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How often do you worry about diabetes complications?

May 24th, 2012
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February 2010 marks my fifth anniversary with diabetes. I've been thinking about writing this post all month, though, clearly, I haven't found a way to write until the last day of the month.

 

I find that when I have an idea for a post -- say, a theme or a headline or just a quick idea -- but that I struggle writing it down it's usually because I just can't put my finger on the right words.

 

In five years I've been a lot of places with diabetes and learned a lot of things. I've had an A1C as high as 9 and as low as 5.9. I've lost 50 lb. and gained it back. I've been on oral drugs, I've taken Byetta and Symlin, I started on the pump. I had a beautiful baby.

 

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Last week, in the midst of the chaos that I wrote about in my last post, I was able to spend a bit of time reflecting on the blessings that have come to my life since my diagnosis with type 2 diabetes in December 2008.

 

I dubbed the week as Diabetes Blessings Week, and invited other diabetes bloggers to write about their D blessings as well. In the end, I must say that I am overwhelmed by level of support and participation the event received.

 

Here are some of the blessings that I wrote about last week:

 

A New Beginning – If it weren’t for diabetes, and the yeast infection I developed because of it, I wouldn’t have found out that I had congestive heart failure before it was too late. I was blessed with a second chance at life because of diabetes.

 

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With all the Hannah Montana and Halloween hullabaloo, I forgot to mention Charlie's last endo appointment. I actually like these appointments. It's a day off from work and a rare opportunity for Susanne and I to spend time with just Charlie. And there's always a hopeful thought that this time we'll get good A1c news.

 

Heading into Philadelphia on Route 95 we pass a factory on our left before the skyline comes into view with the sun reflecting brightly off of the Comcast Center building. I ask Charlie what he thinks the factory is making.

 

"I think it's a factory that makes other factories," he says.

 

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Is it just me...or has anyone else noticed the lack of true sportsmanship in today's sporting events and competitions? That’s kind of what I was thinking today after reflecting on last night’s superbowl. It seems like all I see anymore, when I catch a rare game on TV, are egotists trying to out do one another. Anymore, all I see are fights and bad things taking place on screen. Our kids are watching. We’re watching. And no one truly seems to take offense anymore to the programming that’s on. ( I guess my ego does :)

 

 

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I'm skipping the letter L - in favor of my very late Raise Your Voice post. Even later than I thought - because of technical difficulties... (Thank you, K) My voice still counts, I hope.

The countless days of senseless whirling
Numbers chugging, dancing in my head
Reminding me of their import

The unending barrage of needles and blood
And of damage and fear
Reminding me of my body's most drastic flaw

The every day of it

The every night of it

The demands

The requirements

The relentless, all-consuming weight of it
The wishing it was different - I was different
And the realization that you play the cards you're dealt

I watch, most days silent, as it destroys people I love.
This beast.
And I wonder how many healthful, strong days remain for me.

I look into eyes so like my own
Mirrors reflecting the days behind - the mistakes
And the days ahead? - For me?
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Tick, tock, tick, tock.

 

Every one of us with diabetes hears that clock ticking away.

 

Glucose, insulin, ketones, tests.
The endless cycle never rests.
Fail once to heed the daily strife
And that day you may lose your life.

 

Alarmists are everywhere. Family, friends, strangers, all with the best of intentions.

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It is dark. Black, really. There is no light anywhere. And there is no sound. There is nothing. Nothing but nothing.
This stunning blackness, this lack of light and sound, scares me concious. And I am in my bed. With an empty glass of juice in my hand. My right index finger slides, slimey, against the plastic cup, wet with blood.
Nothing makes sense. Bob's voice is the first thing I'm able to hear. "You need to test."
"I already tested," I answer, "Can't you see the blood?"
"You poked yourself, but you didn't test," He replies, "Come on, it's been about twenty minutes since you finished that juice."
"Was it bad?" I ask.
"Not as bad as it's been. You took the juice fine, no spitting, no screaming, no fighting. It was scary though, because you didn't say a word. It was like you were asleep with your eyes wide open." (READ MORE)


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Free Balls

 

At least with lows, you can get a heads up when your child comes to you and says, "I think I’m low." It’s a quick fix. At my 4-year-old’s first soccer practice on Sunday, the coach asked the group how many balls are used in a soccer game. Ben popped up like a Ben-in-the-Box and shouted out the answer triumphantly, adjusting his fingers accordingly to support his response.

 

"Freeeeeeeee!!!! (3)"

 

How’s that for the son of a soccer player.

 

Meanwhile, Charlie sat quietly behind one of the goals. Maybe too quiet. Maybe we should have been intuitive enough to know that he was sitting there very high and possibly had been for a few hours. It makes me sick knowing it after the fact. Continuous glucose monitoring is entering our conversations more and more these days.

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Yesterday, I searched Marvin's bright blue eyes as they danced in the afternoon sun. I marveled at the gray of my cat's fur. I glanced at the scenes flying past the car window.

 

It was a fairly normal day. I woke up, I went to lunch with Marvin, I spent the evening with my mom. I didn't think twice about my life. Until I was watching TV last night and the thought popped into my mind, I hope I don't go blind.

 

It was an episode of "Without a Trace." A girl around fifteen years old had suddenly gone blind from a retinal disease. In the episode, she struggled with the loss of her sight. She acted out, she was forced to develop new systems and patterns, she lost it.

 

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My fellow blogger Nicole Purcell, wrote an amazing entry the other day called, How Do Our Bodies Do It? She captivates very brilliantly what it is like to experience a severe late night episode of hypoglycemia. Some of us, fortunately, have never had an experience quite like the one she describes. Others are all too familiar with them. Speaking for myself, I am one of the fortunate ones, who has only been dangerously low a handful of times. I have never been injected with a glucagon shot and I've never really lost consciousness due to a low. But still, I could definitely relate to her experience because I can recall the episodes where I was just so unbelievably out of it. But her post got me thinking of the time when I was a camp counselor at a children's diabetic camp.
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Carey Potash
Carey PotashCarey is a full-time hater of diabetes. The benefits stink. His 7-year-old son, Charlie, has been giving he and his wife the finger since November of 2003. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)
Lindsey Guerin
Lindsey GuerinLindsey is a typical, yet unique, Texas girl who loves shopping, movies and reading. She loves to travel and take risks. She dreams of diabetes cures, never-ending cheesecake and her own airplane. The rest you can discover in her blog! (Read More)
Our Other Bloggers: Nicole Purcell, Brenda Bell, Michelle Kowalski, MikeDurbin, Megan, Robert Hudson, Julia, George Simmons, Scott Marvel, Kim Doty, Kerri Sparling,