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May 27th, 2012
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Oh, hi.  It's been a while, hasn't it?  Yeah.  Slacker central over here.  I read and I think about things to write but the motivation just disappeared last month (and the month before that, if I'm being honest).  I'm hoping the new year will kick my butt into action a little bit and have me posting here more often.

 

On to the latest: 

 

Olivia has been going to the nurse too frequently to treat low blood sugars.  She usually has stuff in her bag to treat, but the nurse has been insisting that Olivia go down there for every low.  In O's IEP it states that she can treat in class and there's a doctor's note in place, so I don't quite get what the deal is with the nurse.

 

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Charlie begins first grade tomorrow. He will have two health aides. One in the morning and another in the afternoon. Neither aide has seen a pump and I'm pretty certain, they've never tested someone's blood sugar. So ...


Susanne will take the first shift, stalking with binoculars from an old, abandoned house across from the elementary school in army fatigues.


As for me, I'm going undercover - enrolling in Charlie's class as a transfer student from Ghana.


We do feel fortunate that the school has decided to provide health aides, but we just hope that they can slip somewhat into the background. We're also very much aware that this sort of special arrangement could be socially detrimental for Charlie if we were to continue beyond first grade.  For now, however, it gives us a little peace of mind and it buys us time for Charlie to learn how to test himself, and bolus himself, etc.

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Another question from a reader. Kat Diego asks: How was the switch to middle school? My daughter is very responsible and pretty much is in charge of her care while in school. But in midddle school, she won't have one teacher, she'll have 6 or 8. How'd your daughter deal with the transition? Do you have a 504 plan? Thanks for your help!

Olivia started middle school in the fifth grade and the kids were kept pretty segregated from one another at that age (which I loved). Fifth grade was fine for her, even with switching teachers. She was well looked after and I felt comfortable with her there.
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Olivia handed out her information sheet to her teachers yesterday.  I just typed up something short, informing them that she has diabetes and what to do if she's running high or low. I stressed that she can treat in class and that she only needs to go to the nurse if she's under 60. 

 

I also stressed that she needs to be accompanied to said nurse.  I found out at the end of the year last year that one of Olivia's teachers wouldn't let anyone go with her.  Fortunately, Olivia's never passed out from a low, but that's not a chance I want to take.  Olivia informed me of this towards the end of the year and I talked to the teacher and the nurse about it, but according to Olivia, it didn't do any good.  

 

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It used to be that "back to school shopping" meant two or three new outfits, new shoes and sneakers, and a short handful of "school supplies" -- one or two notebooks, paper and dividers, writing implements, a pencil case, and maybe a ruler.

 

For good or ill, those days are long gone.

 

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Well, the test strip canisters have been polished, the needles have been sharpened, the sensor has been freshly inserted and calibrated and the meter has been waxed and detailed.

 

It’s the first day of school.

 

Despite the great blog material it generates, we have decided that it would be in Charlie’s best interest if we ended my traditional first day of school diabetes discussion and book reading to the class. We feel we need to salvage what little street cred Charlie has left.

 

I will miss some of the wonderful questions from Charlie’s classmates.

 

"Can Charlie drink beer?" was a classic last year.

 

Of course he can!

 

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Ah, the first day of school.

 

 

 

 

 

 

 

 

 

 

Now that school is starting back again, it occurred to me that I hardly mentioned the last school year. I suppose that's a good thing. Couldn't have been all that bad if I didn't blog about it.

 

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Today has been an amazing day. First, I got a job interview from one of the resumes that I mailed out to businesses in my new town. Second, I finalized my apartment and moving situation (although I did sadly find out that I have no microwave in my new apartment). And finally, I received my graduate school acceptance!

 

I am so very excited that I've gotten in. My family had no doubts in my ability, but I must admit that part of me was scared that it just wouldn't work out. I knew that I am a strong candidate and student, but I just feared that my dreams wouldn't be what God or the school wanted for me. Here we are though! An offical graduate school enrollee!

 

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So my kids started school on Monday. Yep, super duper extra early. We have a modified year round school district. So we get seven to eight weeks off in the summer and two weeks off in the fall, winter and spring. I’m not sure I like it. I like the shorter summers because my kids get bored even with lots of activities to keep them busy. But the two weeks in fall and spring can be torturous. I’d rather have, say, a four day weekend in the fall and a regular one-week spring break. Again, the kids are bored, and finding camps or classes for them is expensive. I’m lucky to have my parents in town and they watch the kids, but I have to find something to keep them busy or they’ll drive my parents nuts. Of course, this also means finding something for all three that doesn’t involve my mom running all over town all day.

 

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Last week, I spent some time at work familiarizing myself with the School Advisory Toolkit. It's a guide for newly diagnosed or new to school parents that walks them through how diabetes plays into education. It also includes sections for the teachers and administrators to make sure all sides understand the issue.

 

As I reviewed the SAT (School Advisory Toolkit), I recalled my own education with diabetes. Since I was diagnosed in March when I was 4 years old, I'd made it a short way into pre-kindergarten, which also meant that almost all of my school career would be entwined with diabetes.

 

In pre-K, I had the most understanding and comforting teacher. She took extensive time to learn what needed to be done for me. Although I have no real recollection of her, I know that she was a strong foundation for both my diabetes and education. She was a creative teacher who loved her kids.

 

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Brenda Bell
Brenda BellBrenda was diagnosed with high blood pressure, high cholesterol, and Type 2 diabetes in July 2002. After a rocky start, her diabetes has been diet-controlled since January 2004 and she hopes to keep it that way for as long as possible. (Read More)
Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
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