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September 5th, 2008
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Olivia asked me last night when she was going to have her next appointment at Joslin. I wasn't sure, but told her it should be coming up soon. (Must check into that, actually.) She said she wanted to ask the doctor something. When I asked her what she wanted to know, she said she wanted to talk about alternate site testing.

We've done this in the past, without much success. But looking at her fingers last night, I told her she really needed to try again. Her fingertips are mangled - they're covered with black dots and she said they really, really hurt.

Part of the problem is that she tests right on the pads of her fingers rather than on the sides. The endo has told her repeatedly to stop doing that, but Olivia doesn't listen. Now, though, she's having a lot of pain and she's going to have to do that.
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Olivia asked me last night when she was going to have her next appointment at Joslin. I wasn't sure, but told her it should be coming up soon. (Must check into that, actually.) She said she wanted to ask the doctor something. When I asked her what she wanted to know, she said she wanted to talk about alternate site testing.

We've done this in the past, without much success. But looking at her fingers last night, I told her she really needed to try again. Her fingertips are mangled - they're covered with black dots and she said they really, really hurt.

Part of the problem is that she tests right on the pads of her fingers rather than on the sides. The endo has told her repeatedly to stop doing that, but Olivia doesn't listen. Now, though, she's having a lot of pain and she's going to have to do that.
(READ MORE)


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Eat dinner no later than five pm and fast until seven am. Perform five blood sugar checks throughout the night. Fast until twelve pm, six pm or ten pm. Check your blood sugar every two hours. Does this sound familiar?
You guessed it. Basal tests. My least favorite thing about the pump.
I hate having to eat at a required time (and worrying about what I eat to make sure there isn't a huge delay). I hate having to check my blood sugar every two hours. I find it a little frightening to fast for that many hours at a time. Plus, I just hate fasting (I like to eat when I'm hungry). (READ MORE)


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Is it so much to ask for to want to wake up every hour from midnight to 7 am and take small drops of blood from my 5-year-old son all night long? I'm sure this is every dad's fantasy. Insane, the things I wish for now.
We have been trying to do overnight basal testing for Charlie now for thirteen days straight. We just can't do it. It's absolutely ridiculous. Every single night we're forced to abort our mission before we can even get started. What's most frustrating is that all we need as a prerequisite is to have him somewhere in the 120 to 220 area at about 9 pm-10 pm, when the dinner insulin has run its course. Amazingly, we can't do it. Night after night. (READ MORE)


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Creep into the room quietly. Like a shadow.
Place testing supplies down gently beside the bed.
Don't stir the child. Avoid strong lighting. Use only enough to see what you're doing. I recommend a candelabra.
Tell the person playing the spooky pipe organ music to knock it off. It's not helping.
Gently pry his warm, sweaty fingers from underneath his pillow like they're bones guarded by a sleeping bulldog.
Inspect his fingers like a bad poker hand and discard each one until you find one you can use. (READ MORE)


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Up and down. That's the way it's been lately. Numbers are up, numbers are down, nothing is making sense, patterns are confusing, emotions are frustrating. I've seen some wildly high numbers in the past week or two that are completely blowing my mind. Go to bed at 109 mg/dl, but wake up at 5 am in the 300's.
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"Yeah, I'll do it," Maeve said, quickly unzipping the black diabetes bag and removing the contents onto her lap.
"You sure?"
"Yeah."
She was a little too eager to get her hands on a sharp foreign object and take blood from her little brother. Maeve cracked open an alcohol wipe and rubbed Charlie's fingertip then loaded the meter with a test strip, deftly juggling the instruments. She had never done it before, but she's witnessed it , (one sec whilst I do a little math) , about 17,500 times. It's an unusual thing for an 8-year-old to do. Not your normal car trip activity such as I Spy or the license plate game.
"Just put the striped part into the ..."
"Uh huh. I know." (READ MORE)


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2007 is behind us now. It blurred by and stamped in key moments that will surely be remembered. My past year with diabetes stacks upon only a few others since I was diagnosed. 2008 will mark four years since that day in the hospital and it seems like I'm always learning something new. Each highlighted moment in this year taught me a little more about how I successfully live with diabetes. (READ MORE)


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Since becoming a "Weight Watcher," I have noticed the amount of stress in my life has increased. Having diabetes means I carry around a bunch of stuff with me where ever I go. I have my Glucose testing machine, strips, lancets, glucose tabs, and not to mention my carb counting book.
And now I have to add my Dining Out Guide which gives me the point values to restaurant food, my sliding scale for figuring point values, my tracker which I log my points in, and the Food Guide that has point values for all kinds of foods. So you see, I have more stuff to remember these days then I did before. (READ MORE)


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When Charlie started school, I just knew he'd provide me with plenty of material to blog about. Which is good, because we do have our dry spells when he's not doing anything particularly diabetish.
A good journalist goes out and gets the story even when there seemingly isn't one.
"Come on, Charlie, I've got a story to write! Do a little something diabetic for daddy for heaven's sake! Anything!"
"OK, here's the scene: You're blood sugar is pretty high. You're super mad at the world and you don't know why. Maybe you'd like to destroy something of emotional and monetary value? Mommy's English bone china tea cups perhaps? What? Did you hear that? I think the green cup just said you wear pink underpants." (READ MORE)


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Julia
Julia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)

Latest Posts: School, Again | Back To School | Fell Off The Face Of The Earth

Carey Potash
Carey is a full-time hater of diabetes. The benefits stink. His 6-year-old son, Charlie, was diagnosed with type 1 diabetes when he was 22 months old. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)

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