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How often do you worry about diabetes complications?

May 24th, 2012
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The problem with living with diabetes 24/7 is that you forget the details of the disease. It becomes like breathing or eating. You only remember the major moments...the great food you enjoyed or the time you got pulled under by a wave and struggled for the surface and air.

 

And that's exactly how diabetes is for me. After sixteen plus years of this disease, I can't remember the finger pricks or the insulin shots or any of the in between. It just zooms past my memory because I don't find a need to remember these minute issues (and my brain would constantly be on overload if I tried to remember 6+ finger pricks a day for the past sixteen years).

 

But today, I'm finding the need to remember these issues. Since I'm back on MDI's for the time being, I've been submerged into the life of insulin injections and many more finger checks. The ups and downs of diabetes are now important. The details are important.

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It's been a bit busy this week, leaving me somewhat late on reporting back on Saturday's d-group meeting to see Breakthrough: The Dramatic Story of the Discovery of Insulin, a special exhibit showing at the New York Historical Society. Since I had to work Sunday, this ended up as the total of my World Diabetes Day celebrations this year.

 

 

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The past weekend I spent 3 days at a Christian Camp in the mountains working at a retreat called Via de Cristo or Cursillo. Some you may have heard of it before. It is one of many 3 day movements around the world used to rekindle the fire of ones faith. My wife and I attended Via de Cristo, which is a co-ed non denominational version of Cursillo, a few years back and try to serve on the team at least once a year for new people going through the experience. (READ MORE)


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I wanted to recognize someone who deserves credit for the amazing thing they did. This person (we'll call him Joe) performed an incredible task without even considering the consequences. Unfortunately, not many people realize the extent of Joe's actions. They carry on with their daily lives and never think twice about what Joe did. But for me, Joe is a hero. (READ MORE)


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When I tell my "real-life" friends stories about my friends from the Diabetes Online Community (DOC), I'm often told that my stories make these people sound real.
"Well," I say, "They are real. In many ways more real than some people I've met face to face."
I usually get the look then. The one that says: Nicole has been spending too much time online. Nicole's friends all live in the box.
That's the furthest thing from the truth. I mean - really - who can spend too much time online? And my friends don't live in the box, they just talk to me through it. Right?
I'm getting to the point. Patience. (READ MORE)


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After a month of contemplation, phone calls, and hassle, I've finally made an appointment with a new doctor. If you haven't followed along, my old endo wasn't being as cooperative or helpful as I wanted him to be. So I decided to pursue a new endo that might walk me through the next few years of my life as I prepare for the "real world," babies, and possibly even marriage. I called several doctors recommended by my pediatric endo, only to find out that my insurance either will not let me see them or I'd have to go about a massive ordeal just to get an appointment.

 

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It's not unusual for me to be woken in the wee hours of the morning. Typical offenders include No. 1, No. 2, No. 3 and The Mr.'s snoring. Despite the amount of water I *think* I drink, it's surprisingly not to visit the facilities.
But Sunday morning, some time before 5 a.m. I awoke. Confused, not feeling right and uncomfortable. Something propelled me to go potty. Oh, the pain was terrible! I had the same symptoms of blood in my urine (which pretty much mimics a urinary tract infection) that I had at the end of February. This was miserable.
Still uncomfortable, I tried to go back to sleep, but the stinging wouldn't let up. And, well, The Mr. was snoring. I maneuvered around the creeky boards in our 100-year-old home to the living room couch, where I honestly thought I'd be able to fall asleep. But I found myself in the bathroom literally every two minutes squeezing out teeny drops of relief. (READ MORE)


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I was diagnosed with type 1 diabetes twenty-five years ago. Twenty-five years is a long time to live with something. It is an especially long time to live with something that requires tight control. Twenty-five years is enough time to have seen lots of bad days, lots of good days, and lots and lots of in betweens. And it is enough time for me to have had the good fortune of seeing vast improvements in access to information and treatment, developments and improvements in technology and even some improvements in (GASP!) what health insurers are willing to cover. (READ MORE)


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In a little over a week, my life is going to take a drastic change. I will be transitioning into something completely new that I really can't wait for even though I'm almost too scared to admit it. I'm excited about this next phase of my life. I'm excited to start a new chapter and feel more balanced. I'm excited that God has had my back from the start and is bringing me into things that I can't even believe.

 

Next week, I'll start training to be a Casework Supervisor for the Court Appointed Special Advocates (or CASA, for short). It's a full time position coordinating CASA volunteers and cases. My mom has volunteered for them for many years and I'm 100% behind their mission to speak up for abused and neglected children through volunteer work.

 

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I went to my 3-month endo appointment today. (My dad also went for his check up.) Usually, I do fine with my endo, although I've never been thrilled with him. He's mainly there to tell me the blood results and fill prescriptions. Usually, I'm okay with that.

 

But today was a completely different story.

 

First, they didn't call me into the office until AFTER my dad was already done with his appointment (apparently, I was forgotten). Then they gave me hassle about doing the A1c. When it was finally done, they informed me that the machine broke in the middle of the test (now I have to wait 3 weeks to get the results from a blood draw.)

 

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Nicole Purcell
Nicole PurcellNicole Purcell lists having type 1 diabetes last when she's asked to provide information about herself - because that's where it belongs.

(Read More)
Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
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