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February 10th, 2012
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I woke up this morning thinking of a friend, Jennifer Stowers-Quintal. Jen was a promising teacher, artist, musician and dancer from the Boston area. The light of so many lives, including her amazing parents, her fiancé and her students at the Blackstone Elementary School in the South End of Boston, Jen passed away in 2003 at the age of 23 just 3 months after surviving the Station Nightclub Fire and 6 weeks before her planned wedding.

 

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It’s been one of those days, the type of day where you just want to get some things off your chest (or mind). I wrote my last blog about television. I said some strong things; I got out some strong feelings. But they were heartfelt at the time, and looking back, I still feel strongly about what I said. TV sucks. It’s not natural. Their are a few things on occasion that are worth watching; sometimes you can catch something on that is educational or good for the soul. TV CAN be used as a good medium, or tool for our health. Sometimes, you see something you connect with or that gets you fired up, but in a good way. Tonight, for example, I watched a documentary on Netflix called, “Mario’s Story.”

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If everyone threw their problems in the air, would you reach out and grab someone else's problem or would you look around and decide to pull your own back down and reclaim it? Depends on the problem, I suppose. The popular option might be to let them all just hit the ground and splatter like water balloons.
But, that's not an option.
Susanne and I had a very nice and extremely rare night out alone on Saturday. We had dinner and saw some great live music at the Tin Angel in Philadelphia. My mother and step-father, the angels that they are, agreed to mind the animals at home - checking Charlie's blood sugar every seven-and-a-half seconds. By the time we got home, the piece of paper with numerous blood sugar numbers looked like a page ripped out of a fifth-grade mathematics text book. (READ MORE)


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I called my supply company today. A very good company that provides me with all of my pump supplies - including batteries and IV preps - thank you very much! Here's how the call went:
"Hello, this is Nicole Purcell calling, I'm due for my supplies so I'm just calling in."
"Oh, OK, hold on a second."
I hold on, hearing her type-type-typing.
"Oh, you're a pump."
"Excuse me?"
"You're a pump, just hold...o..."
"Excuse me, before you transfer me, I need to tell you that I am not, in fact, a pump. But I am a person that wears a pump..." Letting that little gem hang out there for an uncomfortably silent few seconds. "Hello, are you still there?" (READ MORE)


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This might sound odd and I'll probably get various opinions on the topic, but I decided to try online "dating." I haven't had success with meeting the right person here in college, so having someone else pick for me seemed like a great idea. My logic is that more mature, serious guys will be on dating sites, rather than the typical college scene.

 

As I set up my profile on one of the sites, I started to wonder about how to present my conditions (both my diabetes and my other conditions). I decided to leave it out of the "About Me" sections for fear that people might judge me and move on. I didn't want to have my "cover" read incorrectly.

 

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I don't believe in vaccines. Perhaps it was the family that I grew up in. Or the disease that I've lived with every day since a series of regular, routine vaccines when I was 4 years old. Maybe it's just my own understanding of health and traditional thinking.

 

But I don't believe in them. However controversial that might be and however many of you might hate/ban/harass me for it, I cannot bring myself to believe in them. And trust me, I have done my research.

 

When I was 4 years old, my mother took me in for all the regular vaccines. The most memorable for both of us is the MMR because it has since been linked to autoimmune diseases such as type 1 diabetes. Almost immediately, my mom noticed a change in me. I was sick, unlike myself, and in ill health.

 

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When I was in the third trimester of pregnancy last spring, I began asking about breastfeeding and my various medications. Thyroid was a no brainer, since it's just replacing what my body doesn't make itself. If I had needed insulin after delivery, that was no problem for the same reason. The big issue was taking metformin.
My Ob/Gyn said "Ask your Endocrinologist." My pharmacist said "OH NO, NOT metformin!" My endo said "No, you can't take metformin while breastfeeding." His Physician's Assistant later said "Sure, you can take metformin and nurse, but Dr. Endo isn't comfortable with our office telling you that officially; so do your own research and make up your own mind." (READ MORE)


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I love to write. I love to express my opinions, emotions and thoughts. It's particularly fun to focus on important topics in my life, like my blog here. But sometimes it gets very overwhelming to know that hundreds of people are reading my words.
When I blog, I expose my life to the masses. I put my diabetes on display. I put my views about diabetes on display. And sometimes, those are the hardest things to show the world. (READ MORE)


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A new study in the JAMA indicates that omega-3 fatty acid supplements may keep at-risk kids from developing type 1 diabetes. The study found that kids who did eat fish, nuts or other sources of omega-3 fatty acids had a 55% less chance of developing diabetes. (I linked to the National Review of Medicine site because JAMA charges you a $15 fee to view their articles. Ouch.)

Sometimes I'm not sure what to think about these studies. Olivia was diagnosed when she was not quite three years old, so I suppose I could have given her Omega-3 supplements. I guess I'll have to figure out how to incorporate them into the two little girls' diets - I don't know that they'll eat fish and that's an expensive food to waste if they don't like it. Plus the whole mercury thing...honestly, some days I wonder if anything is safe to eat any more.
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I've been anxiously awaiting today for several weeks now. It's the mix of fear and excitement that can't be explained. Because today I met with my new endo and my old CDE (from the pediatric days). And today, I'm completely bittersweet about this disease.

 

The endo was quite amazing. She's fairly young, seems knowledgeable, but most importantly we seemed to be pretty much on the same page with this whole thing. Not only was she in the room before the nurse finished the finger prick, blood pressure, and weight checks, but she spent over an hour with me personally. I'm in awe, the drop your jaw on the floor kind of awe mixed with the standing ovation type of awe.

 

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Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
Nicole Purcell
Nicole PurcellNicole Purcell lists having type 1 diabetes last when she's asked to provide information about herself - because that's where it belongs.

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Our Other Bloggers: Brenda Bell, Carey Potash, Lindsey Guerin, Megan, MikeDurbin, Robert Hudson, Julia, George Simmons, Scott Marvel, Kim Doty, Kerri Sparling,