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May 27th, 2012
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I’m not afraid of needles, but I must admit that I’m a little fearful of the bloodwork I’m scheduled to have in a few weeks.
 

Since I finally found an endo practice that I enjoy (yes, I know I still haven’t blogged about it yet!), they naturally want their own bloodwork. Which is great. And fine with me. It’s just the type of bloodwork that’s being done that’s leaving me a little uneasy.
 

I know it shouldn’t. And, really, I’m not uneasy I’m just kind of … I don’t know… just nervous? anxious? curious?
 

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World Diabetes Day (WDD) was designated by the UN and is led by the International Diabetes Federation (IDF). This is the first such day observed by the UN. The federation hosts a Diabetes Atlas that is full of interesting and sometimes astounding information. I'm not going to recap it all here, but suffice it to say I am very lucky to have type 2 in the United States as opposed to most other countries in the world. A type 1 diagnosis is still a death sentence for many people in sub-Saharan Africa and other poor regions of the world. And this is 86 years after the discovery of insulin. (READ MORE)


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In the life of a diabetic, blood draws are fairly common. I can remember being a little girl in my pediatric endo's office waiting for the inevitable butterfly needle after the appointment. My mom and I claimed that the nurses in the hospital were always rougher than the ones in my normal physician's office. It seemed like those quarterly blood draws hurt more and more every time.

 

But I was always used to them. Needles never have been my problem. Maybe it's because before I even begin to remember things, I can remember diabetes. Needles and those blood draws are so common to me that I know no other way. But even though I'm not scared of needles or opposed to the routine draw, I still hate the way it all happens now.

 

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When my dLife mail showed up in my inbox with Melissa's Diabetes Viewpoint column When It's Time to Change Doctors, it really clicked with me.
Lately, I've been having problems with my endo. Granted, I'm pregnant and extra needy these days, but I just feel that I'm not getting the personalized attention that I deserve and need.
Truth be told, I never see him any more. Once I month, I come in to his office, wait for what is often an eternity (despite intentionally scheduling for "slow times") and when my name is finally called, I get to see a nurse instead of the doctor.
Every other week, I e-mail my blood sugar logs to the doctor, along with any questions or concerns I have and a brief update. For a while, it was mostly, "Things are going good. I hit a little bump, but I upped my insulin and it smoothed out." (READ MORE)


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Nobody likes a know-it-all. I've worked really hard for a number of years to keep myself from saying, "Actually, this is how it is...." in just about every situation. I've worked hard to decide when I should make an issue out of what I think is right.

 

I think I'm doing pretty good with not forcing people to know that I know everything. Even when it comes to diabetes. I've written here before about avoiding conversations about diabetes and not getting into too much detail about certain diabetes-related issues. It depends on the person and the conversation and so many other factors.

 

But tonight while I was proofing a story for work, I went back and forth about whether to make the distinction between type 1 and type 2 diabetes for an audience that the majority of whom likely have no idea that there even is a difference.

 

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The theme for this week is "Manage Your Healthcare Team".American Diabetes Month  For me, and for many others with Type 2 diabetes, this is a laugh. Team? What team? I have a primary care physician who handles everything from soup to nuts, including my diabetes care. She'll refer me to specialists and labs as needed, but she doesn't have any direct correspondence with my ophthalmologist (for whose checkup I am long overdue), and I've never had a CDE or an endo.

 

 

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A recent tweet from my friend A. introduced me to a comic-strip blog that shows life as it really is for telephone-based customer service professionals. Having worked in phone-based support myself, I know his work rings as true to call-center life as Dilbert does to life in a high-tech company.

 

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ADM - American Diabetes Month Whether or not we recognize it explicitly, we are all caregivers (aka, T3s). Whether we serve a family member, someone in our neighborhood or church, or just others on the dLife forums and in the dLife community, we are each part of someone else's diabetes support team.

 

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For several months, a bunch of us have taken part in Wednesday night Diabetes Social Media Advocacy (#dsma) chats on Twitter. Run by Cherise Shockley, these sessions are about an hour long and cover a number of predesignated topics ranging from support groups to diabetes-related conferences to relationships to insurance issues. A week ago this past Wednesday, talk centered around the glycosylated hemoglobin (HbA1c) test: how important it is (or should be) in determining our treatment, how accurate it is as a measure of our diabetes control, whether or not we consider current best-practice A1c goals to be realistic or not (and why), and what sort of self-treatment we use to achieve (or try to achieve) those goals.

 

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There are days when I'm fully convinced diabetes is THE WORST.  Like the worst thing ever.  The most terrible, beastly, horrible thing.  Those days, I make it a rule to remind myself that it's not even close.  Does that stop me from resenting the hell out of it?  No.  But what it does do is help me keep perspective.

 

Here's the thing.  Diabetes could kill me.  I know that.  Well, really, it's kind of likely to be the cause of my demise in the end - it and it's complications.  But, with careful management and attention paid and advanced technology and the right team of medical professionals and support, it will probably not take me for quite awhile.  And that, my friends, is more than lots of people get.

 

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Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
Julia
JuliaJulia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)
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