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People with diabetes, and those touched by diabetes, follow their journey with the disease through a myriad of winding emotional paths. Depression is very common for those newly diagnosed, sadness can rear its head at different stages in the game, and a little humor and humility can even find the door to expose itself from time to time. The keys for controlling those doors are littered all over the place and on
W
rld Diabetes Day today, you can follow this map of internet hotspots. Expose diabetes for all that it is, good and bad, and then share it with others. Find an emotion and embrace it!
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Sometimes I am shocked at how invisible diabetes can be. I was having practice at church the other night for the contemporary band when my Bass player asked us to pray for him.
"Of course! What is going on?"
He explains to me that he is having surgery on his eye to drain fluid in it and would just like us to keep him in our prayers. He started telling us about how he had this same surgery on his other eye and that it worked really well so he his hopeful that this surgery will be another success. I asked him what causes
the problem he is having.
"Diabetes."
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You may remember Richard Jewell, wrongfully accused of the '96 Atlanta Olympics bombing and basically convicted by the media for some time before Eric Rudolph was accused.
He has died at 44.
Jewell was diagnosed
earlier this year with diabetes, already had had toes amputated and was on dialysis. Given his age, I assume it was a Type 2 diagnosis. How bad did it have to be to have already lost toes to this disease? And then to die the same year as diagnosis? I am his age and reading this first thing today really brought home the seriousness of my condition.
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I have not been compliant with my diabetes protocol for several months. I haven't been testing, I haven't been watching what I eat or exercising. I've even been eating straight carb snacks - when I'm supposed to "never eat carbs alone! "
I can "get away" with this once in a while because I'm early in Type 2. But today I read a story that pulled me up short.
People with diabetes are 15 times more likely to have a lower limb amputation than those without the disease. Yes, FIFTEEN times more likely. And then, 70% of the people who have amputations are dead within 5 years.
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Having played roller hockey for many years now, I have acquired a lot of hours on my inline hockey skates. Well, after two rink closures this past year, I have had some gaps in my playing time.
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In two weeks I have my next endo appointment scheduled and I am already nervous.
I am eating like it is going out of style and my increase of mass is proof positive! At work I am constantly munching on anything I can get my hands on and continue with it when I get home! I feel like I will never get back on track with Weight Watchers. I feel so far gone.
And because of all the poor food choices my blood sugars have paid the price. I keep running high all day to only crash in the middle of the night. I feel out of wack and completely out of control.
So now I have to face the music with my endocrinologist and frankly I don’t want to.
I want to ditch.
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I spend a lot of time thinking about if I will ever have
complications from my diabetes. The very thought of diabetes problems scares the crap out of me. My determination to ward of complications has a direct correlation with how I control my sugars on a daily basis. In other words, every time I treat a low or a high, thoughts of amputations or blindness are running through my head. Those fears are some BIG MOTIVATORS. I don't want to come across as the guy who just sits around and waits for something bad to happen. I am not the type of person who just mopes around hopelessly or just sits around thinking of nothing else but diabetes issues. I try to stay positive most of the time. My glass is usually "half full" rarely "half empty."
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12.5? 10.0? 7.8? 8.2?
That is what my last four hemoglobin A1c tests have been. I just got
the results for my latest blood work this week.
When my nurse gave me the results I was not surprised. My carb intake has been a lot more then usual and my blood sugars have been high often. Since I switched to the Weight Watchers Core Plan like
so many of you suggested, my BG has been very good this week. I am hopeful that I can get that A1c down next time. But are those numbers bad?
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I was 17 years old when I was diagnosed with diabetes. My breakfast at the time consisted of a donut and a soda. I usually skipped lunch or just grabbed some chips and another soda. Dinner was whatever fast food my friends and I could afford which pretty much meant anywhere with a dollar menu of some sort.
Diabetes threw a major wrench in my teenage life. It was my senior year and I was drum major of our marching band and now this! My life was crazy enough. How could I
handle this?
I did what so many people do, I
ignored it. I should say that I did not completely ignore my diabetes. The "D" does not really let us type 1's do that for too long. I always took my insulin and stayed away from sugar but that was about it. I rarely checked my blood glucose level.
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My son came to me the other night and asked if he could ask me some questions about diabetes. One thing I never do is turn away an opportunity to talk to my kids about diabetes. I want them to understand, as much as they can, about what diabetes is.
Maybe this is not true for other people with diabetes but a part of me is waiting for this disease to go after my kids. I am guessing that it's normal to not want your kids to deal with what you have to but sometimes I worry that I worry too much!
When I asked what brought on this interview he explained to me that it was for a paper he is working on for school. And with that the interview began.
He asked me to tell him all about diabetes to which I responded with something like, "We do not have enough time for that dude. Tell me what you know and I will fill in and add from there."
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