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February 9th, 2012
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I have not had good blood sugar the last four days. Watching the little blips on Dex go crazy high and then plummet below my "low" mark has been nerve wracking to say the least.

 

What did I eat? Did I not exercise enough? Did I overdo my exercise? Am I stressed? Is it hormones? Is my meter calibrated right? Did I calibrate Dex right? What did I eat? Did I forget to bolus? Did I miscalculate carbs?

 

What did *I* do?

 

The last four days I blamed myself for my roller coaster blood sugars. They were horrible, really. Highs so high and not responding to insulin. And then when those highs finally started coming down I felt comfortable enough to eat and my sugar would shoot back up. I think Dex woke me up most of those four nights.

 

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It took us just short of a year, but we finally discovered the right time of day to change Charlie's infusion set.
From the start of our pump training, we were instructed to change his site in the mornings. Before bed was not recommended for fear of low blood sugars.
So, we did as told.
And for months, Charlie's blood sugars were extremely high for a good part of the morning and into the early afternoon on site change days.
Our doctors weren't sure what to make of it. We all theorized that it was the stress of the site change sending him out of the stratosphere. Seemed to be a good enough explanation. He did absolutely flip out with site changes. The hope was that he would eventually not stress so much with the site changes and the blood sugar levels would fall into place.
Never happened and never happened. (READ MORE)


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For the past two weeks or so, my blood sugars have been running high. I had lowered my basals when I came back to school because I was having too many lows with my new schedule. I'm guessing that the basals need to be raised again since I've slowly adjusted to the schedule and I'm hitting exam times so my stress is increased.

 

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This morning I woke up to my pump alarm yelling at me. I turned over and looked at the clock. Having over an hour before I needed to wake up I grabbed my pump and pressed the ESC and ACT buttons to kill the alarm and fell quickly back to sleep. I knew this morning was going to be an infusion set change day so I was not surprised, just annoyed.
No sooner did I go back to sleep that I heard the alarm again. Not normally when you clear the low reservoir alarm you have another 10 units of insulin worth before the alarm goes off again. I reached under the blankets and cleared the alarm again. I don't think I even achieved REM state before my alarm went off and I was up for good. Bummer. (READ MORE)


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This morning I needed to change my infusion set for my pump.The infusion set is what goes into your body that allows the insulin from the pump to get to you. I change mine every 3 days.

 

I usually always put my sets in on my thighs. I have plenty of fat there and then I can stash the pump in my sock and it leaves belts feeling less like Batman's and keeps my pocket free. 

 

As of late I have noticed that I hurts more then it used to when I put the infusion set in. Also I have been pulling out more sites due to bad absorbtion. 

 

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My pump sites have just not been cooperating lately.  No matter where I put the canula - it ends up hurting.  A lot.  Enough so that I complain about it. 

 

To give you an idea of what it takes for me to complain - I am a girl who has had external fixators drilled into a bone in my arm for eight weeks and who refused pain killers (other than Tylenol) after two days.  I'm not a sissy.  Not at all.  So these sites are causing me more than a little bit of turmoil.

 

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Typically, I put in a new infusion site and leave the old site in for a few hours. I rarely have a bad transition. Occasionally, the site will hurt or feel uncomfortable so I replace it with a new one. Even on those occasions, it's immediate so I don't peak from the bad site.

 

But the last two sites have given me some trouble. I'm rotating like normal, still leaving my old site in for at least two hours, and making sure there isn't any pain. I'm still seeing numbers soar into the 200's without a true cause within several hours of replacing my site. And each time, I've replaced the site on the third high reading and come down within a few hours to a normal range.

 

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I'm always high on a site-change day. I've tried doubling the recommended amount of fixed prime, but I still wind up in the upper 200s. I've tried doubling my fixed prime and overbolusing for breakfast (I typically change my site first thing in the morning before breakfast) and I'm still high.

 

It occurred to me recently that I didn't know for sure if the "trauma" to my body from the site change was the culprit or if it was the insulin absorbing into a new place or both that was to blame. Because I'm only high after breakfast; back into range by lunch time.

 

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The crinkled tape and vibrant red-tinged tubing looks like leftover materials from an ancient bloodletting. Charlie's battered behind gets just a moment's rest before a new site is gored into his skin.
The pump does a lot of fantastic things. According to Charlie, if you press the up arrow three times while holding down the bolus button, you can create an impenetrable blue glowing force field. Up arrow four times while holding down bolus can obliterate the High School Musical poster on his sister's wall with a single, powerful laser blast. Me? I like the ease in which we can fine-tune and tweak. I like that he doesn't have to be 200 all night. We can punch in just a dash of insulin to drop him to a safe 150. (READ MORE)


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Tonight we're meeting friends for dinner and a show at the Tin Angel in Philadelphia. Fantastic place to see live music if you ever have the opportunity. We're seeing a band called the Trashcan Sinatras, which you may have heard of if a.) You listened to alternative/college radio in the early 90s or b.) You're from Scotland. A great band.

 

I do hope we make it there. We can certainly use it. These rare night outs have a tendency to fall apart at the eleventh hour for one reason or another unfortunately. Charlie's recent trend of unexplained high blood sugars has us wondering if a virus is lurking within him, only to be revealed as we're walking out the door with keys in hand.

 

Susanne has changed his infusion site two times in the last two days to see if that was the source of the highs. Alas, no. The highs are coming no matter what.

 

We're both pretty frustrated.

(READ MORE)


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George Simmons
George SimmonsGeorge Simmons is a father and husband living with type 1 diabetes. A self proclaimed "born again diabetic," George began blogging as a way to meet other people living with diabetes and learn more about managing his disease. (Read More)
Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
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