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May 27th, 2012
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When I was little, I imagined a perfect life. I picked careers, pretended to make life-changing decisions and pictured my future. Nothing was affected by realistic needs and the facts of my life. I could be anything and never worry about discrimination in the workplace. I could live anywhere and not stress over medical access or insurance. My mind was limitless.
Now I make these life-changing decisions for real: I pick future careers, places to live and potential spouses. Now I have limits. My decisions factor in my diabetes and my future with diabetes. I look at things like job requirements, insurance benefits and personal reactions to my diabetes. Everything is affected by it. (READ MORE)


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Have diabetes? Get married.

 

 

This headline out of Mumbai caught my eye. I've been urging Charlie to get married for years.

 

 

The article is about an online matchmaking service in India called diabeticmatrimony.com.

 

 

Looking for your diabetic soul mate? Looking for that certain special diabetic someone? Want to trade in your spouse for one who gets it? Someone who really understands what it's like to have diabetes? Diabeticmatrimony.com might be for you.

 

 

(READ MORE)


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It's not often that Susanne and I get out.  It's hard to do so with three kids; even harder when one of ‘em has type 1 diabetes. When we do go out, it's usually to see one of our favorite bands playing in Philadelphia. We love music.

 

We were very excited to have tickets to see one of our favorite musicians - Matt Pond.  The weather was great. I was coming home early from work. We'd head into the city a little early - find a place where I could eat and Susanne could watch me eat with mad envy as she slurped her chalky nutrition shake ... It would be perfect!

 

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It's my time...to plan phase 2 of my healthcare team.

 

I'm a girl. A 21-year-old girl. A girl who has spent the last year listening to friend's talk about engagements, attending weddings of high school pals, and buying baby shower gifts for my already-coupled friends. Sometimes it feels like everywhere I turn, someone else is getting engaged or married or growing their family.

 

All that means that my mind is constantly confronted with the fact that potential coupledom and familyhood is in my future. That means I spend a lot of time thinking about this future, with these couples and families of my imagination. My mind trails in daydreams to consider the kind of guy I want to marry, getting pregnant, and growing old together.

 

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The thud my step-mother heard came from the first floor. It was my father hitting the ground when he woke up and tried to stand.

 

The first thing he remembers was a township police officer standing over him. Then his memory cuts to a big breakfast. The EMT stuck around, making sure he ate it all. My dad, a type 2 diabetic, had a blood sugar of 22.

 

Dad blames the brand new flat-screen television that was delivered that day. He was so consumed with playing with its features and admiring its picture that he forgot to have his usual bedtime snack and eventually fell asleep on the couch. Clearly he’s getting too much insulin if he’s eating a regular snack (without insulin) and still waking up on the low side, as he mentioned was the case recently.

 

"It’s so difficult to figure this disease out," he said to me over the phone.

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On Sunday, my friend Manny retweeted the Facebook status of someone who supports GLBT National Coming Out Day, which was yesterday, October 11. Many of us here understand "coming out" of a different closet -- the one which stores our diabetes supplies -- and admitting our pancreatically-challenged status to the world. For some in our community, it has had profound effects relating to loss of a job, inability to get a new job, loss of health insurance, and (obviously) increased healthcare costs. Some people with diabetes have admitted that their decisions to marry, whom to marry, and/or when to marry have been directly affected by their partners'/spouses' insurance status.

 

Most of our gay and lesbian colleagues with diabetes do not have that option.

 

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I am not a number. -- "Number 6", The Prisoner

 

One of the questions asked in a recent #dsma chat had to do with the people we live and work with who are familiar enough with our diabetes care to support us, make sure we have appropriate food and drink as needed, who know how and when to administer glucagon, and what to tell the folk at 911 about us. Some debate arose over the common patient-community designation of these individuals as "Type 3s".

 

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The ongoing issues with The Other Half's sciatica have come to a close, at least for now. It's taken two rounds of anaesthetic shots to the L5 nerve, and he's still prone to discomfort and fatigue after long periods standing, but he has been released to return to his "day job". He started Monday, on a 4 x 10, 1300 to 2300 shift. Since my shift is currently 1000 to 1800, this means that four days a week, I'll be on my own for dinner -- and hopefully asleep when he gets home. It also means having to take care not to wake him when I get up at 0600 to take my morning ride. (Unfortunately, neither of these has happened this week -- nor have my Monday or Thursday morning rides.)

 

(READ MORE)


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I'm battling pretty severe nausea again this evening. I decided to stop the Metformin and just stay on the Wellbutrin until my body adjusted. But at this moment, I'm greatly reconsidering that decision and thinking that I might stop the Wellbutrin altogether. I'm not sure that it's the right choice for me or for the people who love me.

 

I didn't exactly plan to tell my mom this evening that I'd started the antidepressant, but it came up and I got exactly what I expected. A lot of shock and a lack of encouragement about being on them. She doesn't believe that my life is bad enough to warrant antidepressants (because in her mind, they are only to be used for extremely bad situations like the death of a child or a sick spouse or some other catastrophe).

 

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As we come to the close of the DIABETES series, I'm not exactly sure how to end. No, it's not my last blog. Just the last for the series. Yet I still feel that a finale is important. A closing argument, if you must. My mind can't seem to find the right words. Specifically, I can't seem to find the right "S" that really fits what is spinning through my mind right now.

 

S: Spouses is the first word that comes to my mind, yet I have no spouse. But relationships are certainly on my mind right now. I just can't seem to find the right "S" to express what is heavy on my heart. Words like relationship, future, partner, or dating fit but nothing with an "S."

 

(READ MORE)


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Brenda Bell
Brenda BellBrenda was diagnosed with high blood pressure, high cholesterol, and Type 2 diabetes in July 2002. After a rocky start, her diabetes has been diet-controlled since January 2004 and she hopes to keep it that way for as long as possible. (Read More)
Carey Potash
Carey PotashCarey is a full-time hater of diabetes. The benefits stink. His 7-year-old son, Charlie, has been giving he and his wife the finger since November of 2003. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)
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