 

Hockey was from 11:45 to 12:45.

 

Perfect, I thought. I'll just pack a lunch for him and feed him just before he starts playing. One cheese sandwich on wheat bread and a bag of pre-sliced apples. He'll have a full belly of carbs for the exhausting hockey workout. Perfect.

 

I suppose I'm making it a bit too obvious that the outcome would be anything but perfect.

 

As parents of children with diabetes, we also know that all plans can be tossed away at a moments notice because diabetes don't play that way.

 

When I tested Charlie about 15 minutes before hockey was to start, his blood sugar was over 300. That wasn't part of my plan. Decision time. How can I give him the full lunch when he's so high? How can I disconnect him when he's so high? There really couldn't be much active insulin lingering from breakfast to bring him down. Was this an adrenalin high? Very possible. But he's got to eat something.

 

I passed on the sandwich and gave him 8 carbs of apple slices. Not knowing what the hell would happen, I didn't correct the high. I just bolused for the apple slices. I still went ahead and disconnected the pump.

 

Off he went, striding into the center of the ice, joining the others for a pre-hockey stretch. At least he won't be low, I thought.

 

The first half-hour was rigorous skating drills. No sticks, no pucks. Just a drill sergeant of a woman putting the kids through a very intense workout. When the drill sergeant lady came off the ice briefly, I reminded her that there was a diabetic amongst them and that the instructors should be aware in the event that his blood sugar goes low and he needs to come off the ice.

 

"I don't see there being any problems today though," I said confidently.

 

I believe they call that foreshadowing.

 

Just as the hockey sticks were coming out and Charlie's dream of playing hockey was finally about to happen, he skated over to me with a thumbs down gesture, indicating that he felt low.

 

Have I mentioned that I absolutely despise this disease?

 

Charlie's blood sugar was 40. I snapped off his helmet quickly and worked on him like he was a racecar driver pulling in for a pit stop. I filled him up with a juice box and Lorna Doone short bread cookies. I then cracked open another juice box and filled him up some more.

 

"Hurry dad!"

 

We watched and waited. At this point there was only about 15 minutes left. I know how badly Charlie wanted to touch stick to puck.

 

"Let's just give it five minutes," I said.

 

Charlie was revving his engine and watching the other cars go by.

 

"It's almost over," he said, dropping his head back on the bench in frustration.

 

After about three-and-a-half minutes I took his finger and pricked it. He was 62.

 

Have I mentioned I absolutely despise this disease?

 

Decision time again. I can take the safest route and just keep him off the ice. Or I can let him enjoy 10 minutes of hockey while I watch uncomfortably from behind the glass.

 

What would you do?

 

What did I do?

 

 

 



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I wouldn't know what to do, but I'm assuming he didn't play... The pictures a great though, and he seems to be a really sweet boy,


I don't get it. What did you do? Where did he get his love for Hockey?


It's funny the trepidation I feel admitting in writing what I would have done. So many of our choices are so fraught with anxiety I think I don't often admit the risks even to myself.
Last night, Harry was 89 at bedtime because he threw a hissy fit at dinner and refused to eat. I knew it was a questionable dinner so I had only bolused him 8 cb, which he ate in the form of a slice of baguette accompanying the offensive fisherman's stew.
89 at bedtime, no food in the system, I wanted to make him eat something but that really undermines the whole "eat what I cooked for dinner or eat nothing" deal. And, he totally is aware of that. I turned off the basal, hoped for the best and checked him every two hours.
So regarding hockey, I would have made my son suck down another juice box and then let him play. No right or wrong, just different parents going through the maze.


I'm not a parent of a child with diabetes but I am a parent of 5 boys ages 3 (x2) to 9 that all play or will be playing hockey shortly. I am also the COO at dLife so here our worlds intersect. Its a great sport as Charlie has found out and perhaps he (and you) can get inspiration from Toby Peterson who plays professionally with the Dallas Stars and is a Type 1. He plays with his pump on during practices and games. Here's a link to a recent story that you may find interesting. Good luck and keep us posted on his progress. Gregg

http://www.dallasnews.com/sharedcontent/dws/spt/hockey/stars/stories/022209dnspostarspeterson.4266448.html


This is Carol's husband and that was a great article on the pro hockey players.Gives me a lot of hope.My son was diagnosed at 3 and is now 5,and he is one active kid.We need to get him in some sports soon so it's nice reading and learning that others are conquering their adversities and doing well in the sports world.JK


Man that sucks! I bet you let him play. I'd have just sat there panicking, and then it would have been over.


Oy...been there with basketball, tennis and my highly active kid just playing outside. I HATE this kind of decision. We always have to weigh safety vs. the emotional toll this stupid disease takes on our kids. IMHO, there is no single, right answer. I would have let him play.


Yes, I sent him back out there on the ice and watched him with equal parts panic and joy.

Gregg: That's a great article on Toby Peterson. Thanks for passing it along.


Oh my. We have been there a time or twenty! I would probably have done the same thing, only I would be kicking myself when the 400 hit later becuase I totally over did it trying to keep Maddison "safe"


Judging by the sweaty hair and smiling face in the last shot - I assumed you let him play. I'm glad he got to put stick to puck and I hope the D doesn't make him sit out much more this season. (and I realize how feeble that statement is, but it's all I've got)


Wow! We totally understand your frustration. Our 9 yo daughter began playing ice hockey when she was 5. She was dx at 5 1/2. She is currently a defenseman on a co-ed squirt team. She loves hockey. We have not been able to get good numbers for games or practices. We have tried all sorts of tactics but nothing ever seems to help. We use the thumbs up/down as her signal also as well as disconnect. We figured that out after we watched the $$$$$ pump dangling from it's tubing between her legs, going down the ice. It is so frustrating when she skates to the box, tests, is low and then tries to wait to get back out there. Waiting 15 minutes in a game would be the entire period!!! She is the only type 1 playing hockey in Anchorage that we know of, so we don't have anyone else to get suggestions from. Great sport, keep him in it!!!!


I AM SORRY THAT HAPPENED. MY SUGAR GOES LOW SOMETIMES TOO AND IT'S NOT A NICE FEELING. I HAVE TYPE 1 AND I AM TRYING TO GET IT UNDER CONTROL. I COULDN'T IMAGINE WHAT IT MUST BE LIKE TO HAVE TO TAKE CARE OF A CHILD THAT HAS THIS DIABETES. MY HEART GOES OUT TO YOU AND UR FAM.


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Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
Kerri Sparling
Kerri SparlingKerri Sparling, diagnosed with type 1 diabetes when she was six years old, doesn't let diabetes define her. It just helps explain some things.
Creator of the diabetes blog Six Until Me and an editor for dLife, Kerri is an awareness advocate and an active member of the diabetes community. She'd also like a kitten.
(Read More)
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