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Olivia asked me last night when she was going to have her next appointment at Joslin. I wasn't sure, but told her it should be coming up soon. (Must check into that, actually.) She said she wanted to ask the doctor something. When I asked her what she wanted to know, she said she wanted to talk about alternate site testing.

We've done this in the past, without much success. But looking at her fingers last night, I told her she really needed to try again. Her fingertips are mangled - they're covered with black dots and she said they really, really hurt.

Part of the problem is that she tests right on the pads of her fingers rather than on the sides. The endo has told her repeatedly to stop doing that, but Olivia doesn't listen. Now, though, she's having a lot of pain and she's going to have to do that.
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Olivia asked me last night when she was going to have her next appointment at Joslin. I wasn't sure, but told her it should be coming up soon. (Must check into that, actually.) She said she wanted to ask the doctor something. When I asked her what she wanted to know, she said she wanted to talk about alternate site testing.

We've done this in the past, without much success. But looking at her fingers last night, I told her she really needed to try again. Her fingertips are mangled - they're covered with black dots and she said they really, really hurt.

Part of the problem is that she tests right on the pads of her fingers rather than on the sides. The endo has told her repeatedly to stop doing that, but Olivia doesn't listen. Now, though, she's having a lot of pain and she's going to have to do that.
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"Did it hurt real bad?"
"It burned," Charlie said. "It felt like I was on fire."
"Do you think mommy and daddy want to hurt you?"
Charlie nods in the affirmative.
"That would be really mean; like really evil. Do you think mommy and daddy are evil?"
He nods up and down again, dipping his waffle in a small bowl of sugar-free syrup.
The slight smirk tells me he doesn't truly believe that, but it sucks to hear that from your child nonetheless.
That was this morning. Last night we took Charlie to hell and back with two site changes. The first site change was so absolutely horrendous that we just HAD to do it again, the monsters that we are. (READ MORE)

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"Did it hurt real bad?"
"It burned," Charlie said. "It felt like I was on fire."
"Do you think mommy and daddy want to hurt you?"
Charlie nods in the affirmative.
"That would be really mean; like really evil. Do you think mommy and daddy are evil?"
He nods up and down again, dipping his waffle in a small bowl of sugar-free syrup.
The slight smirk tells me he doesn't truly believe that, but it sucks to hear that from your child nonetheless.
That was this morning. Last night we took Charlie to hell and back with two site changes. The first site change was so absolutely horrendous that we just HAD to do it again, the monsters that we are. (READ MORE)

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"Did it hurt real bad?"
"It burned," Charlie said. "It felt like I was on fire."
"Do you think mommy and daddy want to hurt you?"
Charlie nods in the affirmative.
"That would be really mean; like really evil. Do you think mommy and daddy are evil?"
He nods up and down again, dipping his waffle in a small bowl of sugar-free syrup.
The slight smirk tells me he doesn't truly believe that, but it sucks to hear that from your child nonetheless.
That was this morning. Last night we took Charlie to hell and back with two site changes. The first site change was so absolutely horrendous that we just HAD to do it again, the monsters that we are. (READ MORE)

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So I was at work the other day and one of my co-workers and I had the, "diabetes talk". Let's just say she acted as if she knew all about diabetes. I was sitting there humoring her as she dove into topics of nutrition, exercise, and stress. And right as I was about to completely tune her out and continue what I was doing, she caught my attention with a few words that I HAD NEVER heard associated with diabetes. Chromium Picolinate.
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The crinkled tape and vibrant red-tinged tubing looks like leftover materials from an ancient bloodletting. Charlie's battered behind gets just a moment's rest before a new site is gored into his skin.
The pump does a lot of fantastic things. According to Charlie, if you press the up arrow three times while holding down the bolus button, you can create an impenetrable blue glowing force field. Up arrow four times while holding down bolus can obliterate the High School Musical poster on his sister's wall with a single, powerful laser blast. Me? I like the ease in which we can fine-tune and tweak. I like that he doesn't have to be 200 all night. We can punch in just a dash of insulin to drop him to a safe 150. (READ MORE)

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Olivia is starting to look like a pin cushion. Her stomach is a mass of red marks, scars and bumps. It's not pretty. She refuses to wear a bikini or half shirt because of how her stomach looks (not that this bothers me, mind you!).

The problem we're currently having is that she's got so much scar tissue built up that she's running out of real estate for her sites. She currently uses her arms, her stomach and her lower back.

I'm sure some of you will suggest thigh sites, but she has really bad luck with those. Thigh sites generally make her rollercoaster - she'll be in the 400s in the afternoon and by dinner, be in the 60s. It's bizarre. I've tracked it and she's not over-bolusing or over eating. I think it's an absorption thing. She's got meaty thighs (she can thank me for that one). I don't know if that makes a difference or not; regardless, thigh sites just don't do it.
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Friday morning, I packed up my bags to head to the lake for the weekend. I had a long drive ahead of me, so I made sure to bring extra juice, keep my meter handy, and lots of water. I stopped for lunch on the way.

 

I checked my blood sugar. 264 (up from 102 at breakfast). Unexpected, considering all I had for breakfast was water and eggs. Nothing that should send my blood sugar spiraling. So I bolused for the blood sugar, bolused for lunch, and enjoyed my quick meal before hitting the Texas highway.

 

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It took us just short of a year, but we finally discovered the right time of day to change Charlie's infusion set.
From the start of our pump training, we were instructed to change his site in the mornings. Before bed was not recommended for fear of low blood sugars.
So, we did as told.
And for months, Charlie's blood sugars were extremely high for a good part of the morning and into the early afternoon on site change days.
Our doctors weren't sure what to make of it. We all theorized that it was the stress of the site change sending him out of the stratosphere. Seemed to be a good enough explanation. He did absolutely flip out with site changes. The hope was that he would eventually not stress so much with the site changes and the blood sugar levels would fall into place.
Never happened and never happened. (READ MORE)

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