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December 2nd, 2008
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We found 10 result(s) that match your search "symlin":

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I'm officially off Symlin. I was on the fence for a while, but I'm definitely done with it. I have a brand-new Symlin pen with pen needle attached sitting in my purse waiting to be used. It's essentially wasted now. I'm OK with that. I don't like to waste money or stuff (I'm such a pack rat), so this is really a big step for me. You'll remember when I did pretty much the same thing toward the end of my Byetta run.

 

The two main reasons are this: I'm tired of the tummy trouble and I eat even when I'm not hungry. The last roughly month of not taking Symlin have been mostly tummy-trouble-free. And it's been a nice change of pace, frankly, to not be constantly wiped out from having diarrhea. Going shopping -- going anywhere, really -- was also taking a chance on having to find a bathroom in an emergency. With three kids in tow. And did I mention it's not fun to rush to a PUBLIC bathroom?

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I spoke with my pediatric endo today about my new diabetes community venture. First, I want to give a great big thank you and shout out to him. He is doing amazing things in the diabetes community. Thanks for being the best doc and putting up with me, Morey!

 

We talked about new treatment options that are coming into play. One of the ones we discussed is using the hormone amylin to control postprandial blood sugars. Amylin is a naturally occurring hormone produced by the beta cells (the ones that produce insulin). The body gives amylin with insulin when glucose is consumed. They have found that low levels of insulin are typically accompanied with low levels of amylin.

 

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Yesterday I revealed to the world that Symlin is giving me tummy trouble, to put it mildly. Just for grins, I got on the scale this morning and I'm down 4 lb. since the weekend. Most of this, we can assume, is, ahem, water weight (bwahahahaha!).
Yesterday was better than the day before, but today has been worse. I'm not nauseated and my appetite continues to diminish, but my tummy is making terrible gurggly noises and sending me to the potty more than I'd like. At least once today I thought about emailing Dr. C to tell him I can't handle it anymore and that this is no way to live or lose weight. (READ MORE)


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This morning was the first in the roughly two weeks that we've been in our new house that I actually had time to sit down at the kitchen table to eat a bowl of oatmeal instead of quickly slapping some cream cheese on a bagel and scarfing it down in the car during my one-hour commute. Let me tell you, bolusing while driving is not easy.


 

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It's ironic that even the most obscure things we hope for can come true. I can't tell you how many times I've thought to myself how much easier it would be to lose weight (or manage my blood sugar) if I could just completely lose the desire to eat or if I could feel just a bit queesy all the time to discourage my mindless eating habits.
In contrast, I can't tell you how many times yesterday I said, "I'm not taking that damn medicine anymore." (READ MORE)


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There was fog when I walked from the parking lot to my office. I thought it was the bright sunshine. Or the warmer temperatures. Or the jacket I was wearing that was making me feel so warm.
I was disconnected, but thought it was from the conversation I had just had with The Mr.
I wanted junk food. Something smooth like chocolate, but not crunchy like cookies. I walked to the vending machine and gently fed it money until it dropped a Milky Way.
Walking up the stairs there was more fog. I thought I was tired, overwhelmed with life issues. I briefly sat at my desk, logged in to my email account. Symlin rushed me to the bathroom, where I lingered longer than usual. Fog.
Washing my hands, I looked in the mirror and it was almost as if I were watching myself on TV. Like I wasn't really there. There was a narrowness to my vision. (READ MORE)


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Nausea? Check.
Potty problems? Check.
Lack of appetite? Check.
Feeling full? Check.
Happy with Symlin? Check.
I know, you think I'm crazy, but really I'm not. Promise.
This morning I clicked up to the highest Symlin dose--60 mcg. And by lunch you know where I was. But, at least that aspect is subsiding some. I'm starting to realize more consistently what I really wanted from Symlin: the effects on my appetite and desire to eat.
Most mornings it's a struggle to choke down my oatmeal breakfast. And even more of a struggle to convince myself to have a snack mid-morning. Sounds miserable, you say? But this is a drastic change in my habits pre-Symlin. Lunches and dinners I'm seeing similar benefits, namely eating much, much smaller portions and not snacking before bed. Oh, get this: The Mr. suggested we go to Dairy Queen last night for some ice cream and I was nauseous just thinking about it. (READ MORE)


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My latest A1c was 7.3. I'm feeling very neutral about it. It's neither high nor low to me. My goal is still 6.5, so the disappointment of being so far off from that is bothering me. But overall, I know that 7.3 is still down from where it was before (7.6) and in a moderately good range for me.

 

I know that getting below 7 is one of the hardest things to do, if not the hardest, so I can't be too hard on myself. It's very frustrating though that it is so hard to get there. Why can't this be a little easier? Or why can't I be a little better at getting things right? I know that I don't do everything right (I'm human!), but I also know that my slip-ups are exactly why my A1c is 7.3.

 

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A friend of mine has just found a new endo and is loving it. I'm very excited for her because I know how much trouble she went through with her last endo. I remember telling her the difference between her reluctant-to-listen-to-the-patient doctor and Dr. C: "After having never spoken to Dr. C about Symlin before, I came into his office for a regular check up, said I wanted to try Symlin and 15 minutes later the nurse was hooking me up with a sample pen."

While I had a lot of freedom when I spoke with Dr. C, I have often wondered how much latitude he gave me because he knew how involved I am in the diabetes community, knew that I was up on the latest information and technology, and was proactive. I was sad to leave him behind. (Maybe there's a little too much ego there, but I really got very little resistance from Dr. C about anything.)

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I know I said I enjoy educating folks about diabetes, but I think I might keep my stinking mouth shut from now on.

 

The scene was a birthday party. I skipped my Symlin for the dinner portion because I didn't want to sneak away to inject. Looking at my plate of hamburger, baked beans and potato salad, I took my pump off my belt, SWAG bolused and went about the rest of my meal. No one seemed to notice my pump; if they did, they didn't say anything.

 

After presents it was, naturally, cake time. Ice cream cake to be exact. The Mr. and our friend A. cut while I helped distribute. When we got around to asking G. how big of a slice he wanted, his wife answered, "Just a little one. He's diabetic, that's why." Apparently, her comments got lost in the noise, because she repeated herself.

 

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Kerri Morrone
Kerri Morrone, diagnosed with type 1 diabetes when she was six years old, doesn't let diabetes define her. It just helps explain some things.
Creator of the diabetes blog Six Until Me and an editor for dLife, Kerri is an awareness advocate and an active member of the diabetes community. She'd also like a kitten. (Read More)


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