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November 21st, 2009
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At 3:30 I ran out the door with my Medtronic box in tow, on my way to meet my trainer for the CGM system I have been fighting for since November.


Needless to say I was both excited and a little nervous. The main concern I had was how painful or uncomfortable it was going to be. Sure I have had diabetes for 18 years which means thousands of finger pricks and needles but still, I am not a fan of pain.


I was happy to find out that I was going to be meeting with the person who trained me on my pump years ago at her parents place of business. When I got there we went into the conference room and unpacked all the stuff I was sent. She assured me that there was no one around so we would not be interrupted.

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I get a lot of questions about how I like my CGMS. And sometimes, I just don't know how to answer. I love the IDEA of my CGMS. I love that there is something out there that shows me a constant stream of blood sugar information. I love that it will alarm me before I get a crashing low or start soaring high.

 

But in the execution of it all, I really don't like it. Yes, I'm very grateful that I have access to this technology. Insurance pays for it, which makes it less burden and more blessing. But overall, it isn't as great as everyone thinks it is.

 

Let me just outline my most recent use of the CGMS so you can see and decide for yourself if it's worth the hassle:

 

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A presidential promise. A statement to advance us into a more lucrative future of healthcare. A hope that technology in healthcare can further help fulfill patient’s needs.

"We will restore science to its rightful place, and wield technology's wonders to raise health care's quality and lower its cost….. All this we can do. And all this we will do."


This quote came from President Barack Obama's Inaugural Address on January 20, 2009. It is a bold statement on his desire to make improvements in todays healthcare system and expand on the successes of technology for everyone.

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Last week, I started a blog entry:

 

An Internal Battle
 
Why do I want a CGMS? Right now, I'm not so sure. There have been numerous points in the last year where I've said how much better my quality of life would be if I had some more diabetes technology. There have been other points this year when I've said, you know I'm not sure my return on investment here is worth it.

 

I had intended to work on that entry over the weekend, but couldn’t find the words past this paragraph. One day last week I had really considered calling the medical-supply company I’m working with to get the DexCom to tell them to just forget it. And pretty quickly I decided not to, to allow myself to have access to the best technology to treat my disease. I decided to just let it go and see what happens.

 

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People with diabetes, and those touched by diabetes, follow their journey with the disease through a myriad of winding emotional paths. Depression is very common for those newly diagnosed, sadness can rear its head at different stages in the game, and a little humor and humility can even find the door to expose itself from time to time. The keys for controlling those doors are littered all over the place and on  Wrld Diabetes Day today, you can follow this map of internet hotspots. Expose diabetes for all that it is, good and bad, and then share it with others. Find an emotion and embrace it!

 

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I've been under 100 for half of the last ten blood sugar checks. My lows are mostly in the seventies and eighties now. Only three below 60 in the past week. My averages are steady at 133, with certain times of day at 110 while others average at 158.

 

I'm certainly not complaining about good numbers and amazing averages. It's taken years of blood, sweat, and tears to get my diabetes where I want it to be. I actually feel like jumping up and down for joy at the moment. I can see the future ahead of me, not tainted by complicated pregnancies or kidney disease.

 

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The doorbell rang randomly today. My mom answered and received a package. Medtronic. I just received my supplies, so I wasn't sure what it could be.

 

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The letter C brings us to cannula, by request.
I found an interesting photograph of an insulin pump cannula that said much of what I'd decided to write when I was thinking through this post. Essentially, the photo verbalizes for me the sentiment that my life - the lives of all of us who use an insulin pump - turn (quite literally) on a dime. The cannula that delivers the medicine that keeps us alive is smaller than a coin that, this day and age, won't even pay for a gum ball. (READ MORE)


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Drum roll please.
And the 2007 award for the most flippant comment related to diabetes management goes to ,
Mr. Travis Hudson, a reviewer of tech devices over at dvice.com, for his review of a shoe insole developed by New Zealand's Zephyr Technology called the ShoePod Diabetic, that "has the ability to detect diabetic peripheral neuropathy."
"Glucose, schmucose," the review begins.
"This allows yourself, or your doc to keep an active eye on your condition and provide plenty of preventative measures to keep those feet nice, healthy and still attached," writes Hudson. (READ MORE)


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Being 17 at the time of diagnosis gives me some understanding of this years World Diabetes Day theme of "How Diabetes affects children and adolescents.
It was my senior year in High School. I had become Drum Major of the band. It was going to be a fun year but of course, diabetes had another plan.
I look back and remember the disbelief. The confusion that there was no cure. That I was destined to take insulin for the rest of my life. It was too much to handle on top of classes like Government and American Lit. (READ MORE)


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Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
Lindsey Guerin
Lindsey GuerinLindsey is a typical, yet unique, Texas girl who loves shopping, movies and reading. She loves to travel and take risks. She dreams of diabetes cures, never-ending cheesecake and her own airplane. The rest you can discover in her blog! (Read More)
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