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Okay, I will warn you up front that this post is a total rant and has no other substance besides the fact that I need to let off some steam. I am also looking for some of you who have dealt with this annoying stereotype.
As I was minding my own business here at my desk the janitor comes up to me and asks me if I have to take shots everyday. I realize that he was listening to a conversation I was having with a co-worker about insulin and so on. A total eavesdropping moment right? So I answer, "nope." And totally leave it at that.
He says, "Oh you got off of insulin. That's good. Just a diet now or pills?"
"No I have an insulin pump."
"There is a gal in another office I clean that has to shoot up every day." Then he does it. He does this sort of motion with his right hand towards his left upturned arm. As if he is shooting up heroin or something right into his vein!
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I have yet to really "weigh-in" or write a specific blog on a topic that is regularly discussed among people with diabetes. This is something diabetics deal with on a daily basis. For lack of a better word, I am talking about ignorance. Basically, as diabetics we talk with people everyday who lack a BASIC understanding of what exactly diabetes is. Heck, even I, will be the first to admit to you that I couldn't tell you EXACTLY what it is. I don't know all the medical terminology or the exact biological process that I went through as I was becoming diabetic. NOR DO I EXPECT everyone else too. I am not saying that it's wrong that people don't understand what diabetes is, but what I am saying, is that if you don't know what a "low" is or what "insulin" does, or what it basically means to be diabetic, 'please', at least speaking for MYSELF, 'don't act like you do'.
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This is all over the diabetes online community and may have already been posted about on here, but I'm going to chime in with my 2 cents.
Have you heard? Halle Berry has managed to
cure herself of type 1 diabetes and has beaten it down to type 2 and doesn't need insulin any more.
Isn't that a neat trick?
Perez Hilton even has something on it. You know the diabetes online community is really up in arms if it's being reported on
Perez Hilton!
It's been talked almost to death, but I don't understand what Halle Berry's problem is with having diabetes. If she has type 1, is she ashamed of that? If it's type 2, shouldn't she be out there saying "Look! It's not a fat disease! Thin people who eat well and exercise a lot can also get type 2!
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World Diabetes Day (WDD) was designated by the UN and is led by the
International Diabetes Federation (IDF). This is the first such day observed by the UN. The federation hosts a
Diabetes Atlas that is full of interesting and sometimes astounding information. I'm not going to recap it all here, but suffice it to say I am very lucky to have type 2 in the United States as opposed to most other countries in the world. A type 1 diagnosis is still a death sentence for many people in sub-Saharan Africa and other poor regions of the world. And this is 86 years after the discovery of insulin.
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Congratulations to Halle Berry on the
birth of her healthy baby girl on Sunday! The height and weight were not divulged, so let's all hope the baby doesn't suffer from
macrosomia, a common complication for women with diabetes. Regardless of Halle's ignorance about her diabetes, the healthy arrival of a baby is ALWAYS news to celebrate!
A
conference this week in Washington is focusing on the subtypes of both type 1 and type 2 diabetes. At least 16 different genes can impact type 2 cases, and 14 genes can be involved in type 1. One of the goals of the conference is to increase awareness of the many possible forms of the disease beyond type 1 and type 2.
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Today is
Raise Your Voice For Diabetes day. So here I am, raising my voice.
Why should I? It's hard, getting the word out about diabetes. But that's why I do it.
I do it to combat the rampant ignorance about this disease.
I do it to do my part to set straight the massive amount of misinformation that's out there about diabetes, type 1 and type 2.
I do it because I want my daughter to feel comfortable advocating for herself one day and the only way she can do that is to see me, advocating for her.
I do it because her father would prefer to ignore her diabetes, feels ashamed that she has it and I don't want that shame rubbing off on her.
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I found this post recently in a diabetes forum.
Topic: Juvenile diabetes
A dear friend of mine has an 8 week old that was not thriving. She ruled out heart issues early on, but recently he became seriously ill. Upon further investigation, he was diagnosed as diabetic! Never heard of a baby with diabetes. His eight siblings are all fine. They have also tested for pancreatic insufficiency. He's just plain old diabetic. Thank goodness!
A supportive member of the forum responds:
Oh good grief! So young!
Eight siblings? Sorry, I left out one important detail. It's about a dog; an 8-week-old English Springer puppy.
I'll admit, this post was originally going to have a slightly sarcastic edge to it as it was triggered by recent
FDL entries of pet owners who compared their dog or cat's diabetes to human beings living with the disease.
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I went out to lunch with a group after church today. I have not been going to this church very long and this was my first time joining this group. I didn't know any of the people very well at all.
I had the 4 year old and the 6 month old along and they were keeping me hopping. (Actually just the 4 y.o.) We all perused the menu. It was a Mexican restaurant.
[I can hear the gasps from you now. Mexican food is very high carb, high fat and difficult to judge as far as blood sugars. It's also a big fat no-no for most diet plans.]
I made a not-wise selection but justified most of it by substituting whole black beans for the refried beans that came with the lunch special. Yes, the fiber would undo the 100 grams of carbs I was about to ingest. Then I tuned into the discussion across the table.
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Olivia hasn't had too many problems with her teachers over the years. Most have been very accepting of her diabetes and the care she needs to take with it while she's in class. I have a packet of stuff I give to all of her teachers at the beginning of each year and thus far, that seems to be sufficient.
This year, though, she got switched a couple of weeks into the school year. She got a new English teacher and I just assumed that the old one would pass along the diabetes info. Wrong.
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There's a time and place for every conversation. I know this sounds weird coming from the girl from the funeral family who routinely talks about all things death at the dinner table and who isn't squeamish about much. But seriously, there are some things I just don't want to focus on, say, during my annual well woman exam.
Maybe I was just set off a bit when E. gave me the diabetes look of pity when, in response to her asking how things were with my diabetes, I told her that I found out I am type 1 and not type 2. I think I zoned out right then as she began telling me her history with diabetes.
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