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We found 10 result(s) that match your search "online communities":

Yesterday was just a crappy day in general. I think my brain was just working overtime which is never good for me. I try to keep the depression that comes with having diabetes at bay but sometimes it is overwhelming. Sometimes it seems nothing will get me out of it.
I have found the best way for me to get this junk out is to get it out literally literally! I write my blog here at dLife and my personal blog. I share the good times and bad. So many times I have thought, "no one wants to hear about my cruddy day" but whenever I have, someone else has commented on how they too feel that way now and then. (READ MORE)

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Where to even start...?

 

And that is the point, you don't know where.

 

When someone is newly diagnosed with diabetes, where should their educational journey begin? Sure, there is the inevitable hospital stay, and the chat with a doctor, and possibly a self-injection tutorial (for the insulin requiring crowd), but what is the next step... after the hospital scene?

 

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I'll admit I've never seen Buckaroo Banzai; however, the catch phrase "Wherever you go, there you are" has become as much a part of our popular culture as "Beam me up, Scotty" or "Time to make the donuts!" Yet, with about one in eleven US residents having -- or being at risk for developing -- diabetes, it's no wonder that almost every time we turn around, we meet (or learn about) somebody else "with the D".

 

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As an informed person with diabetes and an active member of several online diabetes communities, it's important for me to "get out into the real world" and make connections with other people with diabetes and with people and associations whose purpose is to support us medically, psychologically, and socially. In addition to real-life meet-ups with members of my various diabetes online networks, I go to health fairs and community events to make contact, inquire about the state of diabetes-care support and diabetes advocacy programs, and have even given a presentation about how diabetes online communities positively effect the lives and health levels of people living with all types of diabetes. 

 

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What did I do before the internet?

 

I used to buy the newspaper to find out what movies were showing at the theater. I would call all my friends at least once a week to see what was going on. I would have to watch the news to see what the weather was going to be like the next day. I would read the TV guide to see what TV shows were going to be on.

 

So much has changed.

 

Before the internet I had no relationships with any people with diabetes. I knew a few type 2’s but never felt like they understood what I was going through and they were always much older then I was so I felt awkward.

 

So now that I use the internet all day long, I have no clue how I lived without it.

 

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If you spend any time around the diabetes social media advocacy (#dsma) community on Twitter, you will see references to #unicorns in general, and "glitter-farting unicorns" (GFUs) in particular. The unicorns seem to have sprung fully-grown from Kerri's vision of cockeyed optimism, and it is said that their flatus can cure even the most stubborn case of type 1 diabetes.

 

Obviously, GFUs are part of the Diabetes Online Communitiy's myth and legend, and may even be responsible for Halle Berry's miraculous "recovery" (come on, can't you see her dressed in a skinsuit and narwhal-horn-shaped headdress?) Their pull is powerful, and talismanic unicorn mascots have been popping up all over the DOC.

 

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Every year, the "blue versus red" argument comes up as diabetes bloggers and patient advocates discuss the relative merits of the American Diabetes Association, the Juvenile Diabetes Research Foundation, the Diabetes Research Institute, the International Diabetes Foundation, and World Diabetes Day. This week, however, the color of diabetes is pink.

 

Diabetes UK pink.

 

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With a new year come new ideas, new resolutions, new solutions to old problems, and of course new problems needing solutions.

 

Among the last is, once again, need for a full-time job. Cell phone sales were not high enough to keep me on until Christmas, so I am once again navigating the waters of unemployment and job-search.

 

For now, enough of that. The meme going around the Diabetes Online Community has been that of "spreading the word" -- both telling people with diabetes of the online resources available to us, and bringing our online activism out to the world in which we live, visit our doctors, purchase our food and medications, and educate our children. While most of us talk about outreach in terms of getting our real-life neighbors to hook up with our online resources, I see a different reality.

 

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A bell's not a bell 'til you ring it... -- Oscar Hammerstein II

 

Much like the opening lines of the "Sixteen Going on Seventeen" reprise ⁽¹⁾, knowledge -- like love: doesn't exist "'til you give it away." Data become knowledge when they are shared, analyzed, verified. Or like money in Hello, Dolly!, knowledge "is like manure -- it doesn't do good unless you spread it around, encouraging young things to grow."

 

While sharing everything you know may, perversely, show up everything you don't know, knowing what you don't know gives you the option to learn it. Of course, there will be someone who will take that opportunity to say that it's your posterior, not your cranium, that has the intelligence,⁽²⁾ but y'know what? That's just him (or her) sharing his (or her) lack of knowledge.

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One of the advantages of modern technology is the ability to view remote events live; another is to discuss a presentation, while it is being presented, "in the back channel" — i.e., in a chat room or on Twitter. These technologies give many of us who could not otherwise attend a technical presentation the opportunity to attend virtually, and to participate. This past week has been chock full of such opportunities.

 

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