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What an awesome, great, fabulous, wonderful time I had this weekend in St. Louis, MO. I attended a family retreat put on by the Juvenile Diabetes Research Foundation. The event offered people associated with our disease MANY opportunities. There were tons of kids, parents, and loads of helpful information. If you are someone who has diabetes or someone who has a relationship with a person with diabetes then I would highly recommend becoming a part of your local JDRF chapter if you have not already. There are literally hundreds of them around the globe and the nation and you will get everything you need from them.
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Since yesterday, I’ve been working on fundraising and getting tickets for the JDRF Promise Ball coming up in the next few weeks. So far I have raised $2000 (or 4 tickets). I’m so excited! Not only have I raised money for a charity that means the world to me, but I’m getting dressed up and meeting dozens of new people that have been through everything I’ve been through.

 

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I was talking recently with a friend of ours whose twelve year old daughter was just diagnosed with type 1. As much as I love my friend, her attitude toward her daughter and her daughter's diabetes scared me a little. She uses the phrase "It's that simple," quite a bit. For example, she recently informed me that she told her daughter 'Sit your butt in the chair and test your bloodsugar. You have to do it - it's that simple.' She continued by telling me that crying about diabetes is not tolerated in her house. (READ MORE)

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My son came to me the other night and asked if he could ask me some questions about diabetes. One thing I never do is turn away an opportunity to talk to my kids about diabetes. I want them to understand, as much as they can, about what diabetes is.
Maybe this is not true for other people with diabetes but a part of me is waiting for this disease to go after my kids. I am guessing that it's normal to not want your kids to deal with what you have to but sometimes I worry that I worry too much!
When I asked what brought on this interview he explained to me that it was for a paper he is working on for school. And with that the interview began.
He asked me to tell him all about diabetes to which I responded with something like, "We do not have enough time for that dude. Tell me what you know and I will fill in and add from there." (READ MORE)

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Last week when I suggested that the diabetes community design an awareness symbol akin to the breast cancer campaign's pink ribbon, I apparently hit a nerve with someone.

Nordtorp says he's not into the secret handshake thing and that ribbons and pins don’t make a difference. He doesn't think that wearing a trinket will cause more money to be funnelled into diabetes research.

I have to say that I whole-heartedly disagree. If someone asked you what are the major illnesses -- chronic or otherwise -- that affect the U.S. population, would the common person identify diabetes as one of them? Without a connection to diabetes, I doubt it. Does the common person even really understand what diabetes is? Not many.

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I have officially started my new job and I am excited about the potential that lies ahead. For a while now I have been chasing after the opportunity to work for this company and I'm at a point where I feel comfortable sharing more about it. While I am employed full time with my new job I will also continue to do some personal training and be a blogger for dlife. So anyway, enough of the dancing around,I am now a full-time employee of the Juvenile Diabetes Research Foundation (JDRF) and I am really happy about it.
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This year’s JDRF annual conference has asked those involved with JDRF to compose a “Commitment to a Cure” piece. They will be using these commitment items to display on the Commitment Wall in hopes of increasing interest, passion and the volume of responses at the conference. 

 

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I knew I was getting close to the banquet room for the JDRF annual meeting when I spotted a used ACCU-CHEK test strip on the carpet like a breadcrumb in the forest.

 

I was reluctant to go; reluctant to make the commitment. As it is, there are not enough hours in the day.

 

Walking through the doors was sort of surreal. It was like a plumbers' convention. Only they weren't plumbers. I snaked my way around the room looking for a place to sit, taking in the throng of diabetes chatter as the people talked shop.

 

Snippets of conversations zipped into my ears and blended into others.

 

"So I says, honey, you got to get a freakin' pump!" coming from one table.

 

"You get ketones?" from another table.

 

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Many of you have read about my opportunity coming up to speak at a JDRF family retreat in St. Louis. I am stoked to be going and to be a part of the whole AMAZING experience. It's like the diabetic version of the prom for kids and adults. I'm getting really excited and I recently learned of some new information regarding the event. Not only will I be speaking to the parents of these children, in a breakout session for exercise and diabetes, but now I will also be speaking to a large group (approximately 100) of kids with diabetes ages 8-12!

Look out kiddos, here I COME!! (I'm thinking about having them do a short unexpected workout with me??)
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Our team, Charlie's Angels, has been raising money for the Juvenile Diabetes Research Foundation since 2003 – the year Charlie was diagnosed.

 

For the first few years, we sent out our fundraising letter to friends, family and co-workers and did remarkably well. Last year, however, I started to feel uncomfortable asking the same people to give so generously yet again. I felt like they were investors in a cure that I was falsely promising. A cure that was "closer than ever" or "within reach" or "right around the corner." To be honest, I really don't know how close we are to a cure. But, what else can I do? I can't cure Charlie. I can only raise money and give it to the people who say they possibly can. I'll sell it like a snake oil salesman if I must.

 

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