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Thursdays have become Racquetball night for me and my friends. As the four of us drove out to play all of my friends kept asking me what was wrong.
"Nothing. I am just thinking." I replied while staring out the window.
I was lost in thought all day after reading the article about the 11 year old girl who died. I wrote about it on my blog and went along with my day still keeping the article in my mind.
There is something that happens to me when I am in a car and I am not driving. I find that I become very reflective looking out the windows and seeing all the people driving by. I wonder what is going on in their lives. Are they in a happy place right now? What is their story? (READ MORE)

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Ring around a rosy, a pocket full of posies...

 

By the time we reach adulthood, most of us know that the seemingly-nonsensical nursery rhymes of youth were sharp political snipes and sarcastic observations at the time of their composition. We know, for example, that the "ring" or "rosy" was the distinct buboe of bubonic plague, that it was believed that carrying around fresh flowers would help ward off the Plague, that the belongings of a Plague victim would be burned to try to limit the spread of the disease, and that all too many people had succumbed -- and would succumb -- to its horrors.

 

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When I wake up and go downstairs I see an abandoned bowl of Cinnamon Toast Crunch and what looks like an explosion of medical supplies. Susanne is flicking a syringe when I enter the kitchen.

 

"It's the worst color I've ever seen," she says.

 

She's referring to the color chart on a canister of urinalysis strips.

 

The deep plum color of the strip that had been dipped in Charlie's pee shows the highest level of ketones - an acid that builds in the blood and spills into the urine.  When Charlie's body doesn't find glucose to convert to energy and when there's not enough insulin, his body begins breaking down fat for energy, creating a poison-like substance which, if left untreated, would kill him.

 

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I am not a religious person. I was raised a Quaker, which has directly influenced how I feel about religion. I understand people have faith, I respect it, I just don't.

 

But when I read about the family in WI who allowed their daughter to die due to untreated type 1 diabetes, preferring to pray for God to heal her instead, I was absolutely livid. How could you allow your child to stop talking and walking and just think that's ok? Just think that God will make it all better?

 

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A study published in the December edition of Diabetes Care magazine (an ADA publication) examined the links between diabetes, depression and mortality in older adults.
Not surprisingly, untreated depression led to a much higher death rate in 5 years than if there was depression intervention. Intervention was either an anti-depressant or psychotherapy.
It is difficult to take care of all the aspects of this disease on a good day, when you're depressed it's nearly impossible. How hard is it to go out for your daily walk when you just want to keep your head under the covers? (READ MORE)

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I had one of those moments today that reminded me what I enjoy most being a writer: It gives me access to things I would otherwise never experience. Today I got to sit in a room filled with diabetes experts--nurses, doctors, dietitians--you know, people with lots of letters after their names. I had no business being a part of their group, but as a writer who tends to focus on diabetes, I was invited in.
The seminar was on gestational diabetes and the treatment of pregnancy complicated by pre-existing diabetes. To many people, this may not sound very exciting, but to me, it was better than going to a rock concert (and don't get me wrong, I love music!). (READ MORE)

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As an informed person with diabetes and an active member of several online diabetes communities, it's important for me to "get out into the real world" and make connections with other people with diabetes and with people and associations whose purpose is to support us medically, psychologically, and socially. In addition to real-life meet-ups with members of my various diabetes online networks, I go to health fairs and community events to make contact, inquire about the state of diabetes-care support and diabetes advocacy programs, and have even given a presentation about how diabetes online communities positively effect the lives and health levels of people living with all types of diabetes. 

 

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Since I missed this week's Diabetes Social Media Advocacy #dsma chat, I'm addressing this week's questions here. The topic was disclosure — who (and what institutions) do you let know you have diabetes, and who (or where) do you choose to keep in the dark.

 

1. To disclose or not disclose: do(es) your employer/school/friends know you have diabetes? Why or why not?

The company which employs me does not know that I have diabetes; several people at work (including my supervisors) do. There is neither place nor reason to mention diabetes (or any disability) on the job application — I believe it's actually illegal in the US to inquire before hiring — and since hiring/firing decisions are made at the store level, accommodations must be discussed and/or made at that level, rather than the corporate level.

 

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This might be a little tough for me to write because, frankly, it was a little tough for me to hear. Especially coming from such a tough guy.

 

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