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May 27th, 2012
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If you weren't aware, Oprah did an entire episode today on diabetes. The silent killer, the demise of America. People are dropping like flies!!! Haven't you heard?

 

Okay, maybe I should give Ms. Oprah a little credit for putting this out there. It IS an epidemic. But she owes me a correction. Type 2 is an epidemic! Yes, more and more type 1s are popping up. For goodness sake, I know so many people who were diagnosed in the last 5 years...it's kind of insane. But type 1 is not the focus of Oprah's show.

 

Although she didn't exactly point that out. The show opens with diabetes being this silent killer, the demise of the population. She actually says that people are dropping like flies. Yep. Like flies. Dr. Oz helps her out with some tricky animation that shows insulin rejecting sugar and the pancreas secreting yellow goo and all sorts of lovely images.

 

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On Friday I had an appointment with my endocrinologist. I was looking forward to talking to him about some new ideas I had thought about especially Symilin.


When I told him he was very receptive to the idea of trying Symilin and thinks it may help with some weight loss.


"Most type 2's don't have a problem using Symilin. I have subscribed it often," the doctor said to me.


"Oh but I am a type 1," I tell him in the nicest voice I can muster since I know why he said what he did.


"Are you sure?"


"Yes I am just fat." I had this same discussion with his nurse the last time I was here and I thought then that at least it wasn't my actual doctor saying something so stupid.

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By now I am sure most of you have heard about the “breakthrough” discovery made regarding a possible cure for type 1.


When I saw the report on NBC nightly news I was floored. I sat in my chair staring in front of the TV. My son said, “that is cool huh dad?”


I just looked at him and said, “I guess it is.”


His weird look was probably a mirror of the weird look I felt I had on my face. How was I supposed to feel about this?

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I'll tell you another secret.  I kinda LIKE the Jonas Brothers. Laugh all you want since I am quite a couple decades away from their usual tween-aged fan base.  Disney signed them though, and from Annette Funnicello until Miley Cyrus and beyond, Disney has a proven eye for musical talent.  (Maybe not class, but definitely talent).

 

Nick is, at 15, the youngest brother of the singing group (they do have another even younger brother named Frankie - think Andy Gibb snubbed from the BeeGees for his youth).  As everyone with any connection to diabetes knows, Nick has had type 1 for almost 3 years.

 

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If you spend any time around the diabetes social media advocacy (#dsma) community on Twitter, you will see references to #unicorns in general, and "glitter-farting unicorns" (GFUs) in particular. The unicorns seem to have sprung fully-grown from Kerri's vision of cockeyed optimism, and it is said that their flatus can cure even the most stubborn case of type 1 diabetes.

 

Obviously, GFUs are part of the Diabetes Online Communitiy's myth and legend, and may even be responsible for Halle Berry's miraculous "recovery" (come on, can't you see her dressed in a skinsuit and narwhal-horn-shaped headdress?) Their pull is powerful, and talismanic unicorn mascots have been popping up all over the DOC.

 

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Type 1 isn't known as an adult disease. Until a few years ago, I didn't know anyone who called my diabetes Type 1 Diabetes. It was Juvenile Diabetes, Childhood Onset Diabetes... You get the gist. And when I was a child, I never thought about diabetes as something adults had in spite of the fact that I knew several Type 1 diabetic adults during my youth.
Anyhow, today, I was thinking, there should be some rules for being an adult with Type 1. Perhaps you'll think of some to add to the list I've come up with.
H is for How to be an adult with Type 1.
1. Test even though you're busy. Log even though you're busy. Bolus even though you're busy. Are you sensing a theme? As an adult, rule #1 is pay attention - even though you've got a lot of other things going on. It's a challenge, but diabetes needs to be a priority. (READ MORE)


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I must admit that when I went to bed Monday night I was a little nervous, a little anxious, a little excited about my endo appointment Tuesday morning. In fact, when my fasting was well above 200 on Tuesday I wondered if my nerves had anything to do with it. 

 

Tuesday's appointment was a follow up for labwork and an ultrasound on my thyroid that I had about 10 days ago. I was pretty sure the lab work (much of which was antibody tests to determine if I am truly type 1 or type 2) would show that I am type 1, but there was still a little part of me that doubted I was right.

 

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Development SquadHaving missed Saturday's road race, I was more determined than ever to not-miss Team Type 1 at Sunday's criterium. Since a criterium pretty much stays in one place (think of it as racing twenty times around the block to see who's fastest), even if I missed the start, I should manage to catch up with the team somewhere.

 

 

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Last week, Kelly at Diabetesaliciousness blogged and tweeted about diabetes misconceptions she'd like the folk at Mythbusters to debunk. This past Tuesday, the theme for the sixth annual D-Blog Day was "Six things you'd like people to know about diabetes". Around the blogosphere we saw everything from "Don't tell me I can/can't eat that" to "don't pity me" and, most of all, "Don't assume that my diabetes is the same as your [cat's, aunt's, grandmother's, BFF's ex-lover's second-cousin's mother-in-law's] diabetes". (READ MORE)


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I am a fan of Team Type 1. To be able to perform at top levels of competition despite a medical condition that can leave one droping with hyperglycemic fatigue one minute, and fighting for balance due to hypoglycemia the next, requires an incredible amount of attention, perserverence, and skill in addition to one's natural talents. Imagine doing this while traveling at 30 to 60 miles an hour, precariously perched on two continuously moving patches of less than one square inch apiece, all the while jockeying for position in a crowd of cyclists all trying to be first, or fastest -- or to keep everyone else from going fast -- and you have some idea of the challenging task these men and women have chosen.

 

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Scott Marvel
Scott MarvelScott lives an active life with type 1 diabetes. Aiming to stay on top of his unexpected diagnosis, he puts a strong foot forward to stay in control.
Living life in the sun and fulfilling his dreams, Scott tries to educate himself, and others, on the unquestionable possibilities of a life with type 1 diabetes.
(Read More)
Julia
JuliaJulia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)
Our Other Bloggers: Brenda Bell, Carey Potash, Lindsey Guerin, Nicole Purcell, Michelle Kowalski, MikeDurbin, Megan, Robert Hudson, George Simmons, Kim Doty, Kerri Sparling,