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May 27th, 2012
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One of The Other Half's family holiday traditions has been to redecorate their entire houses in Early, Middle, and Modern Christmas. Everything from the knicknacks on the end tables to the rug and hand towels in the guest bathroom is redone in red, green, snowmen, and old-fashioned Santa Clauses. The centerpiece of it all is the Christmas Village.

 

While some folk pride themselves on collecting all the pieces in a particular name-brand collection, most of these villages are odd collections of pieces purchased from sale racks here and there, or made by friends and family.

 

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The second annual "No-D Day" was Friday, 7 October. I missed it in preparation for Yom Kippur.

 

This is the second year that the diabetes online community has dedicated a day specifically to writing about things other than, um, diabetes. Let's face it: most of the time our posts are so full of highs, lows, food diaries, d-meetups, medication schedules, glucose tests, and so on that we tend to lose site that behind those walls of figures sit real people. People with parents, spouses or partners, sometimes children, sometimes furkids, jobs, homes (we hope!), and a whole range of interests beyond the latest FDA letter drive for an iPhone-mounted glucometer or a low-suspend pump.

 

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One underlying theme of diabetes blogs and complaints is the difference of our daily routines from those of people who have never known a blood glucose test, never chosen foods based on specific ingredients or an organization's endorsement, never had to dress in a manner different from those around them, and never had to follow a ritual not of the mainstream. Yet we see, meet with, and talk to people who do this on a daily basis, who could never think of not doing this (or who would never consider it)... who do not have diabetes, nor are they housemates of people with diabetes. (READ MORE)


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After a lot of tsuris which I'm certain Mom never meant to visit upon us, her remains were laid to rest on Friday the 13th, and — for what it's worth, since we've been far from traditional about it — the week of shivah, the deepest mourning, has been observed.

 

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Towards the start of the Passover seder, three cakes loaves completely-formed pieces of matzoh are raised with the incantation,

 

"Lo, this is the bread of affliction [poor bread, lakhma ani] that our fathers ate in the land of Egypt. Let all who are hungry come and eat..."

Traditionally, we consider this bread "afflicted" or "poor" because it was made hastily, without having had time to rise. It was "poorly" made, and "afflicted" by a lack of the airy texture we associate with bread.

 

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In some traditions, if a person has survived a serious illness or a serious trial in life, he or she will be given a new name, symbolic of a new life, of a resurrection of sorts. A diabetes diagnosis sets us each of us on a new life: a life of glucose testing, carb counting, diet watching, and medication dosing. The ways in which we react to the diagnosis, deal with it, and accept it in our lives changes us profoundly; we are never quite the same people we were before.

 

It is almost as if the "old" us had died, and we had been reborn again.

 

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I am not a religious person. I was raised a Quaker, which has directly influenced how I feel about religion. I understand people have faith, I respect it, I just don't.

 

But when I read about the family in WI who allowed their daughter to die due to untreated type 1 diabetes, preferring to pray for God to heal her instead, I was absolutely livid. How could you allow your child to stop talking and walking and just think that's ok? Just think that God will make it all better?

 

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There's no such thing as a single "diabetes diet". -- Diabetes proverb.

 

One of the challenges in preparing food -- or treats -- for a group of people is accommodating everyone's likes, dislikes, and dietary restrictions. Sometimes this is straightforward -- a packaged salad with OU (U in a circle) markings will be acceptable to most observant Jews; similarly, a vegan-certified product will work for most types of vegetarians. Preparing the same food from scratch poses other issues. If all my ingredients are kosher pareve (non-dairy, non-meat) but I cook those ingredients in a pot that once held pork roast, that food is no longer acceptable as kosher -- it has been "contaminated" by whatever molecules of pork that might have remained in that pot (even after a thorough washing).

 

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Amidst the candles, the dreidels, the latkes (potato pancakes), gifts, and gelt (either real money or foil-covered chocolate coins), there is the maggid (story). The story of a people, oppressed by a new king who wishes them to assimilate into a different religion and culture (or to assimilate more fully into that culture), a king who defiles the holiest of holy sites, families of resistance fighters who perish -- completely -- in the quest to keep one's lifestyle and beliefs alive, and a small, hermetically-sealed bottle of oil which -- miraculously -- burned for eight days, a full week longer than it should have, enough time for its replacement to be made. Ness gadol haya sham -- a great miracle happened there.

 

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With a new year come new ideas, new resolutions, new solutions to old problems, and of course new problems needing solutions.

 

Among the last is, once again, need for a full-time job. Cell phone sales were not high enough to keep me on until Christmas, so I am once again navigating the waters of unemployment and job-search.

 

For now, enough of that. The meme going around the Diabetes Online Community has been that of "spreading the word" -- both telling people with diabetes of the online resources available to us, and bringing our online activism out to the world in which we live, visit our doctors, purchase our food and medications, and educate our children. While most of us talk about outreach in terms of getting our real-life neighbors to hook up with our online resources, I see a different reality.

 

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George Simmons
George SimmonsGeorge Simmons is a father and husband living with type 1 diabetes. A self proclaimed "born again diabetic," George began blogging as a way to meet other people living with diabetes and learn more about managing his disease. (Read More)
Scott Marvel
Scott MarvelScott lives an active life with type 1 diabetes. Aiming to stay on top of his unexpected diagnosis, he puts a strong foot forward to stay in control.
Living life in the sun and fulfilling his dreams, Scott tries to educate himself, and others, on the unquestionable possibilities of a life with type 1 diabetes.
(Read More)
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