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May 27th, 2012
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Our kids with diabetes should get extra summer math credit for counting carbs. Cereal is quite tricky for a soon-to-be fourth grader.

 

Every morning begins at 6:30 am with Charlie hovering over us.

 

"I'm having a cup and a half of cereal and a yogurt. It's 25 carbs per serving for three quarters of a cup, so that's about 49 plus 13 for the yogurt, so that's (three-second pause) 62 carbs."

 

He starts plugging the numbers into his pump.

 

Susanne, still half-asleep, mumbles "wuhzse bluthugger?"

 

"I'm 88," he says.

 

"toktedadstllsleeephh."

 

"Dad.  I'm having a cup and a half of cereal and a yogurt. It's 25 carbs per serving for three quarters of a cup, so that's about 49 plus 13 for the yogurt, so that's 62 carbs."

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It may be more politically correct in the diabetes community to say "person with diabetes," but to be honest, I’ve never really had too much of an issue with the term "diabetic."

 

When referring to Charlie, I suppose I use "diabetic" more in writing than I do in speaking. For example, if speaking, I’d say ...

 

"Excuse me, gentlemen. If you would be so kind, might you stop holding Charlie down and pouring sugar down his throat? You see, Charlie has diabetes."

 

I most likely wouldn’t say, "You see, Charlie is a diabetic."

 

Especially in a situation such as that. I wouldn’t want to make him feel worse.

 

I don’t know why I use the term more in writing. Maybe because it’s easier to find words that rhyme with "diabetic" than it is with "diabetes."

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Ah, the first day of school.

 

 

 

 

 

 

 

 

 

 

Now that school is starting back again, it occurred to me that I hardly mentioned the last school year. I suppose that's a good thing. Couldn't have been all that bad if I didn't blog about it.

 

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Today,  at the grocery store, I spotted a pump.

 

On a woman at the deli, a black Deltec Cozmo.  

 

Seeing a pump like that, I can’t help but ask about it.  

 

Once, on a train, I saw a woman dosing herself, with what was obviously a pump.  When I asked her about it, flashing her my own portable pancreas, she looked shocked and said “I don’t know what you’re talking about.”  I felt terribly for asking about something that clearly made her uncomfortable.  

 

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Robot

 

"Come here Charlie, I need to change your battery," Susanne said.

 

Ben laughed. "Change his battery? Mom, Charlie's not a robot."

 

Meanwhile, Charlie was in the kitchen, making toast with his eye lasers and printing the night's blood sugar log through his sound hole.

 

 

Wraslin'

 

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My addiction with diabetes blogs began in September of 2006 when I stumbled upon the Diabetes OC. We had spent the first couple of years or so of Charlie’s diabetic life insulated in our own little world. For whatever reason, we rejected the notion of support groups, stubbornly thinking it could not help us.

 

But I was also going through my own honeymoon period in the very beginning, as Susanne says. I bought into the rosy notion that everything would be fine as long as we tested his blood sugar just four times a day and simply counted carbs correctly. When Susanne insisted that we get up every night, I sided with the doctors who said it wasn’t necessary. I was wrong. In doing this, Susanne took the lion’s share of the worrying during the first six months.

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Most of the teams who participate in our local JDRF Walk for a Cure are composed of friends and family walking for a child with diabetes. The child gets to be the focus of attention for a fun-filled day of raising awareness for that which normally separates him (or her) from his friends. There's also the smattering of company, corporate, and fraternal teams walking in the name of public service.

 

And then there's the third type of team: those who walk to honor the memory of a loved one killed by diabetes.

 

Memorial teams may be the fewest in number, but they serve as a poignant reminder of why we must walk - why we must continue to walk - and why insulin is not a cure.

 

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An old adage suggests there is strength in numbers.

 

 

Not the numbers of our ABCs -- although there is strength in that knowledge -- but the strength of many people, standing together, for the same cause.

 

Many people making the same choice made Jesse Ventura -- a third-party candidate -- governor of Minnesota, and Abraham Lincoln -- also a third-party candidate -- President of the United States.

 

Many people speaking out on television and in the media made everyone aware of AIDS and of Breast Cancer -- even though those two diseases kill and disable far fewer people than heart disease and diabetes.

 

Why is it, then, that hundreds (thousands?) of Twitter users turned their avatars red for World AIDS day, or green to support the protesters after the Iranian election, but not blue to support World Diabetes Day?

 

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Although I haven't technically taken part in this year's D-blog week, I'm taking today's prompt to heart. While reading through several other bloggers' entries for the day, I couldn't help thinking about my own list. A list of 10 things that I hate about diabetes.

 

1. I hate the constancy of this disease. There is never an escape, a vacation, or a fleeting moment of peace. It is always on my mind, always racing through my body, and always taking a toll on my physical and emotional health.

 

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How many times have you been talking to someone about your diabetes diagnosis, and had them respond by saying the following: "You don't look sick!"?

 

And how many of you have ever rattled off a list of medical conditions to someone, only to have them say "You're too young to have that much wrong with you!"?

 

I'd be willing to bet just about every one with diabetes or any other invisible illness has heard those lines at some point.  I certainly have.  Admittedly, I find them rather annoying.

 

Some days, I don't even acknowledge those comments, because I just don't have it in me to deal with them.  Other days, however, I'm not so passive.

 

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Carey Potash
Carey PotashCarey is a full-time hater of diabetes. The benefits stink. His 7-year-old son, Charlie, has been giving he and his wife the finger since November of 2003. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)
Lindsey Guerin
Lindsey GuerinLindsey is a typical, yet unique, Texas girl who loves shopping, movies and reading. She loves to travel and take risks. She dreams of diabetes cures, never-ending cheesecake and her own airplane. The rest you can discover in her blog! (Read More)
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