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May 27th, 2012
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"When Nick Jonas is 26, I'll be 20," my daughter Maeve said with the sun in her eyes in the back seat as we drove to Point Pleasant.
 

"I have experience with diabetes," she said, making her case for why she'd be his ideal bride.
 

I have been blogging in the diabetes community for about two years now. Never have I actually met any of my invisible friends; these physical strangers that know more about me than my extended family does. There's definitely a certain safeness in existing only in words.
 

All that changed on Saturday when I met up with fellow diabetes blogger and parent of a child with diabetes, Shannon and her family. Shannon's 8-year-old son Brendon was diagnosed when he was just a toddler.
 

(READ MORE)


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One thing I have learned over my years with this disease is that many people know nothing about it. All of those typical stereotypes are still running rampant and sometimes its up to us to educate these people.
At times I feel like my shoes are soapboxes when I talk about diabetes to my family and friends. I never used to be this way but more and more I see how diabetes is misunderstood and instead of complaining about that I hope I can make a difference. I'll tell you, it is worth. (READ MORE)


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I received a comment on my post from yesterday that really struck a chord with me. The reader commented that their parents had died from diabetes and that they would die from it too.

 

When I read that I got choked up because honestly, I feel the same way.

 

Sure I plan on fighting the fight and checking my blood as often as I am supposed to. Of course I will continue to work on my A1C and losing weight. I am not giving up on life at all. But, in the back of my mind I “know” that diabetes is going to win in the end.

 

Will it be heart disease, kidney failure, or a stroke? Maybe something else. Who knows?

 

The fact is that with all the steps I take to live healthy the odds are against me. Diabetes has the upper hand which makes me sad and angry at the same time.

 

(READ MORE)


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I’m generally not a jealous person (at least I don’t think so), but “jealousy” is the only way I think I can describe what I’m going through right now.

 

Every time I see an ad for the breast cancer three-day walk — which is about every 30 seconds these days — I want to hurl the TV across the room. Why? Because why can’t that much attention be paid to people with diabetes?

 

Yes, I know there are walks for diabetes. But are there commercials with people dressed in blue saying “Save the ta-tas”… er, “Save the pancreases of the world” and “If I can walk 20 miles a day in support of my mother/sister/aunt/uncle/son/daughter then anyone can?” No, there aren’t.

 

(READ MORE)


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I can't believe I'm actually going to say this, but here goes. I'm sort of looking forward to my next A1C test. I know. I know. I'm a nut, but I have good reason to believe that the next one will be lower than the last one, which was (*blush*) 9%.
I decided to torture myself the other day by looking at my meter average. In the past when I've done this, a little calculation will show me that the average number of times I was testing per day was about one or two. The other day after a little calculation I found that my average number of per-day tests was four. I was incredibly happy with this because it meant that I am actually paying more attention to what is going on with me. Now, I know that I'm still slacking in some areas, but an average of four test per day is way better than one or two. Even for a type 2.
There's more. (READ MORE)


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I noticed a major change in my habits this weekend. I found that I can actually survive going out to eat without overdoing it. It was huge accomplishment for me since I am a big eater.
My mother was in town for her sister's big 60th birthday party so we decided to go out to dinner on Friday night. My mom picked a great little restaurant not too far from our home that has some of the best barbecue around. You know those places that when you just mention the name, your stomach rumbles in excitement? It is one of those places. (READ MORE)


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I hope this blog post finds you. I fear it may be intercepted. We are OK. Just scared. They are monitoring all diabetes-related blog activity and tracing all transmissions, so I must be brief.

 

The last 48 hours have been harrowing to say the least. Charlie and I have been on the run since receiving word that the "death panels" are rounding up all diabetics. I hope you are all OK. Safe houses have been set up. Obviously I cannot post locations or our safety will be compromised.

 

I am writing from a small Internet café in Morocco, disguised as a street musician. I have Charlie parked outside in a donkey costume, attached by a leash to a bike rack. They were hot on our trail yesterday in the Andean slopes as teams of Siberian sled-dogs closed in on us in an initiative rumored to run by domestic terrorist Bill Ayers.

 

(READ MORE)


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I really don’t try to incorporate diabetes into every facet of life. Really, I don’t.

  

It just happens.

  

Take Maeve’s homework assignment last night. Her assignment was to “bridge” or connect the story she was reading to something she could relate to in her own life.

(READ MORE)


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It is a little-known fact that Lionel Richie had diabetes in the 80s. It is believed that Richie contracted the disease after sleeping with a fan in Singapore during his 1984 tour of Asia. He later recalled his days with diabetes as the darkest seven days of his life. It was during these dark days that Ritchie penned this hidden gem to the melody of his smash hit, "Hello."

 

[Sorry,  you're gonna have to sing along. Thems the rulez.]

 

 

I'm Low

 

I've been alone with ‘betes in my mind

 

And in my dreams I've cured this thing a thousand times

 

I sometimes think I'll pass out on the floor

 

I'm low. Can't you see I'm forty four?

 

 

Can't you see it in my eyes?

 

(READ MORE)


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Since I missed this week's Diabetes Social Media Advocacy #dsma chat, I'm addressing this week's questions here. The topic was disclosure — who (and what institutions) do you let know you have diabetes, and who (or where) do you choose to keep in the dark.

 

1. To disclose or not disclose: do(es) your employer/school/friends know you have diabetes? Why or why not?

The company which employs me does not know that I have diabetes; several people at work (including my supervisors) do. There is neither place nor reason to mention diabetes (or any disability) on the job application — I believe it's actually illegal in the US to inquire before hiring — and since hiring/firing decisions are made at the store level, accommodations must be discussed and/or made at that level, rather than the corporate level.

 

(READ MORE)


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Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
Carey Potash
Carey PotashCarey is a full-time hater of diabetes. The benefits stink. His 7-year-old son, Charlie, has been giving he and his wife the finger since November of 2003. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)
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