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February 10th, 2012
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Since I missed this week's Diabetes Social Media Advocacy #dsma chat, I'm addressing this week's questions here. The topic was disclosure — who (and what institutions) do you let know you have diabetes, and who (or where) do you choose to keep in the dark.

 

1. To disclose or not disclose: do(es) your employer/school/friends know you have diabetes? Why or why not?

The company which employs me does not know that I have diabetes; several people at work (including my supervisors) do. There is neither place nor reason to mention diabetes (or any disability) on the job application — I believe it's actually illegal in the US to inquire before hiring — and since hiring/firing decisions are made at the store level, accommodations must be discussed and/or made at that level, rather than the corporate level.

 

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I'm battling pretty severe nausea again this evening. I decided to stop the Metformin and just stay on the Wellbutrin until my body adjusted. But at this moment, I'm greatly reconsidering that decision and thinking that I might stop the Wellbutrin altogether. I'm not sure that it's the right choice for me or for the people who love me.

 

I didn't exactly plan to tell my mom this evening that I'd started the antidepressant, but it came up and I got exactly what I expected. A lot of shock and a lack of encouragement about being on them. She doesn't believe that my life is bad enough to warrant antidepressants (because in her mind, they are only to be used for extremely bad situations like the death of a child or a sick spouse or some other catastrophe).

 

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"The 'Diabetes Police' are everywhere, telling us what we may or may not eat or do, on pain of losing a leg, going blind, or -- G-d forbid -- dying like their father's great-aunt by marriage did thirty years ago."

 

  • --"They" tell us we may not eat breads and cakes
  • --"They" tell us we may not eat fruits or sweets
  • --"They" tell us we may not eat that nice, juicy bacon cheeseburger -- especially if it's accompanied by a plate of crispy French fries and a frosty tankard of microbrew ale
  • --"They" tell us we may not drink anything other than tap water, or black coffee sweetened with Splenda
  • --"They" tell us we must eat tons of cinnamon, bitter melon extract, and a myriad of other "cures du jour" that cure diabetes only in Halle Berry's pipe dreams

 

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Last week, Kelly at Diabetesaliciousness blogged and tweeted about diabetes misconceptions she'd like the folk at Mythbusters to debunk. This past Tuesday, the theme for the sixth annual D-Blog Day was "Six things you'd like people to know about diabetes". Around the blogosphere we saw everything from "Don't tell me I can/can't eat that" to "don't pity me" and, most of all, "Don't assume that my diabetes is the same as your [cat's, aunt's, grandmother's, BFF's ex-lover's second-cousin's mother-in-law's] diabetes". (READ MORE)


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Here are the six things I'd like people to know about diabetes. 

 

 

1) Yes, I know I'm not fat. When I tell you I have diabetes, I hope your first reaction won't be "But you're not that fat."  Fat does not equal diabetic. Diabetic does not equal fat.  I am already sensitive about my weight, the automatic association with diabetes increases that sensitivity. 

 

2) You don't not need to monitor my food, I will do that myself.   Please don't ask if I should be eating what I'm eating.  I am an adult.  Diabetes has no impact on my ability to make choices and handle the consequences of those choices.  And please, if I tell you yes I can have it, don't say something like "well, whatever you think is best" and then relate a story about how someone you know lost their eyes, their legs, or their kidneys because they ate brownies. 

 

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This is a breakdown of my first use of the Dexcom CGM. It's had its ups and downs, as you'll see. It's been peace of mind and obsession all in one. Mostly, it's been eye opening to what my diabetes is really like these days.

 

Day 1: I was really excited to start the first sensor. I went through all the setup process. I waited for the receiver to charge, downloaded the software, and prepped my skin for the sensor. The sensor comes with its very own insertion device. The insertion is nothing like the Minimed CGM that I used before. You see the needle in the device, just like you see the needle with the Minimed. However, this isn't a fast, hard insertion. It's up to your own fingers to stick the needle in. Surprisingly, past the initial sting of the needle, it really doesn't hurt at all. Much less than the Minimed for sure.

 

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I know I've written about this before, but it keeps coming up. So bear with me as I talk this out.

 

The last couple times I've gone to the endocrinologist the nurse takes my pump to download all the goods: insulin:carb ratio, basal rates, and the blood sugar readings from my Ultra Link meter that automatically enters my blood sugar into the log in my pump (man do I love that feature!).

 

So as the PA (who I'm growing to like) looks over my numbers she asks roughly what times of the day I have breakfast, lunch and dinner. She writes the times on the sheet and continues examining the numbers. 

 

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If I could control my blood sugar with my mind, I'd constantly be 85 or 100. Exactly. Not between, not a variable. Just 85 or 100. Why?

 

Because they are nice numbers. They aren't my favorites (my favorites are 7 and 14 which is quite odd considering what I'm about to explain). They are just good blood sugar numbers.

 

Because they end in 5 and 0.

Okay, maybe I'm a little OCD when it comes to numbers. For instance, the TV volume is always set on a 5 or a 0 in my house. If it HAS to be something else, then it needs to be an even number. Like 22. That's a nice number.

 

I don't think I do anything multiple times that involve fives or zeros. I don't wash my hands 5 times or count back to zero when I complete a sentence. My numerical OCD doesn't really infiltrate the non-diabetes part of me.

 

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Europe is absolutely amazing. I love the languages, the atmosphere, the weather. I find it enthralling that you walk everywhere. The open air markets are insane.  Everything is so perfect, so ancient, so human about this place.

 

Every time I turn around, we're learning something new about a culture, a language, or just this life in general. Yesterday, we toured a small town in Italy. It was perfectly picteresque. Today was Barcelona where you could buy exquisite chocolate creations in an open air market.

 

We still have four more stops here on the cruise plus the few days we've added to our trip for Italy. I'm totally excited about these next places. They are completely new and I have no idea what to expect.

 

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Things with Marvin have been rocky lately. I hate to even post that here for the world to see. It seems like I'm betraying what we have. So I'm not dwelling on that aspect here in this blog.

 

But there is an important health related topic in there that needs to be addressed. Because I know I'm not the only one going through these things. You see, when things get rocky, sometimes it's tough to know what's you and what's "health."

 

I've been struggling with my moods ever since I stopped taking the bio-identical progesterone last fall. Since I'm on oral contraceptives, it's gotten pretty routine that around day 12 to day 21 I'm bouncing all over the place. I can cry at the drop of a hat. I get testy and irritable.

 

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Julia
JuliaJulia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)
Carey Potash
Carey PotashCarey is a full-time hater of diabetes. The benefits stink. His 7-year-old son, Charlie, has been giving he and his wife the finger since November of 2003. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)
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