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Alec Baldwin announced he has prediabetes, becoming the latest celebrity to reveal a diagnosis. How did this latest reveal make you feel?

February 9th, 2012
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My family is my world. They are everything to me. I come from an extremely supportive family and I realize how lucky I am to have that in today's world. I am very close with my mom, dad, sister, and grandma. They are the sole reason why I was able to get through my diagnosis and to this day still be thriving. My mom particularly deserves a lot of the credit for her tireless work towards helping my get through this. Her role was pivotal to my success. Needless to say, when I got diabetes at 14, it brought all of my family even closer.
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Tonight, I wanted to attend a local diabetes support group. I know I'm almost 18 years in the game so it seems a bit weird to be getting into a support group, but I've found myself really struggling with things lately. I feel like sitting with other diabetics, remembering what those initial times were like, might help me get through this rough patch that I'm facing.

 

Unfortunately, today didn't go as planned so I'm not going to make it tonight. Today was frustrating, but it's nothing like yesterday. And I'm finding myself very overwhelmed tonight.

 

It has been a week that I wasn't home much. Between spending a lot of time in class and at work, I also worked a lot at Marvin's house. I've also spent my time attempting to decide on my current living situation.

 

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This past Saturday me and 14 others walked to raise money to fight diabetes. It was the American Diabetes Associations "Step Out to Fight Diabetes" walk. I posted about this a few weeks ago but at that time, only my wife and I had signed up.
To have so many people walk, friends and family alike, was just awesome. I felt so supported, so loved and cared about. (READ MORE)


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(Note: This entry is from several weeks ago,)
I hit a major snag with my blood sugar control in the last few weeks. My blood sugar started going up, up, up. And my insulin doses followed. At 28 weeks pregnant, I knew this was to be expected, but I didn't quite know what to do about it.
Really weird things started happening. Like feeling low 15 minutes after eating lunch and testing to find my blood sugar dropped 20 to 30 points after eating. But having just eaten, I would ride it out on the couch for a while until it started to come up. (I am so grateful to have the luxury of working from home!)
Wouldn't you know it, at the two-hour mark, it was higher than it should be (my doctor set my goals at 120 two-hours after meals, with a note not to worry if its 130). Concerned but not consumed with worry, I'd test again an hour later and find it was yet higher. Another hour later, higher still. (READ MORE)


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I generally consider myself to be fairly mature for my age. I've attributed my maturity to the experiences I've been through, mostly from dealing with a chronic illness from such a young age. It definitely puts a different spin on your whole life. You consider life as temporary, something to be cherished. You know you don't have all the time in the world.

 

Despite the maturity, I've still got growing up to do. There are things that diabetes and all my other experiences haven't taught me. I still have the passion and will of my youth to contend against on a regular basis. I'm holding on to pieces of that youth for good reason, seeing where maturity can change life for the worse in some ways.

 

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I've lived on my own for over three years with a few stints back home for the summers. I've been taking care of myself in all forms and fashions (well minus that money part) since I first moved away for college. I've never had a roommate, only the cat. I've done all this by myself.

 

I know that I can keep doing it. My lowest A1c ever (6.9%) happened while I lived alone. The fear of lows and highs and all that eventually calms itself. I can be in control and live on my own without losing my mind.

 

The problem is that I really don't want to do this on my own. I've been handling my diabetes since I was a pre-teen when I switched to intensive insulin management (aka carb counting back in the day). This was exactly the reason why my mother didn't rush into giving me the control of my diabetes. She didn't want me to be overwhelmed when I had the rest of my life to manage it.

 

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I'm not sure what to say tonight, but I'm in need of some reflection with the people who get this. This blog is going out to this whole diabetes community who live these same things every day, who understand the words before I even type them, and who never judge even when I'm the biggest failure ever.

 

Lately, I just want to scream. I am so frustrated with my diabetes. I am so desperate for a cure. I've lived almost 18 years with this disease. I've paid my dues and done my time. I just want it to end already.

 

The way I'm living right now is as if that's true. I do all the necessities to get by, but I know that I could be working harder at this disease. I know that I could be making it to the gym more or cutting out more carbs. But I'm not. I just can't focus on the diabetes.

 

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I am so very fortunate.

 

I am surrounded by people who care about me, and who understand my diabetes.  I have family, friends, co-workers, and online cheerleaders (like you!) who "get" diabetes, who understand the physical and emotional challenges, and who are willing to help me manage under what are often difficult circumstances.

 

This is no small thing.

 

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First of all, I would like to give a huge thank you to everyone who offered to send test strips and insulin to Olivia.  The support that the diabetes community gives is just amazing to me sometimes and I find myself overwhelmed and a bit teary-eyed at all the kindness.  Heidi, over at The D-Log Cabin sent us some Novolog and Scott sent a box full of test strips.  I also bought the Reli-On meter and strips at Wal-Mart and so far, we've had no issues with them.  I think we're going to be OK for now.  We get health insurance in another 60 days and I have an application in for MassHealth - if Olivia is approved for that, she'll be able to continue going to Joslin.  If she's not approved, well, we'll have to switch endo groups - unless I can convince the insurance comapny to allow her to keep going, something I'm told they never do.  But I'll try. I'm a persistent pain in the arse when I need to be.

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This year’s JDRF annual conference has asked those involved with JDRF to compose a “Commitment to a Cure” piece. They will be using these commitment items to display on the Commitment Wall in hopes of increasing interest, passion and the volume of responses at the conference. 

 

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MikeDurbin
MikeDurbinMike was diagnosed with type 2 diabetes on December 29, 2008, and congestive heart failure the very next day. Talk about a double whammy for anyone, let alone a 24 year old. He didnt have to come up with New Years resolutions that year; his doctors did that for him. That kind of humor has been instrumental in keeping him, and those around him, going over the last year and a half.
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Nicole Purcell
Nicole PurcellNicole Purcell lists having type 1 diabetes last when she's asked to provide information about herself - because that's where it belongs.

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