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This is a bit of a rant. I get on this horse periodically, ride it around, waving my flags and guns, foaming at the mouth a bit, going slightly nutty. You'll get used to it. Or ignore it.

What is the deal with lumping both types of diabetes together? Seriously. If I have to read one more freakin' article about how high fructose corn syrup causes diabetes or get one more stupid email from some clueless acquaintance, telling me that if I just put my kid on the Atkins diet, she'll be cured, I'm going to go to the top of the water tower and start picking people off. OK, maybe that's a slight exaggeration, but holy cow, does it make my blood boil.
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I'm always on the lookout for media representation of diabetes. I appreciate the media feedback that we get, although sometimes it infuriates me at how things are portrayed. Generally, I really don't see many movie or TV shows that feature diabetics in any great length.

 

However, as I was flipping through the channels last night, ABC's Private Practice caught my eye. One of the medical stories of the episode featured a diabetic little boy on an insulin pump. His infusion site had become infected and his blood sugars were elevated.

 

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In the past few months, I've really noticed the media attention given to diabetes. Countless times the "d-word" gets thrown into a media line, leaving me clinch to the familiarity of my disease and cringe at the inaccuracies they portray. Unfortunately, too much of this media hype is giving diabetes the wrong kind of attention. Too much of it is snide comments about the disease and not about funding for a cure or the pitfalls of diabetes.

 

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While the title of this post is a play on the French "Poisson d'Avril" ("April Fools" is called "April Fish"), there's nothing funny about it.

 

We've heard about folk stealing one or more of Lance Armstrong's bikes, but a whole team's bicycles -- and not just that, but also their spares, parts, and tools?

 

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I'll admit: I'm not the most regular contributor to the Diabetes Social Media (#dsma) Wednesday-night Twitter chats, and I don't always get the time to tune into the Thursday-night BlogTalkRadio program (or listen to the archive), but when Cherise announced the first DSMA Blog Carnival, I figured I really should chime in. The problem is the topic: "The Most Awesome Thing I've Done Despite Diabetes". I haven't done awesome things despite diabetes, but rather because of it.

 

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During the Diabetes Social Media Advocacy (#dsma) session on Twitter last Wednesday night, a lot of the discussion focused on Endocrinologists.  There were lots of great questions, and I enjoyed reading all the responses.

 

It soon dawned on me that there was a big difference between myself and many of the participants, and that being that I don't have an Endocrinologist.  I only have a Primary Care Physician/Provider (PCP) who helps manage the treatment of my type 2 diabetes.

 

So, just being curious, I asked the question: "Is it weird to not have an endo, and have everything managed through a PCP?"

 

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For several months, a bunch of us have taken part in Wednesday night Diabetes Social Media Advocacy (#dsma) chats on Twitter. Run by Cherise Shockley, these sessions are about an hour long and cover a number of predesignated topics ranging from support groups to diabetes-related conferences to relationships to insurance issues. A week ago this past Wednesday, talk centered around the glycosylated hemoglobin (HbA1c) test: how important it is (or should be) in determining our treatment, how accurate it is as a measure of our diabetes control, whether or not we consider current best-practice A1c goals to be realistic or not (and why), and what sort of self-treatment we use to achieve (or try to achieve) those goals.

 

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Every year, the "blue versus red" argument comes up as diabetes bloggers and patient advocates discuss the relative merits of the American Diabetes Association, the Juvenile Diabetes Research Foundation, the Diabetes Research Institute, the International Diabetes Foundation, and World Diabetes Day. This week, however, the color of diabetes is pink.

 

Diabetes UK pink.

 

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Since I missed this week's Diabetes Social Media Advocacy #dsma chat, I'm addressing this week's questions here. The topic was disclosure — who (and what institutions) do you let know you have diabetes, and who (or where) do you choose to keep in the dark.

 

1. To disclose or not disclose: do(es) your employer/school/friends know you have diabetes? Why or why not?

The company which employs me does not know that I have diabetes; several people at work (including my supervisors) do. There is neither place nor reason to mention diabetes (or any disability) on the job application — I believe it's actually illegal in the US to inquire before hiring — and since hiring/firing decisions are made at the store level, accommodations must be discussed and/or made at that level, rather than the corporate level.

 

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Last night, I participated in #dsma, a Twitter event for the diabetes online community. It happens every Wednesday at 9pm EST. I've joined in a couple of times before, but never gotten into it like last night. I've been really focusing on Twitter the last few weeks and finding connections with the DOC.

 

#dsma is crazy. It's fast paced. That hour goes by like lightning as you're trying to read all the other tweets, submit your own, and truly make an impact with fellow D tweeters. It's insightful and it's thoughtful. For that hour, you are thinking about the diabetes community, how to connect, how to integrate different ideas, how things apply or don't apply.

 

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