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February 10th, 2012
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Good news.  Bad news.  Ain't that the way it always goes?

 

Good news.  On Monday, I received my Mini-Link CGM from Minimed.  Thanks to a blessing from people who don't even really know me.  Cool, right?  

 

It's been pretty fantastic to be able to see my bloodsugars in real time.  I've had no problems with calibration and I've been consistently within 5-15 mg/dl points of the CGM for each meter reading.  The swings I've been having are easier to catch before they happen and I haven't had even one low or extreme high since I hooked up on Monday.  Even with three boxing classes this week - tough 900 calorie burning - hour plus work outs.  And I've stayed in range throughout every one of them, since I've known my bloodsugar and the direction it's headed in well in advance.  

 

I honestly couldn't be more thankful.

 

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I press the button on the inserter and the sensor shoots into Charlie’s bruised butt.

 

He screams holy hell.

 

I pull the long needle out and blood fills the sensor and quickly saturates the outer edges of the tape.

 

Susanne compresses the area with a paper towel and shakes her head, giving me a look. Perhaps you know it.

 

Ben runs over to witness the carnage.

 

We shoo him away before he describes the scene to Charlie.

 

Charlie is inconsolable.

 

He’s never screamed like this before.

 

Blood is really pouring out.

 

I tell him to try to calm down.

 

He begs us to take it off.

 

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I've had so many lows lately that I can't explain, I'm quite disgusted with my diabetes at the moment. I'm not catching most of them before dropping into the 50 or 40 range, plus several have happened overnight. Then tonight, I indulged with sweet and sour chicken and my blood sugar soared into the 300s before I could catch it.

 

I'm typically pretty dedicated to testing. I go through test strips quickly. My lancet always needs to be changed. The meter certainly gets its use. But sometimes, I just don't feel like checking. Or sometimes, I'm just not in a place to check. Sometimes I'm sleeping.

 

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Well, Charlie has officially gone continuous. He’s CGM-ing. He’s transmitting. He’s in real-time.

 

It started a little iffy in the doctor’s office when after the sensor was put on Charlie and connected to the transmitter, the green light that was supposed to come on, didn’t. Not for a while.

 

I found it a little unsettling that the technology we will be relying upon to keep our son healthy and safe only started working after futzing around with it for 20 minutes. We ended up using the old standby for just about any household appliance – unplug and plug back in.

 

When the educator demonstrated the insertion technique on a mushy belly prop, she pulled the needle out with sleight of hand, cupping it like a magician would a disappearing quarter so that Charlie wouldn’t be alarmed by its size.

 

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Kelly Nykaza’s daughter Leah was diagnosed with type 1 diabetes one year ago. On the topic of continuous glucose monitoring, Leah says, "other than changing it, it’s pretty good."

 

 

Pretty incredible coming from a 5 year old.

 

 

If you are like us and you are wondering if the time is right to consider continuous glucose monitoring for your child, this is an interview you’ll want to read.

 

 

We’re very fortunate for people in the online diabetes community like Kelly, who are willing to share their experiences with us so that perhaps our road may not be quite so bumpy.

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When I inserted the first sensor on Saturday, I thought it might give me a little trouble. It'd been through a lot in the last months (traveling around in my "everyday" case and moving from fridge to backpack to suitcase multiple times). It looked old, it looked like it wouldn't work. But I gave it a shot anyway.

 

And my suspicions were confirmed. It gave me two error messages before showing me a steady level in the 50's when I was perfectly okay. Instead of messing with a crazy sensor and wondering about its accuracy for days, I changed it out. I had an entire new box of them anyway and I don't use them often enough to be upset on throwing one out.

 

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HAVE BEEN APPROVED FOR CGMS.  *STOP*

 

CANNOT BELIEVE IT ONLY TOOK ONE LETTER.  *STOP*

 

CANNOT WAIT TO GET STARTED.  *STOP*

 

ANY ADVICE FROM MINIMED USERS? *STOP*

 

NOT LOOKING FORWARD TO TWO SITES.  *STOP*

 

NEED TO STOP BEING SO VEIN.  *STOP*

 

MORE ABOUT THIS VERY TOPIC AS SOON AS I BEGIN.  *STOP*

 

YAY *STOP*

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Overall, I like the Dex. I like looking at a nice, steady line first thing in the morning that confirms my overnight basals are set right. I like watching a pretty, pregnant rise and fall on the Dex showing that I've dosed appropriately for a meal. I like being able to push one button quickly while I'm working to see if I'm rising, falling or holding steady — I'm spending less time testing. I like that most of the time Dex is pretty close to my OneTouch.
 

I like that I found out I may be experiencing dawn phenomenon based on one morning's unexplainable rise from the 90s upon waking to the 150s before breakfast. Which reminds me that I'm not doing anything wrong before bed and that I may need to adjust my early morning basals slightly.
 

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I have to say that I was a little stunned last week when I found out that my insurance company had changed its policy regarding continuous glucose monitors. While I don't know exactly what that means yet, it's likely that the change will be in my favor (i.e., no more of this "disposable coverage" BS). At least, I hope.
 

One of the benefits my company offers is the use of a health company that advocates on our behalf for things like figuring out what you may owe after a hospital stay or what gets applied to your deductible. Basically, these people are in the health-care trenches and can help you sort out any issues or problems you're having.
 

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I typically bleed easily. I’ve been that way for awhile. My body just doesn’t want to clot very quickly. Unfortunately, as a diabetic, I bleed more often than I don’t. Between finger pricks and infusion set changes, there’s always blood. Sometimes, there’s very little. My fingers will refuse to bleed no matter how much I try to get them to. The infusion set won’t bleed at all when I pull the old one off.

 

Other times, I’m Old Faithful gushing out the bright red mix. Sometimes the stories are funny. Sometimes they are annoying. Mostly, they are life.

 

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Kim Doty
Kim DotyKim is a computer systems administrator for a major food manufacturer and lives in Colorado with her husband, Steve, and their children. She currently battles the bulge and tries to develop an exercise habit to better manage her blood sugars. (Read More)
Brenda Bell
Brenda BellBrenda was diagnosed with high blood pressure, high cholesterol, and Type 2 diabetes in July 2002. After a rocky start, her diabetes has been diet-controlled since January 2004 and she hopes to keep it that way for as long as possible. (Read More)
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