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Before you read any further, I want you to know that this is not a terribly uplifting post. And I won't fault you if you decide to stop reading now.
One of the worst parts of having diabetes, for me, is how vulnerable it makes me feel. In the past, I've expressed my fears related to this disease on this blog and my personal blog. I am not a person that lets fear deter me. I push on, I make my way in spite of the fact that I sometimes feel overwhelmed by the possibility of disaster that life presents.
But, you know, life with diabetes presents a whole other set of disastrous possibilities. (READ MORE)
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Categories: Insulin & Pumps Emotions Real Life
Tags: cross fear medical ID jewelry
Views: 1674
I have many routines each day.
I check my BG as soon as I wake up. I make sure I always weigh myself before the shower (you know for that EXACT body weight). I listen to NPR on my way into work. I am a total creature of habit.
One habit I have, or routine, is identifying myself. I do this every morning and it is always a choice I make. Every time I make this choice, I am reminded of why I have made it and what it means to me. (READ MORE)
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Categories: Real Life
Tags: complications life powerful thoughts
Views: 1562
I spend a lot of time thinking about if I will ever have complications from my diabetes. The very thought of diabetes problems scares the crap out of me. My determination to ward of complications has a direct correlation with how I control my sugars on a daily basis. In other words, every time I treat a low or a high, thoughts of amputations or blindness are running through my head. Those fears are some BIG MOTIVATORS. I don't want to come across as the guy who just sits around and waits for something bad to happen. I am not the type of person who just mopes around hopelessly or just sits around thinking of nothing else but diabetes issues. I try to stay positive most of the time. My glass is usually "half full" rarely "half empty." (READ MORE)
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Categories: Type 1 Emotions Fitness Real Life
Tags: Battles exercise Fitness Martial Arts Poetry of sorts
Views: 1092
Some thoughts I came up with today while working out on the beach.
The sun hits my face, the presence of the ocean waves is enough to make even the most unaware people stop and look and think. This place feels safe and powerful within me in the deepest parts of my existence. I sit down and face the infiniteness of the sea in front of me. It’s all around. Birds are soaring, some hunting, some settled in the sand protecting themselves from the unforgiving winds that race down the coast. The wind is blowing hard today, enough to knock a person down and remind them of who’s in charge. The air blows past me and through me like it doesn’t even know I’m there, flying over the earth with no purpose - no final destination, no end. It just blows just to blow. It’s beautiful.
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Categories: Type 1 Children Real Life
Tags: diagnosis
Views: 1040
It was a blizzard.
It was pouring.
It was the coldest day of the year.
It was the night our power went out.
Like a parent recalling the day their child came into the world, Susanne talked to Charlie, as he sat on her lap, about what happened five years ago this day. The day he was diagnosed with diabetes. Not nearly as uplifting as a birth story.
He listened intently to the story as if not knowing how it would end, interrupting only once to say, "I think I remember riding in the ambulance."
"I remember the binky constantly falling out of the crib in the hospital room," Susanne said.
I remember the crib looking industrial and cold. It was like a large cage.
"Where did we sleep?" Susanne asked.
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Categories: Type 1 Highs & Lows Complications Fitness
Tags: (none)
Views: 1023
I woke up New Year's morning after a fun night out. I'd had a few glasses of wine the night before, while watching metal and rockabilly bands, cavorting with friends and a sword swallowing lady, and ringing in 2011. Â
My fitness schedule called for a gym visit on Saturday morning, and I've been dedicated to keeping that schedule. I got up, tested at 106 mg/dl, and had a breakfast of fruit, peanut butter and a half cup of milk with no bolus. Twenty minutes later, before climbing on the treadmill, I tested at 185 mg/dl. I figured I had some food still in their working, so I got to running.
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Categories: Type 1 Insulin & Pumps Children Highs & Lows Real Life
Tags: (none)
Views: 964
It's 3:14 am. Do you know what your child's blood sugar is?
I do. It's 377.
I wake up Susanne, and tell her we've got a problem. I fetch the insulin and a needle and rest my wobbly head in my hands while she flicks a stubborn air bubble. I climb halfway up the bunk bed and jab Charlie in the back of the arm. He wakes briefly and swats at his arm as if just bitten by a mosquito.
It's one of those moments where diabetes shows you just how powerful it can be. A correction of a blood sugar of 289 at 1 am does nothing. Instead his blood sugar soars angrily to 377. It's something bigger than us and bigger than our seemingly paltry man-made insulin.
As Police Chief Brody would say, "we're gonna need a bigger boat."
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Categories: Type 1 Relationships Emotions Real Life
Tags: (none)
Views: 895
Music has always colored my life and, in turn, my life with diabetes. Sometimes blue, sometimes neon pink, sometimes black.  My parents always had a record player, an eight track, a tape deck in our house and there were always plenty of albums and tapes to choose from. Everything from the Beatles to Helen Reddy to Frank Sinatra to Devo. When we camped in the summer, there was always a guitar around and some beautiful voices among my parents and their friends. I never was instrumentally inclined, but I’ve been singing pretty much since I could talk.  So, yeah, music was – and is - central to my existence. And there are songs or musicians that I will always identify with moments or periods in my life.
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Categories: Type 1 Type 2 Relationships Complications Emotions
Tags: (none)
Views: 650
I watched The Perfect Storm today on TV. If you haven’t seen it, I’d recommend it, it’s a beautifully sad movie.Â
Today, it got me thinking of uncertainty. Thinking about the way that for many people tomorrow, in and of itself, isn’t a promise. In fact, for many people tomorrow is all about luck, chance, an unseen drawing of cards.Â
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Categories: Type 1 Children Relationships Emotions
Tags: (none)
Views: 621
There is simply nothing more powerful in this world than the love of a parent. Active, engaged parents make such a difference in the life of any child, even more so in the life of a child with a chronic illness or special needs.
I've had the pleasure of meeting quite a few such parents through my work here at dlife, in my outside life working and volunteering for non-profits, and in my social life. Just recently, I met two of the most amazing parents I think I've ever known. My friends Joel and Zaira. Â
These are two people who have made extreme sacrifices to ensure that their son, Lance, has the best of everything in his life. By the "best of everything," I don't mean the latest X-Box, or monetary comforts, or anything else like that. Â
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