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If you experience pain as a result of your diabetes, what have you found to be the best way to alleviate it?

May 27th, 2012
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Susanne was in the living room on the couch late one night when she heard what she thought was a light tap-tap-tap of one of our kids running down the wood stairs. She then heard a child's voice that whispered "mom" or "momma."
"Who's awake?" Susanne called upstairs. It was about 11 pm and I was in Charlie's room, testing his blood sugar.
"Huh? What do you mean? They're all asleep," I said, poking my head downstairs.
She sat wide awake and erect on the couch and looked at me very seriously.
"I think we have a ghost."
But wait, there's more. (READ MORE)


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Olivia recently pulled a stunt that simultaneously scared the crap out of me and made me madder that a sack full of wet cats.

She, against my instructions, set up an account on My Space. I found out she had it a while ago and would check her site every few days just to make sure everything was kept above board. She mostly used it to talk to her friends and to check out celebrities like Hannah Freakin' Montana. Oy. I let her know that I knew about it and that I was checking it out and she was fine with that.

Until this weekend, however. She changed her age to read 17 (she's 13) and some random guy contacted her. They talked for a bit until he started getting graphic at which point, she told him to leave her alone. What made me angry was that she gave the guy her name, her school and her address. What sent me thru the roof was that I didn't hear this from her, but rather from the vice principal at her school. Yeah, that one went over well.
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In February and March we sought the guidance of diabetes author and coach Gary Scheiner to see if we too could "Think Like a Pancreas." Our few meetings energized us briefly, but soon enough, we were back to feeling lost and utterly confused. After about five months, the pump wasn't working out as we hoped it would.
In April we decided to throw out all carb ratios and basal levels and begin with a clean slate, following more pump frustrations and a disappointing A1c of 9.6. We felt we hit rock bottom. We worked daily with the pump educator, tweaking and tweaking and tweaking and scratching our heads until we could tweak and scratch no more. (READ MORE)


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Charlie clutched Baby Doggy, a small puppy with a thin blue collar, and pulled the comforter higher onto his shoulders as we tucked him in. Baby Doggy's age starting to show in its fading gray coat and crusty tail. He also squeezed a small stuffed turtle named Pop as Susanne removed his insulin pump from his waist and gave him a correction for a blood sugar of 530.


Diabetes has spawned many emotions from Charlie. It has made him angry many times, frustrated often and ferociously defiant. On rare occasions, it's even made him happy if you can believe that. Skipping long lines at Disney comes to mind. Oh, and you should see how he dances around the hospital gift shop after an endo appointment.


But, on this night, something new. He was scared of diabetes.


"What if it goes up to 700?"


"What if it goes up to 1100?"


"Does it go up that high?"

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I remember the day Charlie was diagnosed with type 1 diabetes.  It was November, 2003.  Carey was giving a then 3-year-old Maeve a bath upstairs.  I was holding Charlie in my arms as he slept. He was 20 months old.

 

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In the past three nights, I've seen the same diabetes pattern. At 10:30pm, I suddenly drop. All three times have been a little over an hour after a meal and roughly seven hours after my afternoon Lantus injection. I stay low for a few hours and after several treatments, I pop up to the 140 range (or the 200s like last night).

 

I'm extremely frustrated by this. The lows are definitely taking their toll on my body, as usual. My weight is up a few pounds. And I'm generally just feeling weak and out of sorts. Not the fatigue of the weeks of highs, but a general low energy that results in me eating just to feel a little better. And lots of cravings for sugar mixed in there.

 

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Sometimes, when Susanne gets up in the middle of the night to test Charlie’s blood sugar, I listen for the snap of the spring and the pop of the needle. Sometimes I just have a bad feeling and I prepare myself for those three words that I hate to hear - "He’s really high." Sometimes the anticipation is awful.

 

Maybe I do it because I wish so badly he’ll be fine. I choose the contrary the way a sports fan says his team doesn’t have a chance to win, though in his heart, he believes. I just know it, I’ll say to myself. I know she’s going to say, "He’s really high."

 

I wait for it in the darkness.

 

"Snap!"

 

"Pop!"

 

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I am all sorts of emotions at the moment. First, I am frustrated. Then I'm confused, upset, and angry. I'm happy, content, and at peace. But also so unwhole and so discontent.

 

My blood sugars have decided to jump back up. Even with extra insulin. I'm not sure what that is all about, but it's very frustrating and annoying. I just want to forget about diabetes at the moment anyway. It seems so unimportant in the scheme of life.

 

I met with the career advisor at school today, which went fine. She confirmed that I'm doing everything right in the job hunt. I also got a few more resources and some advice on my resume. So I'm hoping that helps open something up for me soon. Because I'm scared and unsure of what the future holds for me right now. And I hate that feeling. I'm a planner.

 

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As most of you know by now, I've been thrust into the job market after finishing my degree. It was something that I was prepared for, but definitely not at the same time. It's been hectic, stressful, and informative. Some days, I feel on top of the world. And others, I feel like the world is crashing in on me.

 

My degree was in sociology with a minor in women's and gender studies. I also spent a good deal focusing on health and illness. Now, what can I do with this? Well pretty much anything. There's communications, non-profit, public relations, government work, sales, and so on.

 

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Today has been an amazing day. First, I got a job interview from one of the resumes that I mailed out to businesses in my new town. Second, I finalized my apartment and moving situation (although I did sadly find out that I have no microwave in my new apartment). And finally, I received my graduate school acceptance!

 

I am so very excited that I've gotten in. My family had no doubts in my ability, but I must admit that part of me was scared that it just wouldn't work out. I knew that I am a strong candidate and student, but I just feared that my dreams wouldn't be what God or the school wanted for me. Here we are though! An offical graduate school enrollee!

 

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Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
Julia
JuliaJulia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)
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