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May 24th, 2012
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A month into the new year.  And a number of new things to report:

 

A new job.  An amazing new job.  I took a position in early January with Rhode Island Public Radio.  I am the organization's very first Development Director.  It's challenging, it's interesting, it's fun.  My goals are aggressive.  My new boss is an Emmy Award winning producer who's smart and driven.   Rhode Island Public Radio has just gone independent from its parent station at Boston University and is in the midst of wrapping up a Capital Campaign.  We're essentially building our programs and our membership and fundraising bases from the ground up.  Mostly exciting - a little scary.  

 

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This is not the post I intended to write this morning.
Today, I woke up to a fasting of 151, which is pretty darn good considering where I've been lately. I dressed for my morning walk, sat on the couch and ate what I'm now referring to as a snack--a small cup of yogurt, just 15 grams of carbs. It was all I needed to sustain me through my walk. I used to eat half of a peanut butter sandwich, but it's really hard to choke down that much dryness before the sun even comes up. But I digress.
I decided that with a fairly decent fasting, so few carbs and a 30-minute walk upon me that I didn't need to take any insulin. I mean, 15 grams of carbs! C'mon! (READ MORE)


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I'm really frustrated today. Not because of blood sugars (which have stayed between 110 and 140 all day) or insulin or any of those other details of this disease. I'm frustrated because I can't change doctors without completely stressing out my life.

 

I received a suggestion from my old pediatric endo about a doctor in town, so I checked the insurance to make sure I'd be covered. And sure enough...he's not on my acceptable provider list. Even if I wanted to pay out of network, I can't. Some rule about providers being within 75 miles of my home and I'm not on a PPO.

 

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Oh, hi.  It's been a while, hasn't it?  Yeah.  Slacker central over here.  I read and I think about things to write but the motivation just disappeared last month (and the month before that, if I'm being honest).  I'm hoping the new year will kick my butt into action a little bit and have me posting here more often.

 

On to the latest: 

 

Olivia has been going to the nurse too frequently to treat low blood sugars.  She usually has stuff in her bag to treat, but the nurse has been insisting that Olivia go down there for every low.  In O's IEP it states that she can treat in class and there's a doctor's note in place, so I don't quite get what the deal is with the nurse.

 

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"Guess what!" Susanne said with an enthusiasm that was clearly over-embellished.

 

"The whole school is getting a hot pretzel today. For free!"

 

"Uh huh," I respond cautiously.

 

"Not just Charlie's class. The whole school! Everyone! Everyone in the school will be eating a hot pretzel!"

 

"OK, I get it."

 

"Isn't it great???"

 

I applaud her use of sarcasm. Something I take pride in. We both know full well, this was in fact not great. Not great at all. Hot pretzels have never been kind.

 

"What is he?" I asked.

 

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For a number of years, I was the only diabetic I knew. Diagnosed when I was a little kid, there wasn't an army of advocates knocking down the doors of my school. As far as I knew, the only meter in my elementary school was mine. In my high school, there were two meters: mine and the one belonging to a classmate's older sister. No one else I knew was taking a fingerstick before having the orange slices at soccer practice, or before tap dance lessons.
My first taste of a diabetes community came one summer at camp. Growing up in New England, I had access to one of the best diabetes camps in the country - Clara Barton Camp. I spent six summers at CBC, giggling with my fellow campers, singing my lungs out at the nightly campfire meetings, and making friends. (READ MORE)


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By watching my wife's body language while she tests Charlie's blood sugar, I can get a good idea of what the number is before she tells me. A peppy vertical nod of her head generally means he's in range. No reaction whatsoever might indicate a number just out of range or in the low- to mid-200s. A quick shake of the head in anger is likely a number in the 300s.

 

Tight lips as if holding back the most foul word imaginable, eyes to the ceiling and a sharp gasp could mean only one thing. He had to be over 400.

 

Charlie was 480 before he went to bed last night. That would explain his complaints of stomach pain.

 

I hate this! I hate this! I hate this! I hate this! I hate this! I hate this! I mother-scratchin' hate this!

 

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Not long after I wrote this post about a news story that called bariatric surgery a "cure" for type 2 diabetes, a friend of mine emailed to ask about one of the comments. A reader suggested that there will never be a cure for diabetes because the disease is a money maker.
I explained to my friend that the multi-billion-dollar industry makes a profit in so many areas: test strips, meters, oral drugs, insulin, pumps, syringes, even accessories. What motivation is there, I asked her, for the world to come up with a cure and put all those good people out of work.
I may be naive and woefully open minded, but I am not a pessimist; I believe there are good doctors and researchers out there who are not motivated by money. (READ MORE)


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Am I a control freak? A striver? A rebel? Maybe I'm self assured? A slacker? An ostrich? Or am I just along for the ride?

 

Diabetes can really take a toll on your life, your actions, your experiences, and your personality. It challenges your likes and dislikes, your dreams and impossibilities. It's continually stretching you, sometimes for the better and sometimes for the worse.

 

For me, diabetes is always present. It never leaves, no matter what I do. My thoughts are riddled with diabetes questions and answers and ideas. My body constantly checks itself to see where my diabetes stands. Everything around me is marked with the signs of diabetes, from the meter in my purse to the prescriptions in my fridge to the test strips everywhere I turn.

 

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Lindsey Guerin
Lindsey GuerinLindsey is a typical, yet unique, Texas girl who loves shopping, movies and reading. She loves to travel and take risks. She dreams of diabetes cures, never-ending cheesecake and her own airplane. The rest you can discover in her blog! (Read More)
MikeDurbin
MikeDurbinMike was diagnosed with type 2 diabetes on December 29, 2008, and congestive heart failure the very next day. Talk about a double whammy for anyone, let alone a 24 year old.  He didn’t have to come up with New Year’s resolutions that year; his doctors did that for him.  That kind of humor has been instrumental in keeping him, and those around him, going over the last year and a half.
(Read More)
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