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Both of my doctors, my endocrinologist and the doctor in charge of my bio-identical treatment, have sent disability status letters for me. It actually took very little effort, despite the initial feedback from the nurses in the beginning. I'm happy to get these out of the way and go forward with the process. I'll also be writing my own letter to support my case with a personal note.

 

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When my husband and I decided to start a family, we knew my diabetes would be an issue. As a health writer, I spent months researching the topic before actually getting down to work. I read every book on the subject and followed every internet link. I figured I know just about everything there is to know to be prepared for the nine months ahead.
For the most part, I take great care of myself-too good if you ask some of my doctors-yet all of my research and obsessive control could never prepare me for the challenges of a diabetic pregnancy.
That's why I'm so grateful to have found a website devote entirely to women like me. On the forums at Diabetic Mommy, women of all types of diabetes in all stages of motherhood from all over the world share wisdom, advice, laughter and tears with one another. (READ MORE)

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I'll admit I've never seen Buckaroo Banzai; however, the catch phrase "Wherever you go, there you are" has become as much a part of our popular culture as "Beam me up, Scotty" or "Time to make the donuts!" Yet, with about one in eleven US residents having -- or being at risk for developing -- diabetes, it's no wonder that almost every time we turn around, we meet (or learn about) somebody else "with the D".

 

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With a new year come new ideas, new resolutions, new solutions to old problems, and of course new problems needing solutions.

 

Among the last is, once again, need for a full-time job. Cell phone sales were not high enough to keep me on until Christmas, so I am once again navigating the waters of unemployment and job-search.

 

For now, enough of that. The meme going around the Diabetes Online Community has been that of "spreading the word" -- both telling people with diabetes of the online resources available to us, and bringing our online activism out to the world in which we live, visit our doctors, purchase our food and medications, and educate our children. While most of us talk about outreach in terms of getting our real-life neighbors to hook up with our online resources, I see a different reality.

 

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I’ve written about the “diabetes secret handshake” on previous occasions – the externally-visible insulin pump, the furtive-but-public jab of an insulin pen, the naturally-obsessive counting of M&Ms, Smarties, or raisins – or the presence of glucose tablets.

 

Not that I really need them, but over time I’ve acquired a small stash of glucose tabs at health fairs and diabetes expos.Since another colleague – who works at an adjacent station where he cannot keep “food” – has a history of metformin-mediated lows, I’ve taken to keeping one of those tubes stashed in the unlocked space of my workspace, to be used if/as needed, no questions asked.

 

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As an informed person with diabetes and an active member of several online diabetes communities, it's important for me to "get out into the real world" and make connections with other people with diabetes and with people and associations whose purpose is to support us medically, psychologically, and socially. In addition to real-life meet-ups with members of my various diabetes online networks, I go to health fairs and community events to make contact, inquire about the state of diabetes-care support and diabetes advocacy programs, and have even given a presentation about how diabetes online communities positively effect the lives and health levels of people living with all types of diabetes. 

 

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Today was my first day at JDRF. I still can't get used to saying that I work for the Juvenile Diabetes Research Foundation. Talk about dreams coming true.

 

It was a day of paperwork, training, and Gala activities. I'm definitely finding my footing on many levels even though I've volunteered with JDRF for several years and I've lived with this disease for over eighteen. There is a lot to learn and a lot to process.

 

But here I am, decompressing with my patio door open and the TV running in the background. I am about three pages away from being done with a major paper due Monday. I am also considering submitting an application to my alma mater for a Certificate in Non-profit Management. I haven't decided yet and don't want to waste the $50 though.

 

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A bell's not a bell 'til you ring it... -- Oscar Hammerstein II

 

Much like the opening lines of the "Sixteen Going on Seventeen" reprise ⁽¹⁾, knowledge -- like love: doesn't exist "'til you give it away." Data become knowledge when they are shared, analyzed, verified. Or like money in Hello, Dolly!, knowledge "is like manure -- it doesn't do good unless you spread it around, encouraging young things to grow."

 

While sharing everything you know may, perversely, show up everything you don't know, knowing what you don't know gives you the option to learn it. Of course, there will be someone who will take that opportunity to say that it's your posterior, not your cranium, that has the intelligence,⁽²⁾ but y'know what? That's just him (or her) sharing his (or her) lack of knowledge.

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Today is World Diabetes Day.  Honestly, for me, every day is diabetes day - this is just another of the days of my life. 

 

I see the importance of the day more in terms of people living with diabetes in developing nations - where diabetes education and treatment is difficult to come by and in terms of people in our own country who - because of lack of adequate insurance coverage, resources, and finances - are at much greater risk than I.   Those are the people for whom this day matters most.

 

Can you imagine watching your child get sicker and sicker - and having no doctor to bring them to, no resources (online or otherwise) to consult about symptoms or diagnosis, no way to get to a medical facility other than a two to five day journey on foot?

 

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I'm in the process of updating my presentation on Connected Medical Devices for presentation at the Trenton Computer Festival on March 10th. (Slides and resources for the original presentation are available ACGNJ Presentations Page.) While examining the links, I found that the paper and slide deck for Jay Radcliffe's presentation on insulin pump security are no longer available online. I'm not completely surprised, and I remember some hullaballoo in that neither the presenter nor the pump manufacturer wished someone to make malicious use of that information. (If I recall correctly, the presenter had only "gone public" after the manufacturer dismissed his concerns.)

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