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September 6th, 2008
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When Olivia was first diagnosed, I was told to check her four times a day. That didn't seem very often, but for the first 6 months or so, that's what I did. She was not quite 3 at diagnosis, so she was still going to bed quite early; probably around 7 p.m.. She'd get up at 7 or 8 in the morning. That was 12 hours without a blood sugar check. The thought of doing that now makes my skin crawl.
I started doing overnight checks for two reasons: She'd come to me in the middle of the night, complaining of not feeling well. She was invariably low. Or, when she'd wake up in the morning and would have wet her bed. I knew that she'd been high during the night. I decided to start doing a blood sugar check around midnight. I'd correct if she was over 200 or below 80. Her morning numbers improved immediately. (READ MORE)


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Oh, diabetes. You're so predictably unpredictable. I see what you're doing. You're just hysterical, aren't you? We're expecting high blood sugars after the site change, so you decide to go low all night. Whoa! Caught us off balance there, didn't ya? Zany diabetes up to his usual hijinks! You're so unoriginal. Why not grow a mullet and dance the Macarena while you're at it. Pathetic.
Here's a recap of last night.
8 pm - Charlie is 343 and not coming down after being high all afternoon. We decide a site change is in order. Charlie is unusually good during the site change. Why? He negotiated a $10 Lego toy if he didn't behave like a crocodile. (READ MORE)


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Which would you like to hear first? I guess I'll start with the bad news and get my whining out of the way first. The scale is up this week. Granted it's only half a pound, but the frustrating part is I have been working so hard at this. I've been following Weight Watchers faithfully since Thanksgiving and I've only lost about 2 and a half pounds. What's worse is I'm starting to begrudge people at the meeting who lose more than that each week. Selfish, isn't it?
In reviewing my diet, exercise and lifestyle, I'm even more annoyed because I'm eating less food (and healthier food, at that), exercising more, drinking water and even getting more sleep than I had been. But I'm still not losing. What do I need to do? I'm open to all suggestions, except "be patient." I don't do well with patience. (READ MORE)


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Which would you like to hear first? I guess I'll start with the bad news and get my whining out of the way first. The scale is up this week. Granted it's only half a pound, but the frustrating part is I have been working so hard at this. I've been following Weight Watchers faithfully since Thanksgiving and I've only lost about 2 and a half pounds. What's worse is I'm starting to begrudge people at the meeting who lose more than that each week. Selfish, isn't it?
In reviewing my diet, exercise and lifestyle, I'm even more annoyed because I'm eating less food (and healthier food, at that), exercising more, drinking water and even getting more sleep than I had been. But I'm still not losing. What do I need to do? I'm open to all suggestions, except "be patient." I don't do well with patience. (READ MORE)


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Which would you like to hear first? I guess I'll start with the bad news and get my whining out of the way first. The scale is up this week. Granted it's only half a pound, but the frustrating part is I have been working so hard at this. I've been following Weight Watchers faithfully since Thanksgiving and I've only lost about 2 and a half pounds. What's worse is I'm starting to begrudge people at the meeting who lose more than that each week. Selfish, isn't it?
In reviewing my diet, exercise and lifestyle, I'm even more annoyed because I'm eating less food (and healthier food, at that), exercising more, drinking water and even getting more sleep than I had been. But I'm still not losing. What do I need to do? I'm open to all suggestions, except "be patient." I don't do well with patience. (READ MORE)


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His knees are bent.

 

Like a frog.

 

His nostril whistles.

 

He sleeps peacefully.

 

He's 56.

 

"Charlie," I whisper into the dead of night, giving him a slight nudge.

 

The ceiling fan hums.

 

"Charlie, you're low. Have some juice."

 

"Charlie!"

 

So many nights I've whispered these words into his sleeping ears. So many nights for four-and-a-half years. So many nights Susanne has. So many nights other moms and dads around the world whisper the very same words to their children in the darkness. We need a cure.

 

He keeps his eyes closed.

 

He just nods and opens his mouth when he feels the straw poking at his lips.

(READ MORE)


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I was just sitting at my desk working on an extremely important project (FDL standings) when a co-worker stopped in his tracks as he walked by my desk, squinting into my eyes.
"Whoa! What happened to you?"
"Huh?"
"Did you get beat up?"
"What? No." I didn't know what the hell he was talking about.
"The purple under your eyes. Looks like you got beat up," he continued.
"Oh, that?" I said, touching the corner of my eye near the bridge of my nose. "No, that's just lack of sleep, I guess. That's what getting up every night at two or three in the morning will do to you." (READ MORE)


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I have vivid dreams. When I close my eyes at night, a whole new world appears, in living color. My dreams hold smells and sounds and sights that often rival the sensory reality of my waking life. There have been times when I could swear I've seen people, had conversations, and done things in real life, when these memories were simply creations of my sleeping mind. I know that I talk, run, laugh, and cry while I sleep; something that makes sharing a bed with me a real challenge. I suppose that the vividness of my dreams might be a reflection of the constant activity in my brain. (READ MORE)


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I happened to mention to my pump rep, B., one day on the phone that I needed to check my overnight basals, but that getting up several times a night just didn't seem all that appealing.
"Well, do you want to do something fun?" he asked.
"Um," I chuckled, "sure."
"I know... you're thinking how can we talk about fun and diabetes at the same time, right?"
He read my mind. Turns out he had a loaner CGMS sensor that he could let me use for a few days. That would allow me to get a feel for the system, give me some real-time data--including overnight!--and perhaps even offer fuel to our push to get my insurance company to approve the sensors.
When B. showed up in my office this morning to give me a little training and insert the device, I was ready to go. "Where do we put it? What do I do?" I may have overwhelmed him with my questions. The light on the sensor made me feel so...connected. (READ MORE)


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Sometimes my life gets in the way of this blog.  Things have been crazy-busy around here for the last month.  We've moved again and it's been nuts trying to get that accomplished with two toddlers underfoot.

 

Olivia went to camp again this year and had a great time.  She seems to have made even more friends this year and spends a lot of time on the phone and the computer, chatting with them.  I'm thrilled to see her forming such great bonds with these other girls.  It's just too bad that most of them don't live closer.  

 

While she was at camp, Olivia's blood sugars kept dropping very low.  I'm sure it was all the extra activity, but at one point, they had a 3 hour overnight basal set to zero.  That's NEVER happened at home.   She's gradually gone back to needing more insulin, especially overnight, but her needs do seem to have dropped a tiny bit. 

 

(READ MORE)


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Carey Potash
Carey is a full-time hater of diabetes. The benefits stink. His 6-year-old son, Charlie, was diagnosed with type 1 diabetes when he was 22 months old. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)

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