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May 27th, 2012
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I got to the office at 8:00 AM. My appointment was for 8:30 so I figured I would read some magazines in the waiting room for a while before I met with my new endocrinologist.  

 

After walking down a very long, narrow, and deserted hallway I found the room number. I took a deep breath and grabbed the door knob. It was locked. 

 

Down the hallway and down the elevator I went and found a bench to park on for a while. As time ticked away I started thinking about what my doctor should look like or act like. I took out my Blackberry to check my email and to post some Tweets

 

8:20 rolled around and I headed back upstairs to the long, narrow, deserted hallway that I am sure I have seen in a movie. The door was still locked. I leaned up against the wall and waited. 

 

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When I sat down in the exam room with the nurse she started asking me some typical questions but responded in a different way.

 

“So you are a type 1 right?”

 

“Yes, since I was 17.”

 

“And you are on a pump right?”

 

“Yes for just over 2 years.”

 

“Which pump?”

 

“I use a Minimed pump.” I answered although no one has ever asked me that question.

 

“Which model? The paradigm?” She asked

 

“Oh yes, the Paradigm 722,” I replied a little confused that she would even know model numbers and stuff.

 

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I know I shouldn't, but I do. I know it should be a time that's full of helpful information, but I don't think it is. I think the only thing I really get out of my endo appointments is knowing my A1C.

 

I always feel like I'm on the defensive. Sometimes I just want to scream HAVE YOU EVER LIVED A DAY IN YOUR LIFE WITH THIS WRETCHED DISEASE? HAVE YOU EVER EXPERIENCED A LOW BLOOD SUGAR? NO? THEN SHUT YOUR FACE.

 

I was particularly feisty this morning for some reason. What do they really expect us to say when they ask "How are your blood sugars doing?" I always say "They vary." Because, really, what diabetics blood sugars *don't* vary? There was only one time period in my life when I could say my sugars were always -- yes always -- in range and that's when I was pregnant with No. 3. I was a model patient.

 

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My cousin H asked me the other day if I had found a new doctor yet. No, I told her I hadn't made any calls yet. I feel sort of weird about doctor hopping, but that's the way it has to be. 

 

I've never been in this situation before, so it's no wonder that I didn't think of making an "interview appointment" sooner. We interviewed pediatricians when I was pregnant with No. 1, so it makes sense that you should be able to do it with physicians in other areas. I did at one point consider calling offices and asking to talk to the office manager or main nurse, but I really wasn't sure I'd get the answers I was looking for. Actually, I'm not sure the doctor will be able to answer all these questions, but someone in the office should be able to.

 

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A friend of mine has just found a new endo and is loving it. I'm very excited for her because I know how much trouble she went through with her last endo. I remember telling her the difference between her reluctant-to-listen-to-the-patient doctor and Dr. C: "After having never spoken to Dr. C about Symlin before, I came into his office for a regular check up, said I wanted to try Symlin and 15 minutes later the nurse was hooking me up with a sample pen."

While I had a lot of freedom when I spoke with Dr. C, I have often wondered how much latitude he gave me because he knew how involved I am in the diabetes community, knew that I was up on the latest information and technology, and was proactive. I was sad to leave him behind. (Maybe there's a little too much ego there, but I really got very little resistance from Dr. C about anything.)

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As a reporter I've interviewed a lot of people in a variety of situations. Part of that job is not being intimidated. You have to go into an interview knowing how to control the situation.

 

But calling the offices of potential endocrinologists and asking for an interview appointment was a completely different scenario. Especially since most places I called said "Oh, the doctor doesn't do that." So half of my questions went out the window because I wound up talking to a medical assistant.

 

Some example answers I got:

 

*If I call with a question, who will get back to me and when? Most likely a medical assistant usually within 48 hours, but sometimes up to 72 hours.

 

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A month into the new year.  And a number of new things to report:

 

A new job.  An amazing new job.  I took a position in early January with Rhode Island Public Radio.  I am the organization's very first Development Director.  It's challenging, it's interesting, it's fun.  My goals are aggressive.  My new boss is an Emmy Award winning producer who's smart and driven.   Rhode Island Public Radio has just gone independent from its parent station at Boston University and is in the midst of wrapping up a Capital Campaign.  We're essentially building our programs and our membership and fundraising bases from the ground up.  Mostly exciting - a little scary.  

 

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1.       Well, my new physician’s assistant. I don’t actually see my endo, just the PA.

 

2.       My old PA moved on to hospital management.

 

3.       When my new PA made me wait 15 minutes before coming into the patient room I got pretty aggravated. My old PA was in the room within 5 minutes.

 

4.       We talked for a long time. Actually, she talked and I listened and answered questions. Since we are new to each other she was information gathering, which is fine. But it can be kind of a pain in the ass to go through your medical history all the time.

 

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The last time I saw an endocrinologist was before I moved cities. That was back in September when my A1c was starting to get rocky again, sitting at 8.3%. At that point, I assumed my life would settle down, I'd get a steady schedule and a job, and my blood sugars would fall back in line.

 

That didn't exactly happen considering that life seems to throw me curve balls every time I think I'm getting back on track. So in January, my new primary care physician ran all my usual lab tests and referred me on to an endo (that I subsequently did not see). My A1c was 8.5% at that time and my protein was low although everything else came back fine.

 

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I met my new endo this morning. I have to say that the facility is pretty nice and convenient. It took me about 5 minutes to get to from home. It's a new building, although the exam rooms look outdated between the lack of computers and the patient beds. But it's the service that counts, right?

 

All the nurses, front desk help, and check out assistants were nice. Not overly friendly, but did their jobs with respect. The medical assistant that took my blood pressure and blood sugar was a little awkward. She didn't tell me my blood pressure, which I find aggravating. She also didn't offer to let me prick my own finger, although her prick was adequate (and not painful like a lot of nurses). Nothing that I can't resolve at the next visit though.

 

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Julia
JuliaJulia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)
Lindsey Guerin
Lindsey GuerinLindsey is a typical, yet unique, Texas girl who loves shopping, movies and reading. She loves to travel and take risks. She dreams of diabetes cures, never-ending cheesecake and her own airplane. The rest you can discover in her blog! (Read More)
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