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November 20th, 2009
Category: Food
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Can we be better caregivers? I guess. We can always be better. We were thrown into this diabetes life without much warning just like many of you. We were caregivers merely by having children, but care-giving on this level is a beast of another color.

 

On this day, six years ago, Charlie was diagnosed with diabetes. He was still slurping from a bottle. What is it about the fall? So many people are diagnosed this time of year.

 

The changing leaves. Halloween. Sunday football. Apple cider. Sweaters. Murder within the pancreas. All trademarks of autumn.

 

I was giving Maeve a bath when Susanne decided to take him to the hospital despite the pediatrician’s lackluster opinion on the matter.

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Many of us have been a-twitter about World Diabetes Day, bringing attention to the epidemic proportions of Type 1 and Type 2 diabetes and the Big Blue Test. Seattle had a bike ride as did Victoria, BC. Philadelphia had an event at the Temple University School of Podiatric Medicine. Those of us in the New York City area celebrated with a huge D-Meetup and pizza party. The indefatiguable Allison set things up in a Midtown office building. At its peak, over 20 Type 1s, Type 2s, and Type 3s gathered to enjoy each other's company and take part in the Big Blue Test.

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"This is the most sick I’ve ever felt," Charlie said last night, hugging the "puke bucket" so tightly you would have thought it was keeping him afloat.

 

He looked miserable, wanting so badly to just throw up and get the awful feeling out of his stomach. Get it over with. These are some of the most difficult times of being a parent of a child with diabetes.

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ADM logoAs a parent of a child with diabetes, it’s not so easy to set goals. Test his blood sugar more often? Don’t think so. His little fingers look like they’ve been dipped in bee hives. Doctors have been urging us to cut down on testing for years.

 

Get more exercise? Charlie never stops running. He’s like a greyhound on amphetamine.

 

Get less exercise? Doubtful. See above.

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I have not had good blood sugar the last four days. Watching the little blips on Dex go crazy high and then plummet below my "low" mark has been nerve wracking to say the least.

 

What did I eat? Did I not exercise enough? Did I overdo my exercise? Am I stressed? Is it hormones? Is my meter calibrated right? Did I calibrate Dex right? What did I eat? Did I forget to bolus? Did I miscalculate carbs?

 

What did *I* do?

 

The last four days I blamed myself for my roller coaster blood sugars. They were horrible, really. Highs so high and not responding to insulin. And then when those highs finally started coming down I felt comfortable enough to eat and my sugar would shoot back up. I think Dex woke me up most of those four nights.

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ADM logoI am a firm believer in goals. Without striving towards something I lose focus. I need to have that bell to ring, button to push, or number to reach to motivate myself.

 

Currently I am working on losing 40 pounds. I put up a spot on my blog that is titled "Where's the 40?" and beneath it I post a picture of the number I am at in relation to the 40 pounds. Right now I am still in the high 30's but seeing that number motivates me. It gets me to want to make changes so that number changes, and so I will reach my goal.

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Julia
JuliaJulia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)
Brenda Bell
Brenda BellBrenda was diagnosed with high blood pressure, high cholesterol, and Type 2 diabetes in July 2002. After a rocky start, her diabetes has been diet-controlled since January 2004 and she hopes to keep it that way for as long as possible. (Read More)
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