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May 27th, 2012
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Oh, hi.  It's been a while, hasn't it?  Yeah.  Slacker central over here.  I read and I think about things to write but the motivation just disappeared last month (and the month before that, if I'm being honest).  I'm hoping the new year will kick my butt into action a little bit and have me posting here more often.

 

On to the latest: 

 

Olivia has been going to the nurse too frequently to treat low blood sugars.  She usually has stuff in her bag to treat, but the nurse has been insisting that Olivia go down there for every low.  In O's IEP it states that she can treat in class and there's a doctor's note in place, so I don't quite get what the deal is with the nurse.

 

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Just the other day I was speaking with a group of co-workers about different life changing events in the life of someone with diabetes. As we sat there and talked about it I began to reflect on my own. I thought about the different times in my life such as diagnosis time, school, relationships, complications, and work. All things that every person living with diabetes can relate to, or will eventually deal with.

Where were you when you were diagnosed? What were you doing that day or at that particular time in your life? Were you at work? Were you at school? Did you go into a coma or diabetic ketoacidosis? Was your vision so blurry, that like me, you realized you couldn't see the picture on the t.v.?
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First of all, I would like to give a huge thank you to everyone who offered to send test strips and insulin to Olivia.  The support that the diabetes community gives is just amazing to me sometimes and I find myself overwhelmed and a bit teary-eyed at all the kindness.  Heidi, over at The D-Log Cabin sent us some Novolog and Scott sent a box full of test strips.  I also bought the Reli-On meter and strips at Wal-Mart and so far, we've had no issues with them.  I think we're going to be OK for now.  We get health insurance in another 60 days and I have an application in for MassHealth - if Olivia is approved for that, she'll be able to continue going to Joslin.  If she's not approved, well, we'll have to switch endo groups - unless I can convince the insurance comapny to allow her to keep going, something I'm told they never do.  But I'll try. I'm a persistent pain in the arse when I need to be.

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I took Olivia school shopping tonight, to stock up on pens and paper and all the things (tissues? When did schools stop supplying tissues?) that she needs to start school on Thursday.

 

As we were walking thru the aisles of Target, she started talking about how last year, some of her teachers hassled her about time she missed for trips to the nurse or her quarterly doctor appointments. I knew it happened and handled it last year, although it didn't stop some of the teachers from giving her a hard time.

 

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Another question from a reader. Kat Diego asks: How was the switch to middle school? My daughter is very responsible and pretty much is in charge of her care while in school. But in midddle school, she won't have one teacher, she'll have 6 or 8. How'd your daughter deal with the transition? Do you have a 504 plan? Thanks for your help!

Olivia started middle school in the fifth grade and the kids were kept pretty segregated from one another at that age (which I loved). Fifth grade was fine for her, even with switching teachers. She was well looked after and I felt comfortable with her there.
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I've been mysteriously absent from the blogging world again. My apologies! I've been busy with baby and holidays, and keeping myself healthy despite the viral-cold-winds that are a-blowing. With a school teacher husband, it's hard to keep germs out of the house!
I thought I'd touch base with a quick recap of the last few weeks.
I took the month of December off of blood sugar management to focus on weight loss. I rejoined Weight Watchers (I'm a lapsed lifer) and found a meeting that's more like family with a great leader, Kim. Despite the holidays, I managed to stick to the program. (READ MORE)


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Olivia handed out her information sheet to her teachers yesterday.  I just typed up something short, informing them that she has diabetes and what to do if she's running high or low. I stressed that she can treat in class and that she only needs to go to the nurse if she's under 60. 

 

I also stressed that she needs to be accompanied to said nurse.  I found out at the end of the year last year that one of Olivia's teachers wouldn't let anyone go with her.  Fortunately, Olivia's never passed out from a low, but that's not a chance I want to take.  Olivia informed me of this towards the end of the year and I talked to the teacher and the nurse about it, but according to Olivia, it didn't do any good.  

 

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Olivia hasn't had too many problems with her teachers over the years. Most have been very accepting of her diabetes and the care she needs to take with it while she's in class. I have a packet of stuff I give to all of her teachers at the beginning of each year and thus far, that seems to be sufficient.

This year, though, she got switched a couple of weeks into the school year. She got a new English teacher and I just assumed that the old one would pass along the diabetes info. Wrong.
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Recently, my mom and I were talking about our eating habits. When she was a teacher, she said, there were typically goodies in the teacher's lounge. Every carb-heavy, sugar-filled concoction you could imagine. From donuts to stolens to cookies and cakes. She said if she could just hold out until the kids left for the day, she felt pretty good about making it home without touching anything. If she happened to grab one of those treats first thing in the morning, though, she was extra super diligent for the rest of the day, she said.
"Oh, man! Not me!" I said. The earlier I cheat, the more likely I am to be bad for the rest of the day. She was shocked at my admission. (READ MORE)


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Last week, I spent some time at work familiarizing myself with the School Advisory Toolkit. It's a guide for newly diagnosed or new to school parents that walks them through how diabetes plays into education. It also includes sections for the teachers and administrators to make sure all sides understand the issue.

 

As I reviewed the SAT (School Advisory Toolkit), I recalled my own education with diabetes. Since I was diagnosed in March when I was 4 years old, I'd made it a short way into pre-kindergarten, which also meant that almost all of my school career would be entwined with diabetes.

 

In pre-K, I had the most understanding and comforting teacher. She took extensive time to learn what needed to be done for me. Although I have no real recollection of her, I know that she was a strong foundation for both my diabetes and education. She was a creative teacher who loved her kids.

 

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Brenda Bell
Brenda BellBrenda was diagnosed with high blood pressure, high cholesterol, and Type 2 diabetes in July 2002. After a rocky start, her diabetes has been diet-controlled since January 2004 and she hopes to keep it that way for as long as possible. (Read More)
Nicole Purcell
Nicole PurcellNicole Purcell lists having type 1 diabetes last when she's asked to provide information about herself - because that's where it belongs.

(Read More)
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