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February 9th, 2012
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Eat dinner no later than five pm and fast until seven am. Perform five blood sugar checks throughout the night. Fast until twelve pm, six pm or ten pm. Check your blood sugar every two hours. Does this sound familiar?
You guessed it. Basal tests. My least favorite thing about the pump.
I hate having to eat at a required time (and worrying about what I eat to make sure there isn't a huge delay). I hate having to check my blood sugar every two hours. I find it a little frightening to fast for that many hours at a time. Plus, I just hate fasting (I like to eat when I'm hungry). (READ MORE)


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In my last post, I wrote about fear.  Turned out, my roommate didn't even wait a week.  She left on Friday morning, in a torrent of weird and angry that I won't get into.  I spent the better part of Friday with bloodsugars through the roof.  This continued into the weekend a bit, until I finally got a handle on my own ball of emotions.

 

To add to the diabetes madness, my insurance company has decided to stop covering the Novolog insulin that has worked so well for me for so long.  Well, it's not that they won't cover it, exactly.  It's just that I'm now required to get a prior authorization and pay the third tier cost for the drug.  Clearly, taking on a place meant for two on my own has thrown enough of a wrench in my finances that an additional $75 per month in co-pays is not going to happen.  

 

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It's Spring break. The kids are home from school and the sun is shining (well, not really, but just go with it). Are you thinking what I'm thinking? Yeah, I know it's crazy, but hey, it's Spring Break. You're only young once. Let's get a little wild!

 

I'm talkin' one full week of all-inclusive, inverted, unadulterated, topless …

 

BASAL TESTING!

 

Woo-hoo! Par-tay!

 

How awesome is this gonna be? Charlie will get the full Spring Break experience. Unlimited Jell-O shots; binge testing; zany contests to see how long he can go without eating. It will be like being in Cabo San Lucas only from the comfort of our own home.

 

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Is it so much to ask for to want to wake up every hour from midnight to 7 am and take small drops of blood from my 5-year-old son all night long? I'm sure this is every dad's fantasy. Insane, the things I wish for now.
We have been trying to do overnight basal testing for Charlie now for thirteen days straight. We just can't do it. It's absolutely ridiculous. Every single night we're forced to abort our mission before we can even get started. What's most frustrating is that all we need as a prerequisite is to have him somewhere in the 120 to 220 area at about 9 pm-10 pm, when the dinner insulin has run its course. Amazingly, we can't do it. Night after night. (READ MORE)


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Sometimes, as strangers walk by, you hear just a word or two that raises your antenna. When I commuted to New York City for a short time, I collected these words as people darted passed me on crowded streets. I jotted down what I heard in a journal, wondering how bits of random people’s conversations would sound if merged together. It was sort of interesting.

 

It may have been something like:

 

Chicago at 4:20. I'm going to get a second opinion. That bitch betta not be there. God bless.

 

At the ice skating rink on Saturday, I was taking off Ben’s skates when two lanky teenage boys and two girls walked by.

 

"Wait," one of the girls said.

 

"My testing crap!"

 

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Creep into the room quietly. Like a shadow.
Place testing supplies down gently beside the bed.
Don't stir the child. Avoid strong lighting. Use only enough to see what you're doing. I recommend a candelabra.
Tell the person playing the spooky pipe organ music to knock it off. It's not helping.
Gently pry his warm, sweaty fingers from underneath his pillow like they're bones guarded by a sleeping bulldog.
Inspect his fingers like a bad poker hand and discard each one until you find one you can use. (READ MORE)


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It's not like we're pressuring Charlie to begin testing himself. Whenever he is ready to take on that responsibility is fine with us.  But it honestly seems like it's never going to happen. He has no desire to take the reins. I remember feeling the same way when we went through potty training with him. It took forever.

 

I figured he'd be 18 years old, on his back in the living room – legs up in the air - holding moist baby wipes and rash ointment while a girl named Amanda waited in the dining room dressed in cap and gown, flicking cigarette ash into a paper cup. "Mom! C'mon! Are you gonna change my diaper or what!!! We're gonna miss graduation!"

 

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Olivia asked me last night when she was going to have her next appointment at Joslin. I wasn't sure, but told her it should be coming up soon. (Must check into that, actually.) She said she wanted to ask the doctor something. When I asked her what she wanted to know, she said she wanted to talk about alternate site testing.

We've done this in the past, without much success. But looking at her fingers last night, I told her she really needed to try again. Her fingertips are mangled - they're covered with black dots and she said they really, really hurt.

Part of the problem is that she tests right on the pads of her fingers rather than on the sides. The endo has told her repeatedly to stop doing that, but Olivia doesn't listen. Now, though, she's having a lot of pain and she's going to have to do that.
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It started a couple days ago -- I think Thursday or Friday. And like a dumbshit I didn't call the doctor before the holiday weekend.

 

I had the classic symptoms of a urinary tract infection: pain, urgency, discomfort. I didn't want to foot the bill for a trip to urgent care, especially since I already knew what I had. But I also knew the pain was getting worse and no amount of water was making it any better.

 

UTIs are common for people with diabetes (no I can't find a single source to back that up, but I did find mentions of it in several places when I Googled). And with my history of kidney stones I'm guessing I'm at a slightly higher risk for it.

 

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Many of us have been a-twitter about World Diabetes Day, bringing attention to the epidemic proportions of Type 1 and Type 2 diabetes and the Big Blue Test. Seattle had a bike ride as did Victoria, BC. Philadelphia had an event at the Temple University School of Podiatric Medicine. Those of us in the New York City area celebrated with a huge D-Meetup and pizza party. The indefatiguable Allison set things up in a Midtown office building. At its peak, over 20 Type 1s, Type 2s, and Type 3s gathered to enjoy each other's company and take part in the Big Blue Test.

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Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
Brenda Bell
Brenda BellBrenda was diagnosed with high blood pressure, high cholesterol, and Type 2 diabetes in July 2002. After a rocky start, her diabetes has been diet-controlled since January 2004 and she hopes to keep it that way for as long as possible. (Read More)
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