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May 24th, 2012
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Now that spring has finally sprung, it's time for me to get my training into high gear for the June 13 Tour de Cure. While I haven't been completely off my bicycle, I've been a bit hesitant to ride for anything but necessity during the winter, and I've been avoiding the snow. As a result, my mileage has mostly been down from November through February, with few rides exceeding 15-20 miles or challenging me in any other way, shape, or form. While my mileage picked up a bit in March, I also had a lot of family issues that kept me out of town and/or off my wheels. Despite that, I managed to log 143 miles for March.

 

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Tonight, I wanted to attend a local diabetes support group. I know I'm almost 18 years in the game so it seems a bit weird to be getting into a support group, but I've found myself really struggling with things lately. I feel like sitting with other diabetics, remembering what those initial times were like, might help me get through this rough patch that I'm facing.

 

Unfortunately, today didn't go as planned so I'm not going to make it tonight. Today was frustrating, but it's nothing like yesterday. And I'm finding myself very overwhelmed tonight.

 

It has been a week that I wasn't home much. Between spending a lot of time in class and at work, I also worked a lot at Marvin's house. I've also spent my time attempting to decide on my current living situation.

 

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This past Saturday me and 14 others walked to raise money to fight diabetes. It was the American Diabetes Associations "Step Out to Fight Diabetes" walk. I posted about this a few weeks ago but at that time, only my wife and I had signed up.
To have so many people walk, friends and family alike, was just awesome. I felt so supported, so loved and cared about. (READ MORE)


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I generally consider myself to be fairly mature for my age. I've attributed my maturity to the experiences I've been through, mostly from dealing with a chronic illness from such a young age. It definitely puts a different spin on your whole life. You consider life as temporary, something to be cherished. You know you don't have all the time in the world.

 

Despite the maturity, I've still got growing up to do. There are things that diabetes and all my other experiences haven't taught me. I still have the passion and will of my youth to contend against on a regular basis. I'm holding on to pieces of that youth for good reason, seeing where maturity can change life for the worse in some ways.

 

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I'm not sure what to say tonight, but I'm in need of some reflection with the people who get this. This blog is going out to this whole diabetes community who live these same things every day, who understand the words before I even type them, and who never judge even when I'm the biggest failure ever.

 

Lately, I just want to scream. I am so frustrated with my diabetes. I am so desperate for a cure. I've lived almost 18 years with this disease. I've paid my dues and done my time. I just want it to end already.

 

The way I'm living right now is as if that's true. I do all the necessities to get by, but I know that I could be working harder at this disease. I know that I could be making it to the gym more or cutting out more carbs. But I'm not. I just can't focus on the diabetes.

 

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When I was in college for my undergraduate degree, I quickly realized that I needed some sort of diabetes support group in my life. Managing diabetes alongside classes and the craziness of a college schedule wasn't easy. So I put together a student organization on my campus called Diabetic Echoes for diabetics, friends/family of diabetics, or just general interest. I also made it an international network here on the web.

 

Through this group, I've made some of the best friends that I'll ever have. There is such a different aspect to a friend who not only understands the general stress of life, but gets how diabetes plays into every aspect of living. Someone who I can turn to without judgement and say that I'm down or that the highs/lows are getting to me and I don't know what to do. I don't think I would have made it through college the way I did if I didn't have that network to fall back on.

 

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This year’s JDRF annual conference has asked those involved with JDRF to compose a “Commitment to a Cure” piece. They will be using these commitment items to display on the Commitment Wall in hopes of increasing interest, passion and the volume of responses at the conference. 

 

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DIABETES GIRL’S MUM SETS UP SUPPORT GROUP – S Wales Argus

 

"Em, right. Thank you all ever so much for coming out tonight to my very first support group meeting. I’m Diane. Right. My first question is this. Is it wrong that I refer to my Emily as diabetes girl?"

 

LEARN ABOUT GOING TO COLLEGE WITH DIABETES – Syracuse Post

 

Know this. He stays up all night listening to Creed, never stops talking about his ex-girlfriend and won’t share his pot.

 

IS TYPE 1 DIABETES SEASONAL? – Leinster Leader

 

"Why the long face, champ?

 

"It’s this darn seasonal diabetes, dad. I just can’t take it anymore!"

 

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Put aside the images of the Kingston Trio's Boston-area rewrite of "The Ship That Never Returned" and think instead of a group of riders, runners, walkers, or drivers following one after the other, or a flock of migratory birds, or any group trying to travel a significant distance, using the strongest to protect the weakest from wind and weather, each member of the group taking a turn at the front to allow the others to recover.

 

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After I got Diabetic Echoes up and running as a website, I noticed that my college campus needed a place for diabetics and those interested in diabetes. So I went about setting up the organization with my campus. It was a long process, which took careful planning and creativity.

 

The group started last semester with four members including myself. We met every other week to prepare for this semester, talk about the JDRF Walk, and discuss things that were happening in our diabetes lives. Finding other members proved difficult, although I wasn't ready to give up just yet (after all, we raised over $1000 for the JDRF Walk).

 

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Carey Potash
Carey PotashCarey is a full-time hater of diabetes. The benefits stink. His 7-year-old son, Charlie, has been giving he and his wife the finger since November of 2003. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)
Nicole Purcell
Nicole PurcellNicole Purcell lists having type 1 diabetes last when she's asked to provide information about herself - because that's where it belongs.

(Read More)
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