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February 10th, 2012
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I've been under 100 for half of the last ten blood sugar checks. My lows are mostly in the seventies and eighties now. Only three below 60 in the past week. My averages are steady at 133, with certain times of day at 110 while others average at 158.

 

I'm certainly not complaining about good numbers and amazing averages. It's taken years of blood, sweat, and tears to get my diabetes where I want it to be. I actually feel like jumping up and down for joy at the moment. I can see the future ahead of me, not tainted by complicated pregnancies or kidney disease.

 

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When I have a lot going on, I always put aside testing my blood sugar. I'll go from checking 10 times a day to checking 4. With that much of a drop in tests, I can easily see my numbers start to rise across the board. So now that I've sat down with my logbook for the first time in two weeks, I can see the times of day that I don't test and what follows that.

 

I'm relentless about checking first thing in the morning. As soon as I wake up, my meter is sitting right beside me so it's easy to check before my feet even hit the floor. That regimen allows me to start my day off with a good decision: juice for lows and insulin for highs. Unfortunately, the rest of my day doesn't go as smoothly.

 

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Nope, not a new Nancy Drew mystery, unfortunately. It's much more prosaic.

 

Olivia has been using the One Touch Mini since last summer. She got a new, downloadable one at the endo appointment in February. It's her favourite meter.

 

However, yesterday I went to put her numbers for the last couple of days in the meter and I noticed that she tested her blood sugar at 4-ish on Friday and never checked it again until the next day. She swears up and down that she did check it, but there's nothing in her pump and nothing in the meter. Check that - there are carbs and insulin doses in her pump, but no blood sugar readings.

 

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Last Thursday, I checked the mail to find my latest test strip order in my box. At first, I wasn't even sure what the package was as it was more an envelope and felt extremely light. When I usually get strips, I receive a pretty good sized box.

 

As I opened it, I saw three OneTouch boxes smushed and open. Good thing that strips aren't fragile. Three boxes shocked me. Generally, I get six to eight boxes for my three month supply. I thought that the prescription was for one month at first.

 

Then I looked at it more closely and noticed that it'd been filled for "3 blood sugar checks per day" and I could reorder on March 16 (meaning I'd get the order early April). I couldn't believe it. I still can't really even though I've been dealing with it for a week now.

 

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After a conversation with Olivia about checking, how it's important, how I can't make changes to her insulin regimen without knowing her numbers, she's still not checking. Worse, I think she's starting to just put numbers in her pump without having checked first.
I log her numbers a few times a week. Tonight when I did it, I noticed there were a couple of reading in her pump that weren't on her meter. I asked her about it and she denied it, so I let it go, but I'm starting to worry. I really need to figure out why she's doing this, have a long talk with her about it.
Is this a common thing for teenagers to do? Those of you that grew up with type 1, did you do this? How did your parents handle it? Because it's really pissing me off. I yelled at Olivia about it tonight but once I calm down, I plan on talking to her about it, see if she has a reason or if she's just legitimately forgetting. She is a forgetful kid. (READ MORE)


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Well, Carnival for a Cure, anyway -- the annual fundraising event presented by the Diabetes Research Institute (DRI). Four years ago, it was at this event that Nick Jonas went public with his type 1 diabetes. This year, he returned, courtesy of Bayer HealthCare, to thank everyone and to continue to inspire children, teens, and adults with diabetes. Through dLife, I had the opportunity to speak with Nick and ask him about his life with diabetes. My own challenge was, in ten minutes, to see if I could learn something that hasn't been asked and answered hundreds of times over. (READ MORE)


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I got my blood work results in the mail last week. All the usual suspects...kidneys, CBC, liver function, thyroid...came back within normal ranges. But my A1c was totally off the charts.

 

Back in July, it clocked in at 7.2%. I wasn't surprised by that because I'd switched from the pump to Lantus and had a few bumps along the way. I was also struggling with getting my exercise numbers into a decent range. So 7.2% was good, all things considered.

 

But now, my A1c has jumped to a whopping 8.6%. It hasn't been that high since 2007 when I wasn't taking care of my diabetes at all in the midst of college and living on my own. I have to say that this result totally shocked me. I want to say that something is off, something has to be off!

 

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I remember posters of dull needles from the pediatric endo's office. The difference between a new needle and the old was always quite disgusting. The old was frayed, with shards of metal sticking out abnormally. It was definitely a good way to scare a teenager into changing lancets and syringes on a regular basis.

 

The bad thing was that I never remembered that poster after I left the doctor's office. I'd go back to my usual routine. I wouldn't change the lancet until someone reminded me. I'd use a syringe repeatedly, until the numbers wore down or the needle bent. It could be days before I'd even think about switching it out...after multiple uses per day.

 

It's a bad diabetes habit that I'm in. I try to be better...I put extra lancets and syringes in my meter kit. I try to make schedules, changing them on Sundays or once a night or on the 1st of the month. Anything to make the habit more often than it is.

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*sigh* My endo/nurse practitioner wants me to log blood sugars. Grrrroan. She said she wants random numbers, which I can't see how in the world would actually be useful to someone. (That drives me nuts, by the way, when a doctor tells a patient to log randomly. How can you get the whole picture if the patient gives you a breakfast reading one day, a bedtime reading the next? But I digress.)

 

So I printed out more of my home-made log sheets, three-hold punched them and put them with my other half-filled out log sheets in the pretty pink three-ring binder I bought probably close to two years ago during my last I'm-serious-about-logging attempt.

 

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When it comes to finding a cure, I'm not exactly picky. I'm ready and willing for whatever we can successfully bring about to get rid of this disease. Last year, I even looked into a clinical trial for islet cell transplant therapy. I give my money to research for this disease so one day my future won't include finger sticks and insulin injections.

 

JDRF announced last year and reiterated this year that the focus is shifting from solely looking for a cure for type 1 diabetes to general treatment and complication therapy. That was a tough pill to swallow. And sometimes still is, even though I currently work at JDRF. I want a cure, not a newer nicer meter or a pump that does it all. I want this gone for good.

 

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Julia
JuliaJulia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)
Carey Potash
Carey PotashCarey is a full-time hater of diabetes. The benefits stink. His 7-year-old son, Charlie, has been giving he and his wife the finger since November of 2003. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)
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