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December 1st, 2008
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Today is the day for the letter "B."
Future posts featuring letters of the alphabet are forthcoming. Thanks to a suggestion from a comment on my previous post, I'm asking you, the reader, to help me decide what C, D, E, etc. will stand for. What would you like to read about?
There are so many Bs in the life of a pumping diabetic. B for blood sugar, bolus, basal. Today, though, B is for Basketcase. Did you ever have a blood sugar reading that left you emotional? A reading that left you confused? Afraid? Lost? A reading that left you feeling like a total basketcase? I'm sure you've gathered by now that I have. (READ MORE)


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It's been awhile. The whirlwind that is life took over for a spell. To avoid another takeover, I'm committing to twenty-six letters. A through Z. One letter at least every other day - each representing a word that relates to living with diabetes or being touched by diabetes.
You might think that A, naturally, would be A1C. You know? That number that supposedly gives you an idea of you how you're managing. But A won't be A1C today. Because, although I believe it's important to know your A1C and keep your number in order, there is, I believe, a more important A. And that's accountability.
Sometimes diabetes throws a curve-ball. Sometimes, it seems, no matter what we do, our blood sugar has a mind of its own. It swoops or peaks for no apparent reason. (READ MORE)


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Dear Santa Baby,
Ok, maybe I'm not on your list of good persons with diabetes this year, but surely I'm not on the naughty PWD list either! My A1C has stayed in the 5's all year. I had a baby WITHOUT macrosomia. So I think I can ask for a few items your elves might be able to whip up, if not for this year, surely in time for next year's yule. (READ MORE)


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So Valentine's Day came and went. You may have heard. Maybe you saw the musical balloons the size of inflatable boats dangling from the supermarket checkout lanes that played "Truly" by Lionel Richie when you lightly tapped them.
My belated apologies to the Genuardi's store manager if you're reading this. It was me. I was the guy who sprinted angrily from balloon to balloon - punching each one and setting off the simultaneous symphony of Lionel Richie before running out of the store screaming "F love!"
In retrospect, maybe I was just mad that they were all out of "I love you even though you're diabetic" cards. (READ MORE)


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Or; People Aren't As Bad As I Sometimes Think They Are.

My Dear Santa letter the other day was my usual somewhat sarcastic offering, something I tossed off as I was perusing the Salter scale website and lusting after that sweet, sex-ay model they have. I threw in the other two items to make up a list.

Someone on the TuDiabetes site saw it, though, and asked if she could buy the pump skins for Olivia. I was slightly embarrassed, hoping that no one mistook my usual snark-fest as actual requests for gifts. When she assured me that was not the case, that she just wanted to do something nice because "it's hard enough being a teenager with diabetes," I said yes.

The skins arrived today and Olivia wasted no time in having me apply one of them. The tie dyed one. It was, in her words "Sweet!" Which made me laugh.

It was a very nice early Christmas present. And she will be sending off a thank you email tonight.
(READ MORE)


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Or; People Aren't As Bad As I Sometimes Think They Are.

My Dear Santa letter the other day was my usual somewhat sarcastic offering, something I tossed off as I was perusing the Salter scale website and lusting after that sweet, sex-ay model they have. I threw in the other two items to make up a list.

Someone on the TuDiabetes site saw it, though, and asked if she could buy the pump skins for Olivia. I was slightly embarrassed, hoping that no one mistook my usual snark-fest as actual requests for gifts. When she assured me that was not the case, that she just wanted to do something nice because "it's hard enough being a teenager with diabetes," I said yes.

The skins arrived today and Olivia wasted no time in having me apply one of them. The tie dyed one. It was, in her words "Sweet!" Which made me laugh.

It was a very nice early Christmas present. And she will be sending off a thank you email tonight.
(READ MORE)


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I finally got a letter from Olivia today - she comes home on Thursday.  It never fails to amaze me how long it takes a letter to go roughly 45 miles.  I wrote to her on Friday - I'm hoping she got that one, but I have my doubts. 

 

She misses us (awwww) and has been running low a lot while there.  They even had to give her mini-glucagon doses a couple of days because they couldn't get her to stay above 50.  Scary.  She must be more active than last year because last year, she ran high, high, high, pretty much the entire time she was there.  She seemed to think it was pretty funny to be low all the time.  Me, not so much.  Her big comment?  "My a1c is going to be PERFECT next doctor's visit."  Eh, yeah.  Only, maybe lets go about it some other way than sitting at 36 for a couple of hours, m'kay?

 

(READ MORE)


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When you see the check-mark-y swoosh, you think Nike, right? An apple gets you the computer company, golden arches make you think of cheesburgers, a peacock will have you thinking Must See TV, a red cross... you get the picture.

 

And when it comes to health there are several very recognizable symbols of support, perhaps the most popular is the pink ribbon for breast cancer. I was doing some research today on breast cancer and realized that the pink ribbon is quite possibly the only symbol synonymous with only one health condition. Even the red ribbon went from AIDS to a host of other causes.

 

You see a pink ribbon you instantly think breast cancer; you see a red, green or yellow ribbon and you have to do some thinking or asking. While many diabetes organizations and associations have their own symbols, there is not one that is universal for diabetes.

 

(READ MORE)


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I debated where to wear Toohey today: in my pocket (out of sight) or on my belt as I always do. Prior to this morning, I had been to my new office three times: twice for interviews and once to sign my offer letter.* All three times Toohey was tucked neatly in my pocket, no tubing was visible, I was a normal-looking person.

 

So I debated for several days and ultimately decided not to hide, to wear Toohey on my belt as always, to be myself. I decided though to not come out and say "Hey, I have diabetes" on my first day. I just wanted it to flow, to just happen naturally. I really thought I would have had some questions since Toohey was so visible.

 

(READ MORE)


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Our team, Charlie's Angels, has been raising money for the Juvenile Diabetes Research Foundation since 2003 – the year Charlie was diagnosed.

 

For the first few years, we sent out our fundraising letter to friends, family and co-workers and did remarkably well. Last year, however, I started to feel uncomfortable asking the same people to give so generously yet again. I felt like they were investors in a cure that I was falsely promising. A cure that was "closer than ever" or "within reach" or "right around the corner." To be honest, I really don't know how close we are to a cure. But, what else can I do? I can't cure Charlie. I can only raise money and give it to the people who say they possibly can. I'll sell it like a snake oil salesman if I must.

 

(READ MORE)


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Julia
Julia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)

Latest Posts: Random Stuff | Insurance-less | Freakin' Health Insurance

Rebecca Abma
What happens when a health writer develops a chronic illness? As Rebecca K. Abma can tell you, it turns into an obsession. Since being diagnosed with type 2 diabetes in December 2003, 90 percent of her non-work computer time is spent researching the disease and chatting with fellow diabetics. (Read More)

Latest Posts: Mail Order Madness | Dreaming of Diabetes | Superstitious

Our Other Bloggers: Lindsey Guerin, Carey Potash, George Simmons, Michelle Kowalski, Nicole Purcell, Kim Doty, Kerri Morrone, Andy Bell, Scott Marvel
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