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Alec Baldwin announced he has prediabetes, becoming the latest celebrity to reveal a diagnosis. How did this latest reveal make you feel?

February 9th, 2012
Category:
Type 1Type 2Oral MedsInsulin & Pumps
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A bell's not a bell 'til you ring it... -- Oscar Hammerstein II

 

Much like the opening lines of the "Sixteen Going on Seventeen" reprise (1), knowledge -- like love: doesn't exist "'til you give it away." Data become knowledge when they are shared, analyzed, verified. Or like money in Hello, Dolly!, knowledge "is like manure -- it doesn't do good unless you spread it around, encouraging young things to grow."

 

While sharing everything you know may, perversely, show up everything you don't know, knowing what you don't know gives you the option to learn it. Of course, there will be someone who will take that opportunity to say that it's your posterior, not your cranium, that has the intelligence,(2) but y'know what? That's just him (or her) sharing his (or her) lack of knowledge.

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During the two and a half years that have passed since I was diagnosed with type 2 diabetes and congestive heart failure, the majority of my involvement in the diabetes community and other health advocacy efforts has primarily taken place online.  When you take into consideration that I have a Bachelor of Science in Internet Technologies and work as a professional code monkey, the fact that I've focused so much of my attention and energy towards online advocacy really isn't surprising at all.

 

Like many of my fellow diabetes online community members, though, I've been longing for a way to take my advocacy efforts offline.  And amazingly enough, my interactions with the online community have led to some pretty awesome opportunities for taking my message offline this summer.

 

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Sad to say, I've not had the bicycle out since Sunday morning. A combination of parental schedules, the Tour de France, rush hour traffic, and a heat wave have conspired to keep me indoors for most of this week. Now, this year's Tour de France has been about as predictable as an adolescent Type 1 girl's blood glucose levels are around menarche -- many favorites crashed out early; the second and third race leaders hung onto their leads far longer (and through more difficult terrain) than expected; expected attacks were never launched (while others were launched at unexpected times), and the French press has been having a field day (or ten) with the first potential French winner in more years than they'd care to count.

 

So much for "why watch, when I could be doing?".

 

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Just the other day I was speaking with a group of co-workers about different life changing events in the life of someone with diabetes. As we sat there and talked about it I began to reflect on my own. I thought about the different times in my life such as diagnosis time, school, relationships, complications, and work. All things that every person living with diabetes can relate to, or will eventually deal with.

Where were you when you were diagnosed? What were you doing that day or at that particular time in your life? Were you at work? Were you at school? Did you go into a coma or diabetic ketoacidosis? Was your vision so blurry, that like me, you realized you couldn't see the picture on the t.v.?
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What if this was it? What if this was THE announcement? Where were you when you first heard the news?

 

We were in the living room. Susanne was sitting on the brown "site-change chair" with Charlie laying across her knees. She peeled the site off of Charlie's bottom while he resisted, elbowing her in the ribs and screaming, "break! break! break!"

 

Susanne begged him to be still.

 

And then suddenly everything stopped as we all became transfixed to the words coming out of Brian Williams' mouth on the television and the graphic over his left shoulder that said "Diabetes & Kids."

 

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Someone asked me a few weeks ago how my type 2 diagnosis affected my family. Honestly, I said, not very much. And I'm not sure if that's good or bad or a mix of both.
For one thing, I've always been the meal planner, grocery shopper, chef and chief bottle washer in our family. Furthermore, I always cooked fairly healthy for my family, tried to get a good mix of meats, veggies, starches and fruits. So adjusting our meal plan really didn't take much effort. (I know, you're wondering how I got to be so overweight if I cooked so healthy. Sweets have always been a big part of my life. The weight comes from not sharing, essentially. And I like to eat. A lot. And all the time.) (READ MORE)


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My fellow blogger Nicole Purcell, wrote an amazing entry the other day called, How Do Our Bodies Do It? She captivates very brilliantly what it is like to experience a severe late night episode of hypoglycemia. Some of us, fortunately, have never had an experience quite like the one she describes. Others are all too familiar with them. Speaking for myself, I am one of the fortunate ones, who has only been dangerously low a handful of times. I have never been injected with a glucagon shot and I've never really lost consciousness due to a low. But still, I could definitely relate to her experience because I can recall the episodes where I was just so unbelievably out of it. But her post got me thinking of the time when I was a camp counselor at a children's diabetic camp.
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Today I... am recovering from a very emotional evening in which crying ensued for no reason, but I suspect it was due to a string of terrible blood sugars, including swinging from 202 to 53 to 135 within the course of several hours.

 

Today I... would really like to go in the bathroom and cry. Or just go home and cry.

 

Today I... am trying not to angrily march over to the next cube and show the lady talking about how bad her allergy shots hurt all the infusion set scars on my belly.

 

Today I... considered talking to my coworkers about World Diabetes Day, but I don't have the mental energy.

 

Today I... am struggling with a funk I've been in for about a week that is likely due to not having even one in-range blood sugar reading unless by accident, miracle or lack of food.

 

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The Mr. and I had one of those discussions tonight. The kind where a lot of stuff was laid out on the table, things were gotten off chests, things were explained. Yep, it was one of those where we had both let the little things ball up and they had finally gotten to the boiling point.

 

One of the things we discussed was what I eat, how I bolus and why my blood sugar can be such a roller coaster sometimes. Not they why behind those things but The Mr.'s lack of understanding of how diabetes works. The simple answer, at least for someone who understands diabetes, is that this is the nature of type 1 diabetes. It just is what it is and sometimes it's unpredictable.

 

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People with diabetes, and those touched by diabetes, follow their journey with the disease through a myriad of winding emotional paths. Depression is very common for those newly diagnosed, sadness can rear its head at different stages in the game, and a little humor and humility can even find the door to expose itself from time to time. The keys for controlling those doors are littered all over the place and on  Wrld Diabetes Day today, you can follow this map of internet hotspots. Expose diabetes for all that it is, good and bad, and then share it with others. Find an emotion and embrace it!

 

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Carey Potash
Carey PotashCarey is a full-time hater of diabetes. The benefits stink. His 7-year-old son, Charlie, has been giving he and his wife the finger since November of 2003. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)
Lindsey Guerin
Lindsey GuerinLindsey is a typical, yet unique, Texas girl who loves shopping, movies and reading. She loves to travel and take risks. She dreams of diabetes cures, never-ending cheesecake and her own airplane. The rest you can discover in her blog! (Read More)
Our Other Bloggers: Brenda Bell, Nicole Purcell, Michelle Kowalski, Megan, MikeDurbin, Robert Hudson, Julia, George Simmons, Scott Marvel, Kim Doty, Kerri Sparling,