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March 17th, 2010
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I received some excellent suggestions from readers regarding the New York Red Bull soccer fundraiser. Thank you very much.

 

I did talk to the account exec from the Red Bull and we had a very nice conversation. I approached the conversation thinking that anything at all that they could do would be fantastic and saw great value in simply establishing a relationship between JDRF and the team.

 

"I had some ideas," he said. "JDRF can be the 'Charity of the Match' for the game of your choosing."

 

"Uh huh." (I liked where this was going.)

 

"We can do a 'Jersey off the Back' of one of the players raffle at the game. $5 for a chance to win the jersey. After the game, the player will come out, sign autographs and take a picture with the winner."

 

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(Note: This entry is from several weeks ago,)
I hit a major snag with my blood sugar control in the last few weeks. My blood sugar started going up, up, up. And my insulin doses followed. At 28 weeks pregnant, I knew this was to be expected, but I didn't quite know what to do about it.
Really weird things started happening. Like feeling low 15 minutes after eating lunch and testing to find my blood sugar dropped 20 to 30 points after eating. But having just eaten, I would ride it out on the couch for a while until it started to come up. (I am so grateful to have the luxury of working from home!)
Wouldn't you know it, at the two-hour mark, it was higher than it should be (my doctor set my goals at 120 two-hours after meals, with a note not to worry if its 130). Concerned but not consumed with worry, I'd test again an hour later and find it was yet higher. Another hour later, higher still. (READ MORE)


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My addiction with diabetes blogs began in September of 2006 when I stumbled upon the Diabetes OC. We had spent the first couple of years or so of Charlie’s diabetic life insulated in our own little world. For whatever reason, we rejected the notion of support groups, stubbornly thinking it could not help us.

 

But I was also going through my own honeymoon period in the very beginning, as Susanne says. I bought into the rosy notion that everything would be fine as long as we tested his blood sugar just four times a day and simply counted carbs correctly. When Susanne insisted that we get up every night, I sided with the doctors who said it wasn’t necessary. I was wrong. In doing this, Susanne took the lion’s share of the worrying during the first six months.

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First of all, I would like to give a huge thank you to everyone who offered to send test strips and insulin to Olivia.  The support that the diabetes community gives is just amazing to me sometimes and I find myself overwhelmed and a bit teary-eyed at all the kindness.  Heidi, over at The D-Log Cabin sent us some Novolog and Scott sent a box full of test strips.  I also bought the Reli-On meter and strips at Wal-Mart and so far, we've had no issues with them.  I think we're going to be OK for now.  We get health insurance in another 60 days and I have an application in for MassHealth - if Olivia is approved for that, she'll be able to continue going to Joslin.  If she's not approved, well, we'll have to switch endo groups - unless I can convince the insurance comapny to allow her to keep going, something I'm told they never do.  But I'll try. I'm a persistent pain in the arse when I need to be.

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After I got Diabetic Echoes up and running as a website, I noticed that my college campus needed a place for diabetics and those interested in diabetes. So I went about setting up the organization with my campus. It was a long process, which took careful planning and creativity.

 

The group started last semester with four members including myself. We met every other week to prepare for this semester, talk about the JDRF Walk, and discuss things that were happening in our diabetes lives. Finding other members proved difficult, although I wasn't ready to give up just yet (after all, we raised over $1000 for the JDRF Walk).

 

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I was talking recently with a friend of ours whose twelve year old daughter was just diagnosed with type 1. As much as I love my friend, her attitude toward her daughter and her daughter's diabetes scared me a little. She uses the phrase "It's that simple," quite a bit. For example, she recently informed me that she told her daughter 'Sit your butt in the chair and test your bloodsugar. You have to do it - it's that simple.' She continued by telling me that crying about diabetes is not tolerated in her house. (READ MORE)


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What did I do before the internet?

 

I used to buy the newspaper to find out what movies were showing at the theater. I would call all my friends at least once a week to see what was going on. I would have to watch the news to see what the weather was going to be like the next day. I would read the TV guide to see what TV shows were going to be on.

 

So much has changed.

 

Before the internet I had no relationships with any people with diabetes. I knew a few type 2’s but never felt like they understood what I was going through and they were always much older then I was so I felt awkward.

 

So now that I use the internet all day long, I have no clue how I lived without it.

 

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One of The Other Half's family holiday traditions has been to redecorate their entire houses in Early, Middle, and Modern Christmas. Everything from the knicknacks on the end tables to the rug and hand towels in the guest bathroom is redone in red, green, snowmen, and old-fashioned Santa Clauses. The centerpiece of it all is the Christmas Village.

 

While some folk pride themselves on collecting all the pieces in a particular name-brand collection, most of these villages are odd collections of pieces purchased from sale racks here and there, or made by friends and family.

 

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Where to even start...?

 

And that is the point, you don't know where.

 

When someone is newly diagnosed with diabetes, where should their educational journey begin? Sure, there is the inevitable hospital stay, and the chat with a doctor, and possibly a self-injection tutorial (for the insulin requiring crowd), but what is the next step... after the hospital scene?

 

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(Continued From Previous Post)
I am dependent on insulin. But I am otherwise an incredibly independent person. I like taking risks - on my own. I enjoy the feeling of having accomplished something by my own will and my own action. I am more outgoing and more confident than I think I would have been if I'd not been diagnosed. A combination of wanting to be able to handle my disease on my own, without pity or judgment AND the experiences I had as a young woman - through the Clara Barton Camp and the ADA's Youth Congress - transformed me from a shy, albeit precocious kid, to a person who stands on her own. A person who keeps her head up and battles mightily - in the face of whatever wrong she sees and whatever challenges she faces. But would I trade my independence for a life without diabetes? I would - though again, who's to tell if something else might have brought me to this same place. (READ MORE)


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Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
Julia
JuliaJulia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)
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