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We found 8 result(s) that match your search "parent's diagnosis":

It's my time...to appreciate the past.

 

Dear Mom,

 

I've probably never thanked you out loud for the years of care that you've put into my life. And I should. Every day of my life. Because you have been the rock, the support, and the lifeline that I've need in the past 16+ years of living with diabetes.

 

I've heard the way you tell my diagnosis story. I hear the fear in your voice, the emotion run through you. I know that those months were some of the hardest in your life. When you talk about watching me have seizures and bad night lows, I hear that same fear and emotion. I know having a diabetic child must be one of the most difficult things to encounter as a parent. I know it wasn't what you expected or wanted or needed in your only girl.

 

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There's an old adage that says success is "one part inspiration, nine parts perspiration". We tend to see only the first part -- the results, the glitzy façade. Except at the finish line of a race -- whether that be marathon, triathlon, bicycle race, or horse race -- all hints of the perspiration (or let's face it, sweat) are carefully hidden.

 

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Most of the time, diabetes is a heavy weight to carry.  It overwhelms the body, the soul, and the mind sometimes.  During sick times, the physical management is challenging.  During healthy times, the physical management is challenging.  During all times, the mental and emotional management is near impossible.

 

But even with the load of diabetes on my back, sometimes it smiles on me.  Sometimes, it shows me the kindness of others in a way I would never have experienced without it.  Sometimes, it brings the most light-filled, heartening, beautiful people into my world.  Sometimes, it shows me my own true grit, my own ability to overcome extraordinary challenges.  Diabetes opens doors that, without the weight of chronic illness, would stay closed.

 

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One thing I've learned both living with diabetes (and hypertension and everything else) and having family members with diabetes, hypertension, dyslipidemia, and other health issues is that no matter how far away you are, and whether that be in miles or in outlooks, the chronic illness of one is shared by the entire family. Here, many hands do not make "light work" -- that right goes to the bonds of love and familial obligation. While a large support network might ease the afflicted person's ability to live a full life, it means that a much larger number of people need to consider the needs of that person, that many more perceive an increase in their own risk for developing that malady, and that many more must learn to accommodate a family member's needs within their own lives.

 

To start with, it's hard to address diabetes without addressing diet. After all, they both start with the diphthong // dai //

 

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I am not a number. -- "Number 6", The Prisoner

 

One of the questions asked in a recent #dsma chat had to do with the people we live and work with who are familiar enough with our diabetes care to support us, make sure we have appropriate food and drink as needed, who know how and when to administer glucagon, and what to tell the folk at 911 about us. Some debate arose over the common patient-community designation of these individuals as "Type 3s".

 

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Last night, I participated in #dsma, a Twitter event for the diabetes online community. It happens every Wednesday at 9pm EST. I've joined in a couple of times before, but never gotten into it like last night. I've been really focusing on Twitter the last few weeks and finding connections with the DOC.

 

#dsma is crazy. It's fast paced. That hour goes by like lightning as you're trying to read all the other tweets, submit your own, and truly make an impact with fellow D tweeters. It's insightful and it's thoughtful. For that hour, you are thinking about the diabetes community, how to connect, how to integrate different ideas, how things apply or don't apply.

 

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