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March 21st, 2010
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We found 10 result(s) that match your search "site changes":

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Maybe it's just that it takes different parents of children with diabetes different lengths of time until they finally "back off," as my son's endocrinologist so bluntly urged us to do at last visit.

 

Even after just a year into life as a pancreas, doctors and nurses focused a great deal of concern on Susanne and me. "Hello!" we wanted to say. "Child with diabetes standing in front of you! Can we just focus on him?"

 

"You need to get your sleep," they'd say.

 

"You shouldn't have to get up every night at 2 am," they'd say.

 

"If you don't take care of yourself, you won't be able to take care of him," they'd say (the fear mongers)

 

"Don't worry about us."

 

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It took us just short of a year, but we finally discovered the right time of day to change Charlie's infusion set.
From the start of our pump training, we were instructed to change his site in the mornings. Before bed was not recommended for fear of low blood sugars.
So, we did as told.
And for months, Charlie's blood sugars were extremely high for a good part of the morning and into the early afternoon on site change days.
Our doctors weren't sure what to make of it. We all theorized that it was the stress of the site change sending him out of the stratosphere. Seemed to be a good enough explanation. He did absolutely flip out with site changes. The hope was that he would eventually not stress so much with the site changes and the blood sugar levels would fall into place.
Never happened and never happened. (READ MORE)


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Tonight we're meeting friends for dinner and a show at the Tin Angel in Philadelphia. Fantastic place to see live music if you ever have the opportunity. We're seeing a band called the Trashcan Sinatras, which you may have heard of if a.) You listened to alternative/college radio in the early 90s or b.) You're from Scotland. A great band.

 

I do hope we make it there. We can certainly use it. These rare night outs have a tendency to fall apart at the eleventh hour for one reason or another unfortunately. Charlie's recent trend of unexplained high blood sugars has us wondering if a virus is lurking within him, only to be revealed as we're walking out the door with keys in hand.

 

Susanne has changed his infusion site two times in the last two days to see if that was the source of the highs. Alas, no. The highs are coming no matter what.

 

We're both pretty frustrated.

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My pump sites have just not been cooperating lately.  No matter where I put the canula - it ends up hurting.  A lot.  Enough so that I complain about it. 

 

To give you an idea of what it takes for me to complain - I am a girl who has had external fixators drilled into a bone in my arm for eight weeks and who refused pain killers (other than Tylenol) after two days.  I'm not a sissy.  Not at all.  So these sites are causing me more than a little bit of turmoil.

 

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There's a Band Aid on my tummy. A small, flexible-fabric Band Aid.

 

Underneath is neosporin, which is covering up my last pump site. I've never used neosporin -- or a Band Aid -- after pulling a site.

 

That site had been itchy for about a day. I knew it was (over)due for a change, but I had so little insulin in my pump that I didn't want to do two "site changes" back to back.

 

I primed my pump this morning and was preparing to quick-sert the set when I glanced at my soon-to-be-old site. It looked like my skin had been sucked up into the set. I usually leave the old set in for several hours, but this one I quickly ripped out.

 

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When I got home from work last night I found a large package sitting on my desk.

 

"Who's this from?" My son was the only one home and as usual he gave the answer most 15 year olds would give.

 

"I dunno."

 

I looked at the label and saw it came from Minimed, the makers of my insulin pump.

 

As of late I have been eyeing the very cool Lakers skin for my pump since the camouflage one came off but I never ordered it. Hmm. Maybe it's my next box of CGM sensors since I am almost done with those? Hmm. Maybe I should just open it and find out. Duh!

 

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"Break! Break!" Charlie screams, a blue vein bulging from his neck. Susanne has Charlie over her lap and has barely begun pulling the edge of the tape when Charlie begs for a break, warm tears filling his eyes.
So much of Charlie's routine has gotten easier over time. Shots were very difficult in the beginning. He hated it. But eventually, it got better - his squirminess lessened. He'd just lean over, grit his teeth and exhale when it was over.
Site changes, on the other hand, have only gotten worse with time. Charlie's latest site change was awful. Seems like the bigger he gets, the bigger his resistance to it is. (READ MORE)


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"Did it hurt real bad?"
"It burned," Charlie said. "It felt like I was on fire."
"Do you think mommy and daddy want to hurt you?"
Charlie nods in the affirmative.
"That would be really mean; like really evil. Do you think mommy and daddy are evil?"
He nods up and down again, dipping his waffle in a small bowl of sugar-free syrup.
The slight smirk tells me he doesn't truly believe that, but it sucks to hear that from your child nonetheless.
That was this morning. Last night we took Charlie to hell and back with two site changes. The first site change was so absolutely horrendous that we just HAD to do it again, the monsters that we are. (READ MORE)


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Just hours earlier, he was strolling through apple orchards. His sister, annoyed at the fact that he didn’t pick one apple the entire time. Too busy playing with a black and orange caterpillar he scooped up from the middle of the road before certain squishy death by an oncoming pickup truck. A slowly marching eyebrow. He had set it free along the bark of a tall elm tree before we were to board the tractor. It climbed about twelve feet high, stretching its furry body before turning around and coming back down where Charlie scooped it up again into the bowl he had formed with his hands.

 

 

He let it explore his turning wrist and urged it to travel up his forearm, placing a winesap leaf under its tiny tickling feet.

 

 

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Getting ready for work this morning and listening to music as I often do, it was hard not to notice the striking juxtaposition of what was happening in the next room and the gorgeous melody filling the kitchen air. This morning it was "Cold Water," sung by Damien Rice and Lisa Hannigan.

 

Cold, cold water surrounds me now

 

"You’re hurting me!"

 

And all I’ve got is your hand

 

"Ow! You’re hurting me!"

 

Lord, can you hear me now?

 

"I’m not trying to, Charlie. Please try not to move!"

 

Lord, can you hear me now?

 

"Wait!"

 

Lord, can you hear me now?

 

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Carey Potash
Carey PotashCarey is a full-time hater of diabetes. The benefits stink. His 7-year-old son, Charlie, has been giving he and his wife the finger since November of 2003. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)
Lindsey Guerin
Lindsey GuerinLindsey is a typical, yet unique, Texas girl who loves shopping, movies and reading. She loves to travel and take risks. She dreams of diabetes cures, never-ending cheesecake and her own airplane. The rest you can discover in her blog! (Read More)
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