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February 10th, 2012
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Since I missed this week's Diabetes Social Media Advocacy #dsma chat, I'm addressing this week's questions here. The topic was disclosure — who (and what institutions) do you let know you have diabetes, and who (or where) do you choose to keep in the dark.

 

1. To disclose or not disclose: do(es) your employer/school/friends know you have diabetes? Why or why not?

The company which employs me does not know that I have diabetes; several people at work (including my supervisors) do. There is neither place nor reason to mention diabetes (or any disability) on the job application — I believe it's actually illegal in the US to inquire before hiring — and since hiring/firing decisions are made at the store level, accommodations must be discussed and/or made at that level, rather than the corporate level.

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Today, the first Friday of February, is national "Wear Red" day in honor (or observance) of Women's Heart Health Awareness, as spearheaded by the "Go Red for Women" campaign. So of course I will be wearing red to work and I've been handing out Red Dress pins.

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Put aside the images of the Kingston Trio's Boston-area rewrite of "The Ship That Never Returned" and think instead of a group of riders, runners, walkers, or drivers following one after the other, or a flock of migratory birds, or any group trying to travel a significant distance, using the strongest to protect the weakest from wind and weather, each member of the group taking a turn at the front to allow the others to recover.

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[This post follows "A Day At the Races (I) — Before the Event", where I discussed some of the work that goes into setting up a fundraising walk, run, or ride.]

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Most of us who have been around the diabetes community, or any running, cycling, or charity-event community, have had the opportunity to participate in a large event — either as a participant or as a volunteer. Most volunteers come in the day of the event, check in participants or hand out food or beverages for a few hours, and go home. Participants sign up, solicit donations (if it's a charity event), show up, burn some calories, maybe eat some food, and go home. Very few of us get to see how much work, and how many people, it takes to put on an event. If you've ever wondered why the fundraising bar for charity cycling rides is set at $200, $500, $3000, or more... this is why.

 

Let's start at the beginning. Most of the real work of an event starts months before the day of the race, ride, or walk.

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The Other Half and I are spending the next week in Virginia Beach with his family. On Saturday, his old high school will be celebrating its 50-year anniversary, including a reunion for anyone who graduated from there before it moved to a new building. We drove down this past Saturday and will be driving up the Monday after the reunion, giving us a ten day period during a time of year when we aren't pressed to "make the rounds" from dawn to dusk, and two entire Sundays -- making it possible for me to join a local cycling shop for its weekly ride.

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Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
Julia
JuliaJulia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)
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