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I'll admit: I'm not the most regular contributor to the Diabetes Social Media (#dsma) Wednesday-night Twitter chats, and I don't always get the time to tune into the Thursday-night BlogTalkRadio program (or listen to the archive), but when Cherise announced the first DSMA Blog Carnival, I figured I really should chime in. The problem is the topic: "The Most Awesome Thing I've Done Despite Diabetes". I haven't done awesome things despite diabetes, but rather because of it.

 

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Diatribe recently ran an interview with the JDRF's new President and CEO Jeffrey Brewer.  In the interview, as do most new Presidents,  Mr. Brewer outlined his vision for the organization.  It includes "moving away from the over reliance on the cure as the central part of our message and funding" and a new focus on improvements in day to day living for people with type 1 and seeking means of prevention for those at risk for type 1. 

 

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Last night, I participated in #dsma, a Twitter event for the diabetes online community. It happens every Wednesday at 9pm EST. I've joined in a couple of times before, but never gotten into it like last night. I've been really focusing on Twitter the last few weeks and finding connections with the DOC.

 

#dsma is crazy. It's fast paced. That hour goes by like lightning as you're trying to read all the other tweets, submit your own, and truly make an impact with fellow D tweeters. It's insightful and it's thoughtful. For that hour, you are thinking about the diabetes community, how to connect, how to integrate different ideas, how things apply or don't apply.

 

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Diabetes gets old.

Pricking my finger, taking insulin, filling my pump, going to the doctors, counting carbs, and all the rest of the stuff we have to do to manage this stupid disease gets old. Fast!

So with that Diabetes Burnout happens.

I know for myself I get burned out every few months. I just get to that point where I want to give up and take a little vacation from it all. Not necessarily throwing in the towel or forgetting all about it, since we all know where that will lead, but maybe a few less tests or not worrying so much for a particular day.

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Although we have outfitted Charlie with the latest in diabetes gadgetry, outside the diabetes universe, I haven't exactly embraced technology.  Instead, I've given technology a rather limp handshake.

 

In recent years, technology has sort of left me in the dust. I find it all a little overwhelming.  My gadgets (television, DVD player, cell phone) tend to be at least three to five years behind the average consumer and I may have been the last human to join Facebook. I still have no clue what blue tooth means, but I plan to ask my dentist as soon as possible.

 

But today that changes. I have exciting news to share. I'm on the ground floor of something big. Way big! I've stumbled upon a thing called Twitter. I know, I know. It sounds like a game you'd find in Toys ‘R' Us.

 

Set the timer to 30 seconds.

 

Ready.

 

 Set.

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When I got home from work last night I found a large package sitting on my desk.

 

"Who's this from?" My son was the only one home and as usual he gave the answer most 15 year olds would give.

 

"I dunno."

 

I looked at the label and saw it came from Minimed, the makers of my insulin pump.

 

As of late I have been eyeing the very cool Lakers skin for my pump since the camouflage one came off but I never ordered it. Hmm. Maybe it's my next box of CGM sensors since I am almost done with those? Hmm. Maybe I should just open it and find out. Duh!

 

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Last week's #dsma (Diabetes Social Media Advocacy) twitter chat topic was the delivery of diabetes education, medication, supplies, and support to others -- both in the US (and other "First World" nations) and emerging ("Third World") nations. I've blogged before about the logistical and political issues organizations such as the International Diabetes Federation (IDF) and Doctors Without Borders (MSF -- Médecins Sans Frontières) have in delivering medical care and medications to those in need. But while we often talk as if everyone in the United States had fingertip access to smartphones (with unlimited data plans), cable TV, and the Internet, that certainly is not the case.

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Yesterday I wrote about how my endocrinologist assumed I was a type 2 simply because of my current weight.

Today I want to tell you why this is such a problem.

When I went in to see my doctor I wanted to talk to him about using Symilin in my diabetes regimen.

He agreed that it may help with postprandial spikes and possibly some weight loss.

(See yesterday's post for the play by play)

He had his nurse bring in a Symilin pen for me to take home and also gave me a prescription for some more pens.

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One of the advantages of modern technology is the ability to view remote events live; another is to discuss a presentation, while it is being presented, "in the back channel" — i.e., in a chat room or on Twitter. These technologies give many of us who could not otherwise attend a technical presentation the opportunity to attend virtually, and to participate. This past week has been chock full of such opportunities.

 

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